Too much going on - Uhg!

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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 3/13/2008 7:34 AM (GMT -7)   
I need to vent a little bit about all the stuff that's been going on with me.  I feel really overwhelmed with all this medical stuff and appointments.  I had my physical last week with my new pcp (who I really like) and I got some labs done that he wanted done and then a list of labs from my rheumy too.  I got a call this morning from my pcp's office that they want me to come in so I can discuss my labs with the pcp which translates into some of my labs don't look good.  The earliest I can see him is Monday morning, so I need to let go and try not to worry about anything until the appointment.  Hopefully it's something minor.
 
Then I saw the GI doc yesterday and I like him a lot too.  His suspicion is that it's my meds causing some irritable bowel, but he said it could be an inflammatory bowel problem and the only way to tell the difference is to do a colonoscopy, so his office will be calling me soon to schedule that.  He was very reassuring about the proceedure.  Then I also need to schedule a mamogram - blah!!!   I'm so sick of all this stuff.
 
I just want to live my life and not deal with all of this - I know that all of you feel the same way too.  There are so many great things going on with my kids and I just want to be able to focus on them and my husband.  My daughter who is only six has fallen in love with dancing and her dance teacher has told me that she is naturally gifted and is giving her lots of neat opportunities to do some special dances at the spring recital and the dance teacher is also enering her in some dance competitions.  It can be tiring taking her to all her classes, but I love watching her dance and while I watch her, I am able to forget about my medical problems.  Pretty soon my son will start baseball and he needs some extra care and attention because of his arthritis.  I don't know why I am writing all of this - I'm just sick of all of this interfering in my life and my family's life.
 
Thanks for listening to my rant.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 3/13/2008 7:41 AM (GMT -7)   
(((Hippi))),
    Bless your heart! You have so much to deal with right now. I'm sorry your overwhelmed with all this. When it rains, it pours!
    I hope all your appts go well and things turn around for you soon. It's so hard to handle these diseases and being a mom at the same time. We want our kids to be active in sports and other activites and we push ourselves to the limit to see it through. Your a great mom!
   Hang in there and keep us updated. You and your family are in my thoughts and prayers.
                                                             Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 3/13/2008 11:12 AM (GMT -7)   
Thank you so much Babs. I'm just kind of emotional about it all today, so I'm going to try to keep busy and distract myself some from all of this. In a few hours I'll pick my kids up and then my daughter has dance, so those things will be good distractions. A good thing is that I now have some xanax on hand if I need it. It's nice to know I have it around, especially at night when my thoughts seem to overwhelm me sometimes.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 3/13/2008 12:45 PM (GMT -7)   
sad sad Hippi, I'm sorry you're having to go through this. Don't you wish that things would just settle down once and for all. You do have so much on your plate trying to juggle lupus and your family. I'm glad you like your new PCP and I'm also happy that he (it is a he, isn't it?) is being thorough. Hang in there and do let us know what you find out on Monday. I'll be thinking about you till then because I know how stressed this is making you. Enjoy your daughter's dance lesson tonight. It's great that you're trying so hard to look at the positive.

Love ya,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 3/13/2008 2:38 PM (GMT -7)   
Sometimes being asked to come in to discuss labs is done so that what appears to be a minor problem can be headed off before it becomes major. Also it could just be that your cholestorol was slightly up- they did that to me a few years ago. Just roll with it, as this too shall pass. When it gets really frustrating think of me confined to bed and unable to do ANYTHING until the little one is born. It just sucks, but I knew it was a possibility when I decided to go ahead.

Congrats on your little girl's dance aptitude sounds like a very awesome distraction. As to your son's sports stuff, have you considered asking him if he might be interested in something a little less hard on his joints? I know that if he really wants to try it is best to let him, but kids often stick with something after it becomes less fun (or painful) because they think an adult in their life wants them to. So offer him a chance to say he doesn't want to or doesn't think he can where he knows no one will be hurt or angry. Also check with his doctors because it is possible he shouldn't be playing anyway considering the sun exposure. I know there are other things that might be more comfortable like swimming indoors in a heated pool that he might end up enjoying more. I miss having PT in a 98 degree pool.

Whatever happens remember that at least 2 of the appointments you have are one time or once every year or so. Thus you should not have to worry about them again for some time if ever.

Take it easy and remember naps are a must when tired.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 3/13/2008 3:54 PM (GMT -7)   
((( Hippi )))) It is great that your kids are involved in dance and ball, that is a good way to keep you focused on other things. I know this disease can just bring you to your knees, we all have these moments, I'm having one too right now. My life seems so crazy right now... a lot of stress and I've worked very hard to keep that out of my life, hopefully things will calm down and my house guests will be moving soon. I love being able to help people get on their feet, but it's really taking it's toll on me.

