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PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2563
   Posted 3/20/2008 9:37 AM (GMT -6)   
I've been looking for a special type of lamp to use when I knit and so far they all use flourescent lights which I know are harmful to lupus patients. Energizer, however, has just unveiled a similar design that uses LED lights. Have any of your heard of any negative effects LED lights might have on lupus patients?
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 3/20/2008 4:58 PM (GMT -6)   
I have not heard about this but interested in knowing about it.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/20/2008 5:17 PM (GMT -6)   
Hi Pat,
   It seems like Lynnwood talked about this type of light in a old post. I can't remember the tread name, but when she see's this she will fill you in, if it was her?? She will let me know if it wasn't her as well....lol. Alot of brain fog going on here lately!
                                                     Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 3/20/2008 5:19 PM (GMT -6)   
Patty . . . Ginny was talking about the LED lights. If my memory serves . . . she learned that the LED was a good choice for us, but very expensive at this point.

I use an LED head lamp . . . which is a tiny light powered by 2 AA batteries. The batteries have lasted a couple of years. The little light can be positioned on my forehead or wrist. It came with an elastic strap that reals in and out of the light to make it comfortably tight. I wear it on my wrist when I walk my dogs in the dark. The grands wear it at our campfires. It was a gift to me for backpacking *sigh* but I haven't been backpacking since I received it. It does come in handy.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 3/20/2008 5:23 PM (GMT -6)   
Hi Patty, I don't know a thing about the lights. I just wanted to say hi! I hope you are feeling bit better and you can knit something for me anytime you want to! Maybe a nose warmer?

Alwaysrosie, I'm sorry but I just invisioned you with a light on your head and it made me chuckle. I do hope you get to wear it hiking sometime though
love ya guys
carol
God Bless
Lupus like symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4.,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5758
   Posted 3/20/2008 8:21 PM (GMT -6)   
I tried to find the thread where I'd posted all the light information & we'd all discussed it, but....no such luck. I'm afraid I really don't remember the research I did and that thread was the only place I posted it.

I'm fairly certain that LED's shouldn't be a problem, but they are still fairly costly.

If you had a friend with one it'd be great if you tested it out for us all! :-) Just kidding...

Cheers,

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions



PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2563
   Posted 3/20/2008 11:21 PM (GMT -6)   
Cute Lynnwood. Sure, I'll be your guinea pig.

Carol, I'm feeling better. Actually walked today for quite a while and am wrung out tonight but happy I got myself off the sofa. My hubby puts an LED light on his forhead to use to read in bed at night. I used to when I could still read but my mind won't concentrate that long anymore. I don't know the cost of the one I want but will research it. When knitting with dark yarn I can't see very well unless there is a bright light shining on the project. And since I knit so much, it might be worth the money if it's not too exhorbitant.

Hope all of you are well.

Hugs to all,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 524
   Posted 10/26/2012 6:06 PM (GMT -6)   
Hi Patty. I was intrigued by your post about the LED lights because I use a flourescent light when I cross stitch and it always makes me feel uncomfortable. Now I know why.

Anyway, I did a search for LED type floor lamps and found one at IKEA for $29.99. It says it is for reading but it looks like a great lamp for crafting. You can only buy it in the stores so if you don't have and Ikea near you, I don't know where else you can get one.

Mary Ann :-)

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2563
   Posted 12/21/2012 5:11 PM (GMT -6)   
Great to know, Mary Ann!

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1224
   Posted 12/21/2012 6:28 PM (GMT -6)   

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2563
   Posted 12/23/2012 11:24 AM (GMT -6)   
Thanks Bill. I just purchased (although it felt like I was investing in) LED bulbs for some of my canned lights. The article you suggested talks about the shield or coating that protects from UV radiation so it's my hope that these bulbs will prove to be a good choice. The energy savings is another benefit. If I don't have a reaction to the bulbs, I'll slowly replace all of my bulbs with them.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1224
   Posted 12/23/2012 1:00 PM (GMT -6)   
I am about to do the same thing for 2 canned lights. Tried incandescent and the cans are hotter than I would like even though using wattage lower than rated. Tried halogen bulbs which use less wattage than incandescent but are hotter...same problem. I think I will put 2 LED bulbs in them...expensive but they will probably outlast me.

