Trying to work....so much Pain!!

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sunshinesyl
Regular Member


Date Joined Apr 2006
Total Posts : 169
   Posted 4/3/2008 9:04 PM (GMT -7)   
Hi,
As some of you may know I'm currently waitng for an ALJ hearing date RE; SSD. My State disability ended in 11/07, my DR had me off work till 1/2008, but our family needed my income too, so I'm working PT making less then $700 a mo. I can't beleive that even working part-time, I struggle so much w/body pain and fatigue, other bad problems too.  I had to tell my boss last month of my illness and that I may have to request certain days as my days off, she was ok w/it.  Some days my illness does affect my performance and I notice her just  staring at me, one time I asked to leave early, I had told her on the phone the reason, when I whent into her office, she asked me again why I needed to leave, I had to explain it again in frnt of another person who had no knowledge of my illness.  I felt terrible.
Today, a co-worker told me that last week another co-worker started talking about me, saying 'she didn't want to climb the ladder when I told her to, she don't look sick either and my mom had it too, and she was fine', my co-worker defended me by telling her off...saying..I know she is sick and I can see her pain in her eyes, maybe she hurt that day u asked her' she told her more things too, the co-worker then walked off.
I'm so glad my co-worker stood up for me, I had no idea this had happened. I thanked her.
Isn't it terrible how people will talk bad about you and the illness that they don't see every day. 
 
Do y'all think me working and doing an old past job and working PT, will hurt my case when I go before the judge? a this is what Denial letter said I could do frm prev. experience.
 
Thanks

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 4/3/2008 11:34 PM (GMT -7)   
Yes working part time will likely hurt you. I hate to say it but with SSD/SSI you have to be completely unable to work. Now if you were to quit and say you tried to go back to work but found you were unable to handle even part time work it might not be so bad.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


mygrljes
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 4/4/2008 8:16 AM (GMT -7)   

Hi sunshine,

I tried working part time a couple years after my SSD started. I managed to last nine months. When my review came up, they asked me about my working, and why I wasn't anymore. I told them I gave working a try and my body didn't like it. I told them it set me back healthwise, and my doctor wrote a letter confirming it. They continued my disability payments.

If you continue to work, it probably would hurt your chances. My advice, if it's creating that much havic with your body, then you should quit and have your rheumy make a note of it. It's not worth the extra income if your killing yourself to get it.


dix: lupus sle Jan. '99, hypo-thyroid Mar. '06
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day
wife, mother of three

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