I have been battling with symptoms for almost two years now, but wasn't
officially diagnosed with Lupus until about 5 months ago. Along with Lupus
I am also experiencing some mild symptoms of RA.
Although I have read lots of books and looked at a lot of stuff online, I just
don't feel as if I have a handle on Lupus. I get frustrated because prior to Oct
2007, I never had any problems with my health then literally, one day it all
hit me.. pain in joints, exhaustion, fever.. you name it. The doctors thought it
was Lyme disease at one point.
Now that the diagnosis has been made, and I am on all the normal meds
plus some ones to counteract the effects of others, I feel as if I am always
"unwell" and yet none of my friends or co-workers truly understand how it
I have been reading the posts here for awhile but decided that it would be
nice to converse with people that understand how I feel. I am just now going
into a flare too so I can barely hold my head up as I type this. UGH!
A bit about me.. I work full time, have two kids under the age of 10, who are
very active with acitivities and the like. I have a husband who is just now
beginning to see the effects of everything on me (thank gawd). I am also very
active with PTO, community theatre, etc. I don't know how it do it all some
I know there are lots of you that feel the same way. Anyway.. just wanted
to say "Hi". I am almost at the end of my Pred taper..down to 2mgs and looking
forward to when I am completely off of it. My doc told me to lose weight and
exercise more but I have no energy to do it. I guess I need some support from
others that have been there.