redrose,I have a wonderful rheumy that has written a very good letter stating that I have Lupus, Fibromyalgia and Meniere's disease and because of these three diseases the limitations that I have. I am unable to work and he expects it to continue. I couldn't have asked for a better letter. I have a ton of blood test results that are severely high ... like in the 2,500 to 3,000 range (ANA, Anti dsDNA) so there is no denying I have Lupus. The blood tests are getting worse each time they do them too.
The Meniere's was a new diagnosis. My rheumy told me it is an autoimmune disease and is quite common for people who have Lupus to have that. I have bouts of vertigo that will force me into taking something to stop the room from spinning and help with the nausea. I have low level hearing loss and some roaring noise in my ears that I hear a good deal of the time. They can do all the tests in the world and nothing will tell them that you positively have Meniere's. It's almost like FMS, rule out everything else by tests (and the tests are expensive) then we'll give you the diagnosis of Meniere's. And then they gave you drugs that don't work all the time, put you on a water pill and tell you to eat a low salt diet. I figure it this way, I have Lupus, I can't tell you the last time I didn't have an ache or pain. I have to quit smoking, lose weight, and now you're telling me I have to go on a low sodium diet. Why not just lock me in a room and give me bread and water. I'll do so much but I refuse at this point in my life to let it run my life, the Lupus already does that.
I have a hard time looking someone in the face when I talk to them, I get nervous and look off. Tomorrow when I see the Judge the most important thing I have to do is keep eye contact with her and tell the truth. LOL okay I know, I have to find the words to describe how I feel day in and day out. I hate getting up in front of people and talking, and even more than one person makes me nervous. I'll probably end up having to go potty 5 times before I get into the room to talk to the judge lol
Wish me luck, say a prayer and I'll post tomorrow nite how things went.
Thank you all for your words of advice and encouragement, it has helped me a lot.
redrose,How long did you take the Imuran before you started to feel better? Are you able to take that while you're pregnant?
Post Edited (Gidget^) : 3/22/2008 11:07:37 AM (GMT-6)