Post Edited By Moderator (Lynnwood) : 3/28/2008 4:58:12 PM (GMT-6)
I have Lupus ... Lupus doesn't have me.
Rx: Pletal 100mg·Norvasc 10mg·Prednisone 5mg·Plaquenil 400mg
If you do a google search for cple (chilblain pattern lupus ) or chilblain lupus there will be some info there. I was diagnosed with this after having a biopsy done. It is quite hard to treat as conventional treatments tend to not work as well with cple. Having said that, some forms of cple remain relatively minor. A lot stay as simply skin problems, some have joint probs too. It can progress to systemic lupus in some cases but once diagnosed they would do regular checks and spot any problems early. This is a pretty rare form of lupus, when i first joined i asked about it and no one had this form. Not sure if any new members have or not? If there are any specific questions about cple, symptoms,treatments etc please ask away.
Thanks lion! I know that I shouldn't be worrying so much, and just try to calm my mind until I know the biopsy results, and then try to deal with whatever it is that is going on with me. Sometimes you just need to vent and let it out! It's really hard trying to supress fear over the unknown...I'm trying to not let anyone know how scared I am having all of these things wrong with me...I'm only 31 and haven't been married a year yet...I keep thinking of what the years ahead have in store for us, and wether he'll be able to handle it or be enough support if I get any sicker...god I hate feeling sorry for myself, and i really don;t want anyone to feel sorry for me!!! I was just starting to feel like I had a handle of my UC and looking ahead to hopefully feeling well for a really long time, maybe try having a family, and now this has been thrown at me Anyway I'm ranting...just need to let this out I guess Thanks for listening, I'll google cple...thanks. If I have any questions i'll be sure to ask.