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Mariepoms
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 4/8/2008 10:50 AM (GMT -7)   
Hi All,
 
I want to know the type of pain that is typically ''Lupus pain''.How do i differenciate typical aches and pains from Lupus pain?? I know that sounds silly but i just dont know anymore.I'm an active person and if i do too much in a day my knees KILL ME  at the end of the day.Even my ankles will hurt.Is that related to Lupus or am i needing some better sneakers with more shock absorbers?? My pain is pain with movement only though.It's not predictable and can be on the side of my knee one day and the pelvis,lower back and or ankle on another day.It's typically pain with movement though so if i just rest and watch TV;i dont feel any pain.I then take some advil and the pain subsides.
 
Is Lupus pain felt even at rest??
 
Thanks for reading my post.
 
Fran
 
 

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 4/8/2008 1:22 PM (GMT -7)   
Hi Fran.  I have been having horrible pain lately.  I have lupus and fibromyalgia and my rheumy thinks this is mostly fibro, so he doesn't want to increase my prednisone (wisely). I haven't been able to get out of bed a few days of the last two weeks.  I frequently feel some relief if I don't move. Yesterday I woke from a nap, opened my eyes and said "don't move", but then I had to pee *&$# Most days every inch of my body hurts and I also get arthritic pains that travel, like you describe. Flexeril helps, but the pain is always there, every day. I'm waiting for some narcotic patches via mail that my rheumy prescribed. I also take celebrex and arthritis tylenol twice daily. Lupus sucks.  Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: CellCept plaquenil methotrexate prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol multi vitamin C calcium/D flaxseed oil  PRN: ambien neurontin promethazine xanax
             Better living through chemistry :D    Donna
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 4/8/2008 3:26 PM (GMT -7)   
Good shoes is always a must, so make sure yours are as good as you can possibly afford. I never know which of my conditions is causing my pain half the time. Look in my signature and you will see what I mean. I have been in pain for so many years that I really don't recall what it felt like not to feel pain. Thus I have learned that if I am not active I can have milder pain days and if I am active the pain skyrockets. Then again there are days I do nothing and hurt so bad I want to curl into a ball and die. It is really unpredictable. It might be best if someone who has only lupus answers your question but I am not sure how many on this board have ONLY lupus.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/8/2008 8:49 PM (GMT -7)   
Hi Fran,
   It can be hard to tell which disease is causing which symptom sometimes since some of them mimic each other. For me, the fibro is always muscle pain. My knees stay swollen all the time from RA and I have deep joint pain with heat in other areas as well.
   I think the traveling pain from one spot to another is the lupus pain, for me anyway. It may just hurt for a few minutes or hours and go away. Now thats just my opinion, the others may disagree.
   I hope this gets better for you soon. Take care and keep us updated. You will be in my thoughts and prayers.
                                                              Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 4/13/2008 12:43 PM (GMT -7)   
Hi-my lupus pain mostly feels like the flu-aching body all over.  Sometimes I'm just achey from the hips down.  Mostly near the joints.  Since I have been getting treated with prednisone and methotrexate, my knees do not hurt nearly as much as they used to.  They used to feel like someone hit me with a tie rod across each knee-I couldn't walk comfortably and it would make me cry when I had to get up off a chair.  I used to run alot and now I occasionally run a mile without too much pain.  A good pair of shoes helps me-but I also work a job full-time at a bank and it can be hard to find comfy shoes for a job like that.  Try not to let yourself become inactive, but maybe even cutting your workout time down a little and taking it easy on your knees can help with the pain.  I used to ice my knees every night-and when I mentioned this to my dr. he told me this wasn't normal and suggested an anti-inflammatory to help.  I would suggest talking to your doctor if you are in too much pain, thats what they are there for.  Good luck to you:)
~Firebabe~
 
"Challenges make you discover things about yourself you never really knew."
 
SLE and Class II Lupus Nephritis


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 4/14/2008 7:19 AM (GMT -7)   
I just thought I'd tell everyone my pain update. My rheumy called in a script for darvocet to help me until the Rx patches arrive.  Friday was a good day and I took time off work to run erands with my B/F.  Saturday I slept many hours 'cause of methotrexate/pain and yesterday I felt well enough to do some heavy housework. Woo Hoo! Of course I did too much, but it felt so good to have my pain under control! Today my pain isn't too bad. Over all my pain is improving. Oh, and throughout this flare I continue to do my Ab Lounger, 30 sit-ups most days. If I can get out of bed, I can do my sit-ups. I started using the Ab Lounger 6 months ago. I've lost 8 pounds and there is muscle under my fat tongue BTW, I work full-time, but have a tele-work set up and only go into work 2-4 days a month. So, I'd better get back to work!  Love to All, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: CellCept plaquenil methotrexate prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol multi vitamin C calcium/D flaxseed oil  PRN: ambien neurontin promethazine xanax
             Better living through chemistry :D    Donna
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/14/2008 11:00 AM (GMT -7)   
Hi Donna,
   Tks for the update. I'm glad to hear your pain is improving..... yeah . Congrats on the wt loss and doing the Ab lounger on a regular basis...Thats awsome!  I hope you continue to improve with each passing day. Take care and keep us updated. You are in my thoughts and prayers.
                                                          Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 4/15/2008 7:15 AM (GMT -7)   
Hi Babs. Thanks for the reply and well wishes! I hope you're doing okay too.  Love, Donna

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: CellCept plaquenil methotrexate prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol multi vitamin C calcium/D flaxseed oil  PRN: ambien neurontin promethazine xanax
             Better living through chemistry :D    Donna
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/15/2008 7:23 AM (GMT -7)   
Fran, I'm happy to hear that you're getting some relief. When I read Babs' response I completely agreed with what she said. I don't know for sure if certain pains are from lupus or fibro either, but like Babs, I believe the muscle pain is from fibro and the joint pain is caused by lupus. Whenever I have too much pain (of any kind) and I increase my prednisone, the pain diminishes greatly or goes away. That points to lupus, but then, lupus doesn't cause muscle pain that I know of. But isn't it lupus that causes flu-like aches and pains and low grade fevers? It's very confusing, isn't it.
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin

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