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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 3/29/2008 6:10 AM (GMT -7)   
Fly to London on the 8th April. Appooint 10th.
Havent been well at all.
Depression awful, anger and frustration and the 'ants in pants' awful too.
Tried to smash up the health centre during the week with my stick. Nearly hit the district nurse, I was that close to.
tried to break windows and everything. All I did was massive damage to finger, wrist and elbow of self for my muscles, and stuff are so poorly.
No help in the home for two weeks was too much for me.
Crying alot.
Feet, hands, knees and calves all burn horribly.l
Weakness worse and unsteadiness on legs.
Feel tired, ears and glands in neck sore.
Eyes like walnuts.
Sun hurts and heat now hurts. Driving two days ago thought I'd pass out in the heat. I dont have an air conditioned car, so prob wont be driving much in summer.
Bailed outa college.
that all good news eh!!!!/
I am so low and very nervous about london. I dont know how to 'attack' London and the hosptal, how to approach the docs etc.
My twin will be there but I am so fecking nervous.
My aggression really frightened me.
I've never ever reached that pitch of undiluted anger and wanting to do damage.
xAnn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 3/29/2008 7:12 AM (GMT -7)   
Just remember that you are so much closer to answers than you ever have been in the past.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 3/29/2008 7:36 AM (GMT -7)   
Thank you rosie!
Oh, hello to you and the bump!
What did you mean when you put on your profile definite CNS involvement? Central Nervous System? In what way has it impacted if I take it it was the Central Nervous system?
I have a defo CNS prob but am wondering if I can find a similarity in what you may have to say on this.
Anyway I am on the sofa, its beautifully sunny and I am in angony and going ape lying horizontal, you prob are too.
XX ann
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 3/29/2008 11:59 AM (GMT -7)   
For me, I have weird convulsion like episodes mood swings serious memory issues (the kind that worry my doctor when they are happening) and some nerve damage, there is also the generalized inability to feel when water is so hot it turns my skin bright red (to me it feels just warm). I have found Imuran sends the worst of the symptoms running for cover, but the nerve damage and the thing with feeling heat never go away.

I am so sick of bed I could scream.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 3/29/2008 5:43 PM (GMT -7)   
(((( Ann ))))) sounds like you've been through a lot, I hope your appt goes well, let us know.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)

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