I am wondering if anyone can provide some insight regarding what has been going on with me. I normally post in the IBD forum since I have Celiac disease and potentially Crohn’s disease (final diagnosis is pending). I recently visited my PCP because of an ongoing case of vertigo and joint pain in my toes and left side of my upper back. I also have joint pain on occasion in my knees, hands, hips and shoulders. My PCP ran some blood work on me and my ANA came back positive 1:320 and homogenous pattern. He order the double strand DNA and smith antibody test and both were negative. He referred me to a rheumatoidologist for whom I have an appointment with but not until 4/14. I have been doing some research on SLE and I understand that a positive ANA does not mean you necessarily have SLE or even something wrong with you at all. When I look at the symptoms of SLE I do have some of them but fairly mild. For example photosensitivity. When I was 14 years old I started getting this rash when I spent a few hours in strong sunlight at the beach (I spent all my summers working on the beach patrol) It wasn’t sun poisoning and it started around my joints: hands, ankles, knees, elbows. Each day I would go to the beach it would get worse and worse but it never migrated to my chest, back or face. It seems the only cure was a shot of cortisone and prescription of prednisone. After I finished the prednisone treatment I would be able to spend the rest of the summer in the sun without any problem. The doctor I was seeing was never able to explain why I got this rash every year and why it did not come back after treatment. Every year and to this day I still get this rash if I am at the beach for a few hours. Outside of spending time at the beach I do not typically spend long periods of time in the sun. I did have similar reaction while in Italy and once in a tanning salon when I used a higher powered booth. Again I was not burned but I got a rash (and right before my wedding!). I also seem to be running low grade fevers mostly around 100 degrees and this correlates very strongly to when I am having gastro issues. Outside of the fevers, joint pain, sun sensitivity and positive ANA I don’t really have anything else that seems to fit the bill for SLE so I am wondering if I should really be concerned about it. I also know my kidneys are in good shape because I had stones last year and they tested my urine several times. Regarding the vertigo I went to an ENT and she thinks it is not an inner ear problem and that I should see a rheumatoidologist as well but has ordered a balance test and an MRI anyway. As for the Crohn’s disease they have not been able to get a biopsy that shows positive for it only non specific chronic inflammation of the colon, however my blood work was positive for crohn’s (but again that is not enough for a diagnosis). Can SLE cause inflammation of the colon? I know this is a lot of rambling but I have lots on my mind...as we all do. Thanks in advance for any responses
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
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