Some lab results

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hippimom2
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Date Joined Jul 2005
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   Posted 3/17/2008 12:56 PM (GMT -7)   
I just have a few minutes before I go to pick the kids up from school.  My new pcp went over a bunch of my labs with me this morning.  He didn't go over any of the ones my rheumy ordered - it sounded like he wanted my rheumy to do that since he was the one who ordered them.
 
I had a bunch of stuff out of whack.  My liver enzymes were high and he seems to think it's related to  lupus and wants to watch it carefully and I may end up seeing a specialist about it.  Also,  a bunch of my hormones were out of whack.  He said that testosterone regulates most of your other hormones and that my testosterone levels were almost non existant which threw of all my other hormones.  he's putting me on testosterone cream that I put on the insides of my wrists and he said it should help decrease the severity of my fatigue and some of my overall crummy feeling.  I won't get the cream for a few days because it had to be sent to a compounding pharmacy.  I did a little bit of reading and it sounds like lupus and low testosterone levels go hand in hand (I never knew that).  Also, my cholesterol was a little high, so we talked about diet and exercise to bring that down.  I'll see him again in 6-8 weeks.  He's a really great doc and very thorough and easy to talk to.  On a positve note, I had lost 5 pounds since I saw him a week and a half ago.
 
I see my rheumy in about 4 weeks, so I guess I'll talk about those other labs then.
 
I'll try to catch up with everyone tomorrow since I have a busy night.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 3/17/2008 3:15 PM (GMT -7)   
Hippster,
Congrats on the 5 pound weight loss! I'm so glad they figured out what's going on. The hormone thing could of contributed to the "down" feeling. My liver enzymes have been elevated at times. I've had to have an ultrasound of my liver a bunch. It has been swollen twice it's normal size before. I've never had to have any different tx or procedure down because of it. I'm glad you like your doc. That makes a huge difference! God Bless ya, Judy

AlwaysRosie
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Date Joined Jan 2005
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   Posted 3/18/2008 6:01 AM (GMT -7)   
Hey hippi!!

I hope the testosterone helps. I've heard a little about how helpful it can be when its needed. Its always wonderful to get a bit of hope with a new treatment!! Keep us posted on that.

Were you working on weight loss??? If so . . .GREAT!!! Those liver enzymes could be out of wack from your meds so don't fret too much till you figure out why they are high.

4 weeks??? YUP! I would call and see if you can go over things sooner. You don't need the stress of waiting that long to understand what's going on. . . or to start treating the problem.

Keep us posted (((((((( Hippi )))))))))).

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 3/18/2008 8:21 AM (GMT -7)   
Hi Hippi, congrats on the weight loss, great job... keep it up!!!!

I've never heard about testosterone levels and lupus, very interesting though. That reminds me I need to make an appt with my PCP and have all my other labs checked, I've not had my cholesterol checked in a long time (ins co won't let rheumy do it), last time is was 200. My liver enzymes have been up the last 2 times they've been checked. My doctor said it could be myositis, lupus can sometimes attack our muscles too.

Hang in there! You are in my thoughts and prayers.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 3/18/2008 8:57 AM (GMT -7)   
Hi Hippi. Congrats on the weight loss yeah I've lost 6, I'll post an update in a minute. Also, I haven't been able to control my cholesterol very well so I was placed on lipitor long ago :( I never knew that about testosterone.  Sounds like your PCP was really thorough.  Teriffic!  I hope you're feeling okay.  Love, Butterflake  

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: CellCept plaquenil methotrexate prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol multi vitamin C calcium/D flaxseed oil  PRN: ambien neurontin promethazine xanax
             Better living through chemistry :D    Donna
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 3/19/2008 2:12 AM (GMT -7)   
Hi hippi, Hey that's great about the weight loss. Not so good about the enzymes. It would be nice if they could come up with something to rub on your wrist and you would not feel fatigued. Wow, I really interested in in how it works for you.
I hope you get to feeling better soon
love ya carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 3/19/2008 2:19 PM (GMT -7)   
I'm still waiting on my testosterone cream - I checked this afternoon and they still didn't have it. I've been feeling really crummy these last few days. I hope if my hormones get more balanced I'll feel at least a little better. I've been so fatigued I've been going to bed at 7:30 or 8 when my kids go to bed.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 3/20/2008 7:31 AM (GMT -7)   
Hippi,

Way to go with your weight loss! That must be encouraging. If your rheumy is willing to wait four weeks to go over your labs, he must not be very concerned, don't you think? I hope that's the case.

Testosterone cream can also help with libido, or so I've heard.

Sorry you've been so tired. I can really relate to that and I know how hard it is to exercise and lose weight when you feel exhausted all the time. Exercise can help with exhaustion but it's a real catch 22, isn't it.

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 3/20/2008 1:05 PM (GMT -7)   
Hippi,
My liver enzymes have been off in the past, within a few weeks on Imuran they return to normal. I would call your rheumy RIGHT AWAY, inflammtion in the liver can cause damage/scarring which can lead to seroisis and eventually liver failure. Don't mean to alarm you or anything, but it isn't something to mess around with if the lupus is causing inflammation in the liver.

I knew that autoimmune diseases and low DHA levels went hand in hand but testosterone? Great. I will have to ask for my levels to be checked post baby. I wish you luck.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec

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