Rituxan anybody?

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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 4/12/2008 11:28 AM (GMT -7)   
My rheumie is looking at putting me on rituxan when I get back from Mayo if I feel lousy and don't have relief. He said it can help with Sjogrens. I'm wondering if anyone has taken it and how well it worked for them. If it will undo what interferon alpha did to me, I'd be doing great.  Also, the pred tapers mess with my existing endo nightmare, though he would still give me one if I asked.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


Clayyo
New Member


Date Joined Mar 2008
Total Posts : 7
   Posted 4/13/2008 7:18 PM (GMT -7)   
Amanda and I have been looking at this drug. Two people died from it? That is about all I got.
A proud husband of a beautiful woman with lupus!


Heidi55529
Regular Member


Date Joined Mar 2006
Total Posts : 147
   Posted 4/13/2008 8:24 PM (GMT -7)   
I'm on Rituxan, I get it twice every 5-6 months for the past two years. I know I responded really well to it the first couple times and it's helped me with tapering prednisone. Before that, I've been trying and just bouncing back and forth between flares trying to taper and it just wasn't working out which why my rheumy suggested it. I'm really glad she did though.

It takes about 4-5 hours each time, and the first dose I usually feel okay. But the second one really drains me. But the feeling wears off in a few days and I feel okay again. I actually just had it last week.

Let me know if you have any questions, I'm happy to share my experiences.
I was diagnosed with Lupus with Antiphospholipid syndrome in Nov 05.
Current list of medications includes:
Cellcept 250mg/ capsules twice a day, Prilosec 20mg/1 capsule once a day, Plaquenil 200mg/one tablet twice a day, Metoprolol 25mg/half tablet twice a day, Prednisone 6mg/one tablet once a day, Coumadin as directed, Tetracycline 250mg/ two capsules twice a day, Midrin as needed for migraines, Magneseium supplement daily
-Avita cream, Clindamycin lotion, triamcinolone ointment daily to control skin rashes.
-Rituxan infusions twice every six months in March and September


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 4/13/2008 9:55 PM (GMT -7)   
I have a bad liver so I figured my rheumy might be looking into something more like cellcept, also for my bladder issues. But that cleared up, and maybe this drug targets more my specific type of autoimmune problem. I tend to have bad reactions to the regular dose of things, but he knows this so he will hopefully be careful. Maybe he feels this will nudge my immune system back in the right direction, I don't know, but meeting with docs at Mayo will give us a better picture of my liver problems, how it is working and not working and perhaps whether this immune problem is liver related or just something I have on it's own. He wanted to put me on methotrexate but because of my liver I can't go on it. Hopefully this will be better. What kind of side effects do you get when you get bad ones? Can it cause severe depression or psychosis like interferon can? How long can it last? Can you undo it if you have a problem?
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn

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