Date for London near!

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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 3/14/2008 11:10 AM (GMT -7)   
Been without my computer for abut two weeks.
London looming with my appointment on the 10th April in London UK. My flight is booked.

Been very unwell of late.
Still being told by neurology here that anxiety can cause neuro probs. Sis-in-law asks me why do I stay in touch with them when they talk like this.
Family ARE making more contact, I have to say which I find great.
I am struggling with the college and have being doing far too much.
the 'ants in pants' worse, so is the dystonia and pain.
I wake very early with every muscle in cramp and then the dystonia and accompaning grunting (which is also involuntary) gets so bad I have to get up.
The sjogrens seems worse and the exhaustion.
I am on friendly terms with the neuro pathologist who tells me he was thinking of mitrochondial DNA mutation too after I got an answer from an Expert on a Parki site when I put my symptoms to him/her.
I sincerely hope I get answers in London.
I can't continue like this for much longer and the docs here thinking it is all in the mind.
My depression and memory has got worse too which is also rather alarming.
I get SO SO tired.
I hope ye all are keeping the show on the road. I donno how we are suppose to deal with all this stuff, if anyone has the magic answer the person here wants to know.
My PA and I are going to the Botanic Gardens tomorrow for me to take pics.
I'll be driving and its over 20miles!
xx for now.
Ann
been shooting baskets, doing small weights and doing the exercise bike for five minutes a day. I think I am overdoing it and that doesnt count going to college and doing DIY here. I think I am er, Mad!!!!
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/14/2008 3:45 PM (GMT -7)   
Ann,
  It sounds like you have been very busy lately. I'm sorry to hear you are still waiting and searching for answers and relief. I hope your appt in London goes well. Take care and keep us updated. You are in my thoughts and prayers.
                                                     Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 3/14/2008 9:26 PM (GMT -7)   
Hi Ann, I actually posted about you the other day if any one had heard from you. I noticed you were messing from the group. I thought maybe you were already in London. At least I was hoping you were there and getting some help.
I know depression the drugs stress can all cause memory loose and it's ironic that memory loss can cause depression and stress. Just can't win sometimes. I hope you don't do more than you are able but it seems like a little exercise is a good thing with your muscle problems.
Be safe on your drive to the gardens. I know you arent too crazy about the drive. I'm so glad you at least have a date set for London. Was your computer in the shop or what?
Glad to see you back!
hugs
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 3/14/2008 11:55 PM (GMT -7)   
thanks babs and okie,
Yep, computer crashed c ompletely. Its an Applemac and Apple werre gREAT, collected it from my door and did it quicktime and brought it back. I had it only a year and five months. The logic board (whatever that is) had completely crashed (like mine!) but no data was lost.
I still cant use most of the programs but I am back emailing which is great.
Yes, I feel much worse now and even the typing is getting difficult. I know now I need rest up for quite a period.
I cannot wait to get to London, but all of a sudden have been less hopeful.
A guy from a photo mag, and ex doc told me he had muscle wasting disorder and though he is with the top guy in England they still cannot discover why.
Happy St. Patricks day to all there!!!
xxAnn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream

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