What exactly is a High Sed. rate?

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OhWell
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Date Joined Feb 2008
Total Posts : 11
   Posted 3/18/2008 1:38 PM (GMT -6)   
I saw a hematolgist today for a high platelet count. They did some more blood work and they're going to do a scan of my liver and spleen, she thinks my spleen is enlarged. Anyway, there was a student doctor in the room and she asked her about my sed rate, 41 on my last blood work. The doctor said that's not high and someone could punch me in the arm and it would shoot up to 60 or it could shoot up if I had a pimple or something. She said high ranges are around 100 - 150, i've never heard of anyone going that high. I did like her a lot, because she seemed to take the high platelets seriously and that's what I went to see her for. But is she full of you know what when it comes to her explanation of the sed rate or is 41 nothing to be concerned over. I see a rheumatologist on friday so i'll leave it all up to her. Just curious what everyone thought about that.

~OhWell

jhmom
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   Posted 3/18/2008 2:58 PM (GMT -6)   
OMG 100-150, I couldn't imagine my SED that high. I think 41 is significant, depending on your lab 0-20 is usually within the normal range. I would definitely see what your rheumy says.... let us know.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


Ginny
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   Posted 3/18/2008 3:29 PM (GMT -6)   

Oh boy,

You weren't given very good information.  Yes, a sed rate can reach those really high numbers, but boy you would sure know it.  You'd be so sick it would be awful.  When I was diagnosed, my sed rate was nearing 100.

The student doctor doesn't have a clue about what a sed rate is....  The sed rate calculates how much systemic inflammation is in the body.  It won't measure what inflammation occurs from a punch to the arm or a pimple.  That is the biggest load of who-ha I've ever heard.  No offense to you! It's all targetting towards that "doctor", LOL.

The sed rate, or ESR test is fairly unreliable.  The higher the number, the more acurate it gets.  If you're ranging the 40's, that's starting to get up there, and you probably have quite a few symptoms of flare.  Do you? Tell your rheumy what this student said to you.  There might be some eye-rolling!

Stacie is right.  The normal range is 0-20. Don't rely on the numbers to tell you how you really are.  Treat the symptoms, not the number.  That's important.  Just use the number as a very loose guide.

Good luck with your platelet count situation.  That is a concern for sure. Let us know how it goes,

Ginny


I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


vanae
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Date Joined Apr 2006
Total Posts : 46
   Posted 3/18/2008 4:40 PM (GMT -6)   
 Just wanted to say when I was diagnosed my sed rate was 150. I was also in the hospital with a large percardial & pleural effusion at that time.

MJLD
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Date Joined Jul 2007
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   Posted 3/18/2008 5:42 PM (GMT -6)   
My sed rate has been in the 100's! I just found out today it's 47 and it has been normal recently. I'm, unfortunately having some mild symptoms. I see my neph tomorrow, i'll ask her how significant it is. I went to see my neice in the hospital and she was under bili lights and I put my hands in their and held her for a good while. I wonder if that could have triggered something? Plus the stress of her being sick! Judy

MJLD
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   Posted 3/18/2008 5:46 PM (GMT -6)   
Sorry for 2 post in a row but I just thought about something...If a sed rate could be that easily influenced what would be the point in using the test for anything? I mean you could stump your toe on the way to the lab and throw it off! So, why would a doc even ever order it? I mean if a pimple could throw it off or a punch in the arm then you would think a tourniquet and a needle stick would affect it. Makes no sense to me. Judy

Ginny
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   Posted 3/18/2008 9:03 PM (GMT -6)   
Hey Judy,
 
The sed rate won't change if you stub your toe, or get poked, etc.  A pimple or a needle won't affect the test either.  The test calculates how much inflammation is going on systemically.  It's different.  Systemic inflammation is throughout the entire body.  Not in one location like an infected sore or something.  So the test is ordered to see what is going on from head to toe, so-to-speak.  Does that help make sense? 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


MJLD
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Date Joined Jul 2007
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   Posted 3/18/2008 9:08 PM (GMT -6)   
Thanx Ginny,
I guess I was actually being sarcastic. I'm very familiar with sed rate. I was just making the point that if it was that easily affected there would be no point whatsoever in using it. My doc checks mine quite often. Thanx, Judy

Night Tenjo
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Date Joined Sep 2008
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   Posted 9/3/2008 7:14 AM (GMT -6)   
I had a sed rat of 111 not to long ago accompanied by a fever of 103.8. They had to test me for appendicitis and wound up sending me to the ER because they didn't have a doctor on call, nor was my fever getting any better (had been getting worse for about two weeks). I still have to go in for an ultra-sound, they want to make sure nothing has been damaged internally.

I imagine my immunity is down, though I'm not sure. I almost always have a low fever and I'm 'always' tired.

AlwaysRosie
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   Posted 9/3/2008 8:14 AM (GMT -6)   
Hi Tenjo,

Welcome to the forum. I hope you'll start a new topic and introduce yourself. The others won't see your post in this old thread.