My lupus does not include sun sensitivity so I am lucky. Many of my friends do have it with either lupus or dermatomyositis. If I had it life would not be good....no golf, skiing, hiking.....

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2563
   Posted 12/23/2012 1:40 PM (GMT -6)   
I agree about the lifetime of the LED's and and while I'm not as sensitive to the sun as many lupus patients, I stay out of the bright sun and don't use fluorescents. Anything to increase my odds of feeling well. I'll probably buy a couple of bulbs every couple of months for my canned lights. By the way, I also bought two bright LED's for canned lights and do not like them! Wish I had tried only one before opening the second package. The soft lights are great.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin 1200mg, synthroid, spironolactone, actonel, niaspan, simcor, lunesta, cymbalta 90mg, norco 10, vitamin D, Calcium, Multi Vit. Fish Oil, low strength aspirin

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12406
   Posted 12/23/2012 2:05 PM (GMT -6)   
I'm tempted to try LED lights. Can you put them in regular light sockets or do you need to adapt them?
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1224
   Posted 12/23/2012 2:09 PM (GMT -6)   
LED lights can be used in existing fixtures...just have to ge the appropriate wattage and base. Ask at the hardware or home center and they can help you get the right one.

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12406
   Posted 12/23/2012 2:10 PM (GMT -6)   
Thanks.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

pbjsammich
Regular Member


Date Joined Jun 2012
Total Posts : 62
   Posted 12/23/2012 5:47 PM (GMT -6)   
One thing I noticed at my former rheumos office, the waiting room had soft lighting and I loved waiting in there. I could've hung out in there all day watching tv(provided I had control of the remote). Since being on this site, I've learned I am very sensitive to lights. Now that my lupus/ra has advanced and the meds I am on, I am in danger of becoming a mole. What I find funny is, the waiting room had low lighting and made everyone feel good, but his treatment rooms had the flourescent lighting which absolutely hurt me and caused a massive headache for hours after the appt.
I hope you find the lights you are looking for!
 
Happy Christmas to all!!!!  smilewinkgrin
pbjsammich

RA SLE Acid Reflux/GERD Costochondritis PTSD

Ain't Life fun? :)

Effany
New Member


Date Joined Jan 2013
Total Posts : 2
   Posted 1/5/2013 10:38 AM (GMT -6)   
 
 I have not yet been "officially" diagnosed with Lupus/RA - although the tests seem to be pointing in that direction. 
 
I don't use flourescent lights when I work, avoid them at all costs - ever since I got severe headaches in 1992 while in college.  I usually bring in an incondescent light or sit near a window to offset the flourescent.  As for LED lights I will give this a try. 
 
 

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12406
   Posted 1/5/2013 11:41 PM (GMT -6)   
I found something new at Walmart!
They are LED Light Ropes!
They can be connected in strings of 5 together they have two sizes: 46 feet and 16 feet in white or blue.
They can be used inside the house to soft light a room. Just place them along the top corners of the room or in a design on the wall.
You'll have to buy special wall hooks to hang them inside though, the hooks in the package are designed for hanging outside.
I'm putting them up on the walls in my bedroom because that's the room I spend most of my time in.
They are a bit expensive...
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2563
   Posted 1/6/2013 12:49 PM (GMT -6)   
Couchtater, I've always said, Whatever works. Glad you found something that helps.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin 1200mg, synthroid, spironolactone, actonel, niaspan, simcor, lunesta, cymbalta 90mg, norco 10, vitamin D, Calcium, Multi Vit. Fish Oil, low strength aspirin
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