I pray your appt goes well Monday and that your labs are like you said something minor. As for the GI doc I don't know if you remember my story but I've had a lot of bowel problems since 2002. Finally after seeing a lot of different doctors (rheumy's and GI's), going through multiple procedures and having each of them telling me it was IBS (which I knew it wasn't) my rheumy put two and two together and figured Lupus is what was causing all my problems, guess what she was right! She put me on Imuran and the diarrhea that haunted me every day for 3 years was GONE the next day! I don't know exactly how it works, I just know it did. My rheumy said if it wasn't lupus the Imuran wouldn't have done anything for me. Go ahead and have the colonoscopy to rule out other things, it's just a thought for you to keep in the back of your mind. Please feel free to contact me privately if you have any questions, I know what you are going through and I am here for you.

Hang in there and know you are in my prayers.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 3/13/2008 4:32 PM (GMT -7)   
(((((((( Hippie )))))))))

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 3/13/2008 5:52 PM (GMT -7)   
Thanks for the kind words Pat, Redrose, Stacie, and Rosie. I'm doing better than I was before. Like some of you said, all of this could be something pretty minor like maybe some cholesterol issue or something that's not major. It just kind of caught me off guard because my labs have been looking pretty good since I started prednisone, so I fully expected that everything would be normal. Stacie I will keep in mind the possibility that lupus might be causing my Gi problems. If nothing shows on the colonoscopy I'll talk to my rheumy.

Just being able to come here and post and have people understand helps so much. I'll keep you all posted and will hopefully just have something minor to post about on Monday.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 3/14/2008 1:12 PM (GMT -7)   
Hippi- I know it is tough, stressing and aggravating for me to try to juggle all the "medical stuff" and I am single with no children. It's got to be so much more frustrating when you are a mom/wife! I really am sorry you're having to deal with lupus poopus! If I could i'd just tell the good Lord to give me your Lupus too since I don't have babies of my own! ((((you)))) I hope things get better real soon! Love ya, Judy

Barbara Lee
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Date Joined Sep 2003
Total Posts : 2889
   Posted 3/14/2008 2:07 PM (GMT -7)   
Hi Hippi:

I'm sorry to hear that you're overwhelmed. I know it's so difficult to be sick and be a Mom to young children with all their sports and dances classes. Hippi you're a wonderful Mom and you're doing a great job. I know you worry about Josh and his problems and I know your little girl is really active.

I just wanted to say I'm praying for you and I hope things get easier soon. Hang in there Hippi, you're doing a great job. We're here for you at all times that you need us. (((hugs))) for you sweetie.

Love ya,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/14/2008 8:04 PM (GMT -7)   
Hey Hippi,
It's such a coinkydink that this issue came up. I got my issue of Lupus now today and there is a book dealing with juggling Lupus while raising children. The name of it is The Monster Under The Bed by Barbara Butler. It is only $4.oo from the Lupus shop @ shop.lupus.org. It may be well worth the read. I know it wont take away the stress of it all but it may offer some good advice. God Bless ya, Judy

P.s. just fyi they changed Lupus awareness month to May for 2008 and every year thereafter!

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 3/14/2008 9:19 PM (GMT -7)   
Hi ya Hippi, sorry I didn't get to this sooner. I was gone for a couple of days and have been tired since I got home. I was thinking about how it never seems to fail that you/we get these lousey phone calls on Friday and have to wait all weekend not knowing what's going on.
Actually I think it's a good thing that your PCP wants to talk to you. You said he's your new doctor. All doctors see things different. He probably wants to discuss your symptoms and your meds and what the labs say and quiet possibly think he/she may want to try somthing that he has used to treat people with good results. Let's just keep a possitive attitude :). He's got alot of catching up to do with your history.
Yes I feel for ya about this stuff getting in the way of everything else with appt: and labs and run run run. I have off and on bouts with my bowels somtimes but I think it has to do with my plaq. I pray it all goes well ith you with your colonoscopy. Try not to let this disease ruin a great weekend. We have been waiting for some good weather. Hopfully you will have some nice days this weekend.
I'll be keeping you in my prayers.
love ya
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 3/15/2008 1:10 PM (GMT -7)   
Thank you for all the kind words and support. I'm not quite as stressed as I was and I'm more calm about my appointment on Monday - all of you helped me with that. I scheduled my colonoscopy and it's not until mid May, so that's good. My daughter's dance recital and competition will be out of the way and summer dance won't start until a few weeks after that. It's far enough away that I'm not stressed about it yet and it also doesn't interfere with any of my family's activities so far.

I am going to look into that book tha Judy talked about - it sounds like just what I need.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/16/2008 11:45 AM (GMT -7)   
Hi Hippi,
   I'm glad to hear your stress level is down a bit. It's so hard not to get overwhelmed in your situation...((hugs)). I hope your appt goes well tomorrow. Keep us udpated and take care. You and your family are in my thoughts and prayers.
                                                           Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/16/2008 5:24 PM (GMT -7)   
Hippi,
Just wanted to say we'll be thinking about you tomorrow. Let us know what the doc says. By the way...are you a hippi? or are your children hippies? :) Judy
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