Glad you found us!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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Night Tenjo
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Date Joined Sep 2008
Total Posts : 4
   Posted 9/3/2008 8:41 AM (GMT -6)   
Thank you Rosie, the people on this site seem friendly enough. ^^

I just saw a familiar topic (thread name) and wanted to reply.

SisterAnn
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Date Joined Sep 2008
Total Posts : 2
   Posted 9/23/2008 6:33 PM (GMT -6)   
Yes, I am doing the same. I have a sed rate of 48 and will be seeing a rheum Dr in a couple of weeks. My symptoms are basically a tightened stiff neck. My other question is does anyone know about lyme disease? I was diagnosed with this last year and is wondering could this elevate the sed rate?

Dagger
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Date Joined Apr 2008
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   Posted 9/23/2008 7:36 PM (GMT -6)   
Yes, Lyme Disease can elevate the sed rate. It can also cause tight muscles and a stiff neck and be misdiagnosed as Lupus. There is a Lyme Disease section on this forum. I suggest you go over there and browse around. Lyme Disease is a controversal illness, it is best to educate yourself so you can make informed decisions.

Krister672
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Date Joined Oct 2008
Total Posts : 1
   Posted 10/14/2008 6:42 PM (GMT -6)   

Hi All,

I was scheduled for surgery next week but now my PCP wants to postpone it due to a sed rate of 68.  Does anybody have any knowledge of what effect an elevated sed rate will have on recovery?  I have had plantar fascitis for 7+yrs and this summer diagnosed with tarsal tunnel syndrome and an MRI showed that I actually have a broken bone in my ankle which it is has been felt that all the inflammation is related to these conditions so thus need the surgery to correct them.  My sed rate went down when I was off work and off my foot but back up now that I've been working for the past month.  She did the extensive blood work and ruled out RA, Lupus, Cancer but the #'s just warrent further evalutation so off too a Rheumatologist. BUT I don't want to cancel the surgery just to hold off to see that MD.  So any info on this effect of the high sed rate and how it relates to surgery is greatly appreciated.


featherstone
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Date Joined Dec 2007
Total Posts : 7
   Posted 11/18/2008 9:11 AM (GMT -6)   
I too had a very high sed rate now for about 2 years, it is 96, have been tested for everything from lupus to hiv, everything comes back negative. My doc now has me on prednisone 10mg a day, have been taking it for awhile and do not seem to show any improvement. I have muscle cramps, twitching and an overall crummy feeling all the time. He has diagnoosed with me poly, somthing rheumatica, which to ne is justsomething he figured it might be since he cannot figure out what I have. I am concerned because I do not feel any better. Maybe its time to fing a new doc, Any suggestions as to what it might be. He did do some lyme test and they came cback borderline(whatever that means and I was on doxycycline for about 2 months. Anybody got any answers for me I am so tired of not feeling good.

TCBJamie
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Date Joined Feb 2009
Total Posts : 2
   Posted 2/5/2009 4:55 PM (GMT -6)   
featherstone, It's funny that you mentioned your diagnosis because my doctor came to the same conclusion when there was no other explanation for a high sed rate and high CRP level.  When I saw a Rheumatologist, he basically laughed at the diagnosis given that I am only 31 and polymyalgia rheumatica usually occurs in people in their 60s or better.  I was basically just given a physical exam that indicated that I had not lost my range of motion or strength in my limbs and so PR was ruled out.  Hope this helps!
 

featherstone
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Date Joined Dec 2007
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   Posted 2/5/2009 6:44 PM (GMT -6)   
hi, thanks for answering my post, since that post my sed rate has now increased to 130, so I guess the prednisone is not working, da. I also feel worse than I did before if thats possible. I finally have an appointment with a rhuematologist next week, hoping for some answers soon, I should have made an appointment a lot sooner, was just kind of hoping it would just go away. Did your rhuemy say what might be going on with you???

TCBJamie
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Date Joined Feb 2009
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   Posted 2/5/2009 7:09 PM (GMT -6)   
No, unfortunately not. In my experience, doctors seem better at telling you what you don't have than what you do have. :) My sed rate was in the 80s and my CRP level was about 5 times the normal range. I know I have hashimoto's hypothyroidism which is being treated. I also had a CT-Scan which was clear. So my doctor's have told me not to worry though from what I've read, inflammation makes you really tired. Worrying is one thing. Feeling better is another. Hope they can help you and you start feeling better!

okie
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Date Joined Dec 2006
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   Posted 2/5/2009 7:54 PM (GMT -6)   

Hi Featherstone and Jamie, Featherstone 130! wow that's just wild. I don't know how you been dealing with that. You mst have one whopping infection. Mine was 63 and I felt like a truck hit me. I'm glad you are seeing a rheumy don't leave without any answers. Let us know.

