food & lupus--NOT what you think

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Regular Member

Date Joined Mar 2008
Total Posts : 39
   Posted 3/18/2008 3:27 AM (GMT -6)   
Finally I had a great day today! I looked great my hives and rash disappeared. I lost about 15 Lbs of water weight overnight!!!breathing is great, no pain, no burning,  no swelling( besides my chest but i'm not arguing with that).
My point is I realized something. I didn't eat today. Just drank water and chai tea. I didn't eat last night either. I know people will say that's so bad ...but I feel good.
Then I realized, about 3 weeks ago the exact same thing happened. I don't eat-I get better( about 85 percent better). So about 9pm I decided to test myself. I had a couple of bites of carrots,cabbage and plain rice--I stayed away from the corned beef and potatoes which was HORRIBLE for me...anyways, within 15 minutes a rash broke out around my neck, my tongue knotted up and my wrist stiffened up big time. I only ate a little plate, stopped right when I felt my throat hurt. Got up , drank some water and didnt consume anything else all night and right now I am fine.
Normally by this time of the day, or night, its 1 am I am in horrible shape curled up on my couch but Im cleaning the kitchen floor.
Has anyone ever felt like this? or noticed that if they dont eat for long periods they fell better? Even though they stay away from trigger foods.
I think I will never eat again ( just kidding ofcourse)
(((((((I am so happy right now--thank god! I needed a day of smiles, sunny and shopping)))))


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Date Joined Jan 2005
Total Posts : 8616
   Posted 3/18/2008 7:42 AM (GMT -6)   
Hi Jenn,

I wonder if the carrots, cabbage were cooked in the juice from the corned beef???? An item like corned beef is soaked in a brine with a number of ingredients that could have been the culprit. Some foods really do trigger inflammation (there is another recent topic on that).

I do find that smaller meals do leave me feeling better and my gradual weight loss over the last 14 months has really improved my energy levels.

I'm wondering if you have some issues with your gut . . . you might want to bring up this subject with your doctor.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

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UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 3/18/2008 10:28 AM (GMT -6)   
I have found if I don't eat for a long time I get very weak and end up paying for it! You need to talk to your rheumy about this, he/she needs to get to the bottom of it and hopefully he can refer you to a nutritionist. You can't go though life not eating (((hugs)))).

I have a lot of problems with my gut and food but I don't have rashes or my pain doesn't increase.

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)

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Date Joined Jul 2007
Total Posts : 1048
   Posted 3/18/2008 11:33 AM (GMT -6)   
I did the detox thing recently and felt great. I did it for 3 days, no solid food; except fresh fruit. I felt better than ever. I'm about to do another 3 day stint! Judy

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Date Joined Mar 2006
Total Posts : 2570
   Posted 3/18/2008 11:58 AM (GMT -6)   
Jenn, there is the possibility that you are allergic to certain foods. You might try to find a doctor of naturopathy who will allergy test you. The naturopath that I see is also a nutritionist and she's helping me with allergy testing and foods I should and should not eat. She wants me eating no sugar at all and mostly just what she calls "real" foods. Fresh fruits, fresh veggies, rice pasta, etc. She's going to allergy test me for my dog because I told her that I started this four year flare one week after I bought my dog. It's a lengthy process but definitely worth the time. My naturopath had fibromyalgia and was bedridden for a period of months and after going through this process herself is free of pain and fatigue. She claims to have helped lots and lots of people. She gets most of her patients from an internal medicine doctor who also sends his daughters to her.

I'm not saying that foods cause lupus but I think we can all agree that the foods that we eat affect how well or how bad we feel. Some lupus doctors will have you try the lupus elimination diet.

I hope you find out what's causing you to feel so bad.
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin

Regular Member

Date Joined Mar 2008
Total Posts : 39
   Posted 3/19/2008 2:28 AM (GMT -6)   
MJLD - thats what I mean exactly! Today I only had some fruit , water juice and tea and I feel pretty good.

Patty- I have already figured out my trigger foods and stay away from them, they are nightshades mainly and a few others.

Rosie, I feel so much better with little meals too.

We will see though. This is just a theory of mine. I might just be having a good day or two...I hold on to my faith and pray that I am on to something. Expect the worst hope for the best. :)

Regular Member

Date Joined Aug 2007
Total Posts : 31
   Posted 3/19/2008 6:58 PM (GMT -6)   
Hi Jenn,
When my disease is active, my appetite decreases and I usually eat berries, fruit, water, yogurt, crackers/peanut butter, cereal bars, etc. I have been on prednisone (avg. dose 20mg) over ten years, tapering now. All that to say that I was told in the beginning to stay away from deli meats, corned beef, hotdogs, soup, sauces. soy sauce, canned vegetables, etc. Because of the sodium, swelling, kidneys, heart and circulation. Prior to diagnosis I was very reactive to MSG in Chinese.
I take so many medications that I must eat even on the days that I don't want to and also because the body does not have a chance without food to fight an illness. For me, the "grazing" even when I have an appetite has been helpful in weight control. Last, I was thinking allergies and saw someone mentioned that already. Hope you find what is healthy and makes you feel the best you can feel!

Regular Member

Date Joined Aug 2007
Total Posts : 31
   Posted 3/19/2008 7:03 PM (GMT -6)   
PS I used to have burning and red streaks with the MSG/Nitrates. I would swell in my face, legs, hands, etc. Felt numb. (Prior to diagnosis) The Chai tea would be a naturual diuretic and we know tea is a great drink loaded with antioxidants~
S. Lupus, Sjogrens, Shingles, Osteoporosis, SLE/Sjogrens complications.
A grocery list of medications in the double digits/supplements

Post Edited (Gagirl1) : 3/19/2008 6:06:44 PM (GMT-6)

Regular Member

Date Joined Mar 2008
Total Posts : 39
   Posted 3/21/2008 1:59 AM (GMT -6)   
Gagirl I drink chai tea everyday:)
Also you should really try to stay away from peanuts aka no PB&Js =( Its sad for me cause I love them. Peanuts are legumes, which are nightshades, which is pure evil for lupus

P.S I really have been feeling better making my portions smaller. I also am ONLY have FRESH organic ( if that means anything anymore) veggies and fruit, yogurt, and sushi/shashimi ( no soy sauce ofcourse). I have been feeling good for almost a week now. This hasn't happened since I became sick in December.

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 3/21/2008 11:52 AM (GMT -6)   
Hi Jenn,
   It's good to hear you have figured out the trigger foods for you and your taking control. It's so hard to cut out certain foods, for me anyway. I really need to work on making some adjustments in my eating habits. I can tell when I eat certain foods I will swell more than normal, mainly junk foods. Keep us updated and take care.
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Oct 2004
Total Posts : 4083
   Posted 3/21/2008 3:35 PM (GMT -6)   
I pretty much have the same safe foods as Gagirll, the crackers.
I also have too eat small little meals, if I go too long my blood sugars drops and I get sick, the samller amt you eat more often speeds up your metabolism.
Im having a real hard time figuring what my safe food are confused
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