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Regular Member

Date Joined Sep 2007
Total Posts : 36
   Posted 3/30/2008 1:22 AM (GMT -6)   
I know I've been MIA the last month or two...classes keep me busy.
I'm wondering about the butterfly rash. I've never before had it until now (I think).  I'm not sure if that's what I have.  It feels like my face is burning, like suntanned burned.  Is this what it feels like for you?
Last month at school was pretty good.  Bronchitis left completely and my sinus infection cleared up.  Then I went home to visit my family and everything started going downhill again.  My father who has SLE amongst other things has not been seeing a rheumatologist.  He had one bad experience and refused to go back.  I couldn't believe how much his health has declined since I saw him last.  He is so depressed and he hasn't had anything done about his enlarged heart.  I'm worried sick about him, especially since he is going to have oral surgery in a couple of weeks, and at first refused to tell the dentist that he had lupus at all. My mother and I were so angry at him for just dismissing it. Once we told the dentist, he said he would not take my father because he knew of lupus patients who had died under the same surgery. 
I'm sorry for the rant, I'm just worried sick about my father, and my mothers handling of everything.

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 3/30/2008 1:50 AM (GMT -6)   
I am so sorry about the worry you are feeling. Unfortunately your mother cannot make your father do anything he does not want to, neither can you. He has to care enough about himself to see a doctor and get help.

You need to take care of yourself, otherwise you will be of no use when he decides to get help or if he gets bad enough that he needs more care than your mother can give. The malar rash (butterfly) is different for everyone. For me I have several different versions depending on how bad it is. It can be a pinkness of my checks and the bridge of my nose, bright reddness, and even bright red with even redder dots that look like histamine under the skin- I know this because I get a histamine rash every so often during allergy season.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec

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