I haven't posted on here in awhile as my rheumy first said I had lupus then said I didn't, that I have Fibromyalgia. He is now out on what was supposed to be a 3 month medical leave, which has been extended. I spoke with the nurse para legal at my office who reviewed my test results and she still thinks I have lupus. I am just having a bad day and now I have had a strange rash on the palms of my hands that itch like crazy for about 2 weeks. The crazy symptoms!!!
Because my doctor is still out on medical leave (he is not an older man) and because of not being able to see another doctor at this clinic, I am changing rheumies. One of the ladies who always sits in back of me in church recommended her rheumy so I have made an appointment with him. We will see.
I have read a number of books on lupus and fibro and isn't it strange the number of conflicting opinions we get.
Mariepoms, I understand and feel your frustration. I think many people here have lived through it. You are not well to begin with, and then you have all this to deal with, it's just overwhelming. Hugs to you honey and know you are not alone.
In answer to your concern about white count being low....as others have explained this is part of what we have to learn about.In my case unfortunately in 2005 underwent lumpectomy---radiation ...sailed thru this and not until last summer did I get a call re my blood work.wbc was 2100 and platelets 70.000( normal 150,00--400,000) Short story many and I mean many DRs..tests scans etc saw a rheumo and had been very ill for 5 mths and he confirmed lupus ...I had asked my gp to give me the results for 3 yrs and found out there were many irregularities....B 12 was one of them so getting my head balanced has become a full time job
I understand the frustration especially since I would have done a lot of things differently had someone noticed the abnormal blood. I am getting past the anger but I go everywhere ready with my questions and the answers have to make sense ---or here comes another question---Recently started on Prednisone and it is only a short course but to be able to do a few things is a blessing......A note about the platelets----my friends who ke pt me a bit sane have a joke----watch she doesn't touch the sharp objects---without them I am not sure what I would have done. Keep positive people around you and remember you are in control not this pesky lupus...Keeping you in my thoughts and prayers
Thank you for the replies.I truly appreciate the feedback.I had some other bloods drawn last week so lets see what that shows.I know she drew another ANA and C-complement,C 3 and 4 and some others...
I have a question for you Ginny...what symptoms,if any,did you have with the Libman Sach's and vasculitus?? How is it diagnosed??