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Regular Member

Date Joined Dec 2006
Total Posts : 185
   Posted 3/12/2008 5:50 PM (GMT -6)   
has anyone done rituxan before for cancer. I have lupus and my next step is rituxan. and im a little nervous on what to expect.. i have to do inpatient for this so im a little concerened?? anyone :)

im currently on cellcept..among all my other meds... im getting pulsed on 1000mg of steroids tomorrow as my vasculitis is acting up and im getting gangrene on my toes again fvrom where the ulcers were

Female: 36 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage II Lupus Nephritis. mitral valve and tricuspid valve regurgitation, 9 tia's and one pontine stroke('06)Seizures('06)steroid induced diabetes and pancreatitis, Photosensitivity since childhood, vasculitis, gangrene left thumb had amputated aug of 07,had mediport put in aug '07, discoid lupus sept 07
Meds: Lisinopril,Hydrochlorithiazide,Keppra, Plaquenil,Prednisone 30 Mg/Day,Miracle mouthwash,Xanax, Darvocet,Lidocaine cream, Xopenex inhaler, Xopenex Nebulizer, prevacid solutabs

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 3/12/2008 7:11 PM (GMT -6)   
(((( Amy )))) bless your heart, I have no experience with rituxan, I just wanted to drop in and give you some hugs and let you know you will be in my thoughts and prayers! Take care

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 3/13/2008 6:55 PM (GMT -6)   
Hi Amy:

I just wanted to let you know that I've had 4 infusions of Rituxan back in 2006. My infusions were done in the outpatient oncology clinic. They infusion the drug in slowly and make sure you do not have a reaction to the drug. I never felt a thing and honestly it didn't do anything for my lupus. But remember I have the RA, Lupus and cancer so I think it's hard to get the correct mix of drugs for me.

I didn't have one reaction from any of the infusions, no headache nothing. I remember two others whose had rituxan here and they didn't have problems either. Wishing you the best and I hope it help you. Please let me know how you do.

Take care,
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

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