Jamie, Hi I just wanted to welcome you to the group. I hope you stick around and let us get to know you. :-) carol


 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 


featherstone
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Date Joined Dec 2007
Total Posts : 7
   Posted 2/5/2009 8:01 PM (GMT -6)   
thanks most of the time i do feel like i have been hit by a truck, hope i get some answers next week, I am kind of thinking chronic lyme as I have all the symptoms of it(aching, twitching , cramping} I still remember the day I got bit by the tick, Iwas bit in leg and had a hell of a time getting the little bugger out, about a year later I started to feel sick, was given doxycycline to take for 2 months but beleive it did clear up totally

kayh
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Date Joined Feb 2009
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   Posted 2/11/2009 5:54 PM (GMT -6)   
Hi...this is my first time on here and have been reading everyone's posts.  I have had ongoing problems over the last several years that started with fibromyalgia and then muscle weakness on the right side of my body.  It took three years, one rheumatologist, and two neurologists to find out I have myasenthia gravis.  Its symptoms can be similar to MS, but it is not degenerative and you do fine if you stay on your meds.  I had started with some new symptoms about 3-4 months ago.  Mostly at night I would have these sharp, burning pains throughout my spine...felt almost like the pain was trying to push its way out...sounds weird, but only way I know how to describe it... then the pain would just start randomly going through my joints, legs, hands, hips, shoulders, you name it... Almost unbearable at times.  I would have these spells about 2 times a month or so... (was hoping they would just go away).  It had been awhile since I went to my neurologist, so I had to go to family doc for a referral...she went ahead and did some blood work and my SED rate came back at 88... Just wondered if there is anyone out there with either myasthenia or fibromyalgia and had any of these random shooting type pains... with the fibro...I had had the joint pains, fatigue, and just feeling lousy, but I never had these "explosions".  They can go on for a few hours before any meds take hold.  Just wondered if this SED rate level means something in terms of these random episodes, or is it to do with the fibro or myasthenia... I never knew about SED rates before...they might have checked them, but never knew about it...anyway...thanks for sharing... K.

featherstone
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Date Joined Dec 2007
Total Posts : 7
   Posted 2/12/2009 7:50 AM (GMT -6)   
I never experienced anything like what you are describing. My sed rate is around 130. A sed rate is just a marker for inflammation, it does not tell you why. I have a general all over aches and pains, mostly in my joints. It might have something to do with the fibro, not sure, hope this helps, margaret

featherstone
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Date Joined Dec 2007
Total Posts : 7
   Posted 2/12/2009 7:52 AM (GMT -6)   
p.s. What kind of medications are you on. Maybe it is a side effect on some of the medications you are on.

Lupus Mom69
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Date Joined Feb 2009
Total Posts : 3
   Posted 2/14/2009 1:00 AM (GMT -6)   
It depends on the range of the test.  I have had a high sed rate of 45, 49, and 58 on a 0-20.  I have also had a high sed rate 0.70 and 0.88 on a 0.00-0.50.  In all of these cases my sed rate was very high.  I have learned that sometimes doctors get used to seeing things so sometimes they get used to things that they should not be used to.  Just be your own advocate and ask questions, questions, questions.  A lot of doctors are not used to patient wanting to know more than what they tell them and some get upset with you being educated about your own health.  What ever you do don't let them make you fill like you are the problem because you are asking questions. eyes
I am a 39 year old mother of three.  Who had been living with pain, fatigue and memory lost since 2001.  It took my doctors to 2006 to give me a diagnosis (lupus).  Since I have been put on drugs to help me with the disease I have went from a very active mother, wife, and supervisor making over $50,000.00/ year to making nothing and not so active (in my mind I want to be the person I once was but my body want let me).  Sometimes I forget my limitations because wanting to be that the old me (volunteering to help at school @ church), but my pain and extreme fatigue quickly reminds me that I have lupus.  There is no way to ignore it-- turst me I have tried.  I am currently waiting on SSD application approval.  This has really changed me and my families life.  It hurts me so bad that I can not work.  One thing I am glad about is my relationship with God.  If I did not have it through this I would be angery because I worked so hard to help my husband make sure our kids had a good life without any government help.  It's hard to stay positive when you feel so bad and sometime the doctors act like you are the problem when their drugs don't work.  Some people can live a normal life with lupus and I sure wish that I was one of them, but for this period of my life I am not.  To all of my lupus buddies keep the faith.  Seek not for understanding, just use this as a way to inspire others to enjoy life, be thankful for what they have, and keep God first.


Doblefam
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Date Joined Feb 2009
Total Posts : 2
   Posted 2/24/2009 1:37 PM (GMT -6)   
All of this is very interesting.  I have a four year old little boy whom we just had re****s come back stating his said rate was high.  Test taken three times in a week.  All rangend between 96 and 112.  He stayed two nights in the hospital going through various testing and still two weeks later have not figured it out.  He also has a fever everyday but nothing over 102.5 degrees.  I always give tylenol for the fever and the Doc had me hold off one time on the tylenol to see what happened with th fever and he complained of a headache and the light hurt his eyes.  As you can imagine its hard to see a child ill, and watching him undergo test after test with and iv in his arm has been aweful.  I hope soon they can figure out what is wrong.
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