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New Member

Date Joined Feb 2008
Total Posts : 9
   Posted 4/9/2008 8:23 PM (GMT -6)   
Does anyone else tingle with their lupus?  If so where do you tingle, how long does it last, and what does it feel like? eyes

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 4/9/2008 8:51 PM (GMT -6)   
   Hopefully, someone will come along soon that has only been dx'd with lupus to help you out. I have seen alot of posts about tingling here. I had tingling in my right hand this morning for about an hour. It felt like my hand was going to sleep or numb. I have multiple diseases that can cause this though. Hang in there!
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Forum Moderator

Date Joined May 2005
Total Posts : 6923
   Posted 4/9/2008 10:15 PM (GMT -6)   
There seems to often be some minor neuropathy associated with lupus - that's where the nerves are involved and cause some tingling sensations - usually but not always in hands & feet. Some people have this much more than others.

Mine has been fairly minor, and is definitely related to flares and/or times of greater stress when lupus becomes active.

Hope that helps a bit,

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Ann Ireland
Veteran Member

Date Joined Apr 2006
Total Posts : 511
   Posted 4/10/2008 11:34 PM (GMT -6)   
Tingling!! when Very tired, i get tingling in my lips and inside my lower lip. I also now get tingling in my knees most days. My feet rather feel very very hot and mad sensitive to anything touching em as do hands but they, I dont think tingle as such.
But I donno what causes it all.
Tingling in lips and knees now very bad I have to say.
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 4/11/2008 2:05 AM (GMT -6)   
At first the problem in my hip was kind of a tingling. Now it is pain so bad only a nerve block helps.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 4/11/2008 3:52 PM (GMT -6)   
I get alot of tingling in my hands. It feel like my circulation gets cut off. It comes and goes. It usually last a few days to a week. Off and on. Than I don't notice it again until the next round. Which could come at anytime for no apperent reason. From several days to several weeks in between.
Hopfully the doctors can give you somthing to help you out with this.
God Bless
Lupus like symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4.,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!

Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 4/16/2008 7:50 AM (GMT -6)   


The first sign of my CNS lupus was numbness and tingling in my hands and feet. A vague sense like you get when you sleep on your hand wrong from impaired circulation. And my feet are often burning and swollen up my ankles which is thought to be the vasculitis part of the wide and varied lupus puzzle. They look scalded and pale often at the same time. And neuro flushes of such cold chill in my bones followed by sweats of such unpleasant intensity, I am still bitter that my PCP and GYN were certain I had... 1. asthma 2. depression 3. menopause at age 43 4. nothing wrong.... because other than Hashimoto's and a pos. ANA my blood work was all normal. I was falling 3-5 times a week, yes, at work, in the back yard, and finally I went charging into the dr. to say no I am not depressed I am p#*#*&(##)

p.s. neurontin helps immensely, too and of course prednisone is my miracle cure. After trying the month long tapers that weren't pleasant, (40mg/30/20/10) I am now living on 5mg of prednisone every day and thanking God for it.

God knows, even if I don't....
CNS Lupus 2005, APS
Meds: Plaquenil, Neurontin, Thyroid, Voltaren, Aspirin, Atenolol and Norvasc, Prednisone prn.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 4/16/2008 8:21 AM (GMT -6)   
I have both tingling and burning which turned out to be neuropathy. I take a low dose of neurontin for it and it does help. I would talk to your doc so he/she can help you figure out what might be causing your tingling.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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