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MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/20/2008 3:31 PM (GMT -7)   
I was wondering if any of you are members of the Lupus Foundation of America?  or a local support group?    I am in the process of starting a local chapter.  I am really wanting to help other people who are dealing with this disease!  What do you guys think?   I know I was hesistant to even join this forum for a long time I just lurked because I am after all the queen of denial and didn't want to "labled" a lupie!  Now I realize how much we all need to support one another.  Thanx for in put!  Judy
                                                                                                                                       

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/20/2008 3:37 PM (GMT -7)   

Hi Judy,

   I'm a member of the LFA. I get lots of newsletters from them and updates. I started a local support group a few years ago but, it didn't go very far at the time. There wasn't much interest then and not alot of people wanting to get out around here. This is a very small town. It would probably do alot better now if someone started one here.

   I think its great that you are wanting to help others while getting the help you need as well. I hope it goes well for you and I wish you the best with this. Please keep us updated and take care. I will be sending positive thoughts and prayers your way.

                                                                           Babs


 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 3/20/2008 4:41 PM (GMT -7)   
Judy: That's awsome if you can do that. I went to the lupus walk event, I didn't walk, it was just nice to meet other people who have lupus. I also am a member. Our surpport group is far for me if they had one closer I think i would go. GOOD LUCK Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


Gidget^
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 3/20/2008 5:28 PM (GMT -7)   
Hi MJLD,
I am also a member of the LFA.  Originally I joined it because my sister was diagnosed with Lupus, then over the years I developed symptoms and was eventually diagnosed with Lupus myself.  It's a great organization and the people are always willing to help.  I think it's wonderful that you want to start one in your area.  I wish I had one closer than 90 minutes away.  Good luck!!
Gidget^
 
SLE 9/07, Meniere's Disease 2/08, FMS '90's, Spinal Stenosis, Osteoarthritis, Sinus Tach, PVC's, Kidney Stones, RLS, Parotid Neurofibroma 8/04, Cervical Cancer 9/06
Plaquenil, Toprol XL, Prozac, Zyrtec-D, Zocor, Vitamins B6 & B12, Pepcid, Folic Acid, Loratab ,Percoset, Toradol
 
There is no psychiatrist in the world like a puppy licking your face.
 
 


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 3/20/2008 5:34 PM (GMT -7)   
Hi Judy, I am a member of my local chapter here in Georgia. There are several support groups in the metro area, the closest to me is about 30+ minutes away. They meet every 2nd sunday, I hope to attend one soon.

I think it's great that you want to start a support group and that you will be very good at it! I pray it goes well for you. Keep us posted
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/20/2008 5:58 PM (GMT -7)   
Thanks so much for your input and support everyone. The closest chapter to me is in Hot Springs Arkansas! That's about an 8 hour drive. Since hurricane Katrina there is no long a chapter for the whole Gulfsouth area (coastal Mississippi and Louisiana). So, i'm hoping we can get it going! Love and prayers to all, Judy
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