Update on hormones and symptoms

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hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 3/31/2008 7:13 AM (GMT -7)   
I'm happy to report after being on my testosterone cream for a week, I'm noticing a nice change in my level of fatigue.  For those of you who didn't know, I recently found out that my testosterone level was pretty much non existant and since testosterone regulates most of your other hormones, they were all off too.
 
I'm still fatigued, of course, but nothing like before and there are times during the day when I actually have energy and feel pretty good.  It's a very welcome change.  I really hope this will help me finally get my prednisone down to a dose of around 5mg.  I've tapered down to 7.5mg and will stay there through April and then slowly start to taper some more.
 
I want to encourage all of you to get your hormone levels tested if you haven't had that done.  I had no idea until I did some reading that lupus can deplete your hormone levels (I'm not sure why though).
 
On a quick off topic note, I'm glad I have more energy now because my little 6yr old daughter has a big dance competition this weekend.  It's her first competition and she is so excited, but there is so much to do to get ready and a lot that goes into it.  Then shortly after competition she gets ready for her spring recital.  Her dance teacher has her doing 5 dances, so we will be really busy with dress rehearsals, etc.
 
 
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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Trying2BFree
Regular Member


Date Joined Oct 2005
Total Posts : 251
   Posted 3/31/2008 7:28 AM (GMT -7)   

Great news!  I hope it continues to help you.

Good luck to your daughter!


Jeannie 
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 15mg (RA); Metanx 5mg (RA); Orencia 750mgs (RA); Lunesta 2mg (as needed); Prevacid


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 3/31/2008 9:34 AM (GMT -7)   
Congrats on the good news and good luck for your daughter.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/31/2008 9:51 AM (GMT -7)   
Hi Hippi,
   I'm so glad to hear your feeling better. It's amazing what our hormones will do to us. Thank you for the update and reminder for everyone to get their hormones checked. Good luck with all the upcoming excitment with your daughter. I know you are very proud of her and Josh. How is Josh doing lately? I hope he is doing better as well. Keep us updated and take care. You and your family are in my thoughts and prayers.
                                                        Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 3/31/2008 6:38 PM (GMT -7)   
Hi Hippi, I am so happy to hear that your fatigue is getting better, it has reminded me to ask my doctors to check my hormones (I forgot on my last appt tongue ). I hope your Pred taper goes well too, I know it's hard coming off it. Is your doctor trying to get you completely off it and replace with another med?

The increase in energy came at the right time, have a great time watching your little girl dance her heart out! You and your family are in my thoughts and prayers! Hugs and luv
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/1/2008 6:35 AM (GMT -7)   
Thanks everyone. Stacie, I think right now the goal for my prednisone is to get down to a low maintanence dose of 5mg or less. I can't believe how much energy I had yesterday, so of course I did a little too much. My stomach ended up giving me lots of preoblems last night and it's still off this morning. I ended up being up a lot during the night, so I'm dragging today.

We have snow this morning - Uhg! I woke up with my joints on fire and once I saw the snow, I understood why I was hurting. I'm so ready for consistently warm weather - not hot, just warm :)
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/1/2008 8:04 AM (GMT -7)   
FYI Hippi, testosterone can held with the old sex drive, which can fade away with illness, fatigue, weight gain, etc. etc. Hope you're doing ok.

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 4/1/2008 11:14 AM (GMT -7)   

Hippi:  Which doctor did the hormone testing for you?  I ask because I have been referred to a new endocrinologist next Monday.  My neuro wants to have a lot of the "rare" endocrine type bloodwork run on me since the myelin sheaths in my spine were attacked by the lupus on Easter. I had a full cat scan and mri, and I have no plaques, so he wants to rule out anything endocrine before we proceed with a possible spinal tap.  He is trying to work with my rheumy, but you know how that is... trying to get those types of doctors to communicate.  He has mentioned CNS Lupus a couple of times.  I really hope thats not the case.  sad

I swear, I truly wish Dr. House was real.



 
Victoria
 
Mother of four, full time Systems Analyst
 
Crohns, Lupus (SLE) Jan 08, Pancreatitis Dec. 2005
 
Meds:  Medrol injections, Cellcept, Vicodin, Benadryl, Zyrtec


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/1/2008 2:30 PM (GMT -7)   
Victoria, my new pcp is the one who tested my hormone levels during my physical. I would guess that any doc could do it though, so you could ask the endochronologist. I'm sorry you are going through so much and I hope the endochronologist can help. Let us know what you find out.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 4/2/2008 5:17 AM (GMT -7)   
Great news hippie!! I was looking forward to your updates and hope you'll keep posting about your progress.

Make sure you increase your activity SLOWLY or you'll put yourself in another flare. Don't let life's urgencies suck you down again.

Enjoy the dance and your little girl!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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