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jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 4/14/2008 7:07 PM (GMT -7)   
The results are in.... everything looks ok and my heart is not enlarged (yayyy) I've got a few things going on with my mitral valve but does not specifically meet the criteria for mitral valve prolapse. But it was advised to consider SBE prophylaxis prior to invasive and dental procedures.

My pulse is still high and I can't take meds to slow it down because my BP is too low. She is going to keep an eye on it and see if it gets better after my thyroid gets straightened out, it's running kinda low right now, not even .5 She thinks the chest pains were joint pain. After going back on full doses of Plaq I haven't had anymore chest pains, so wondering if it was joint and/or muscle pain.

Thank you to everyone that helped me through this, this disease can really be scary at times. I'm glad I can come here and there's always someone that understands. :-)
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/14/2008 9:49 PM (GMT -7)   
Stacie,
       (((Hugs)))) I agree this disease can scare the dickens out of us sometimes. Bless your heart!
   I'm glad your Echo came back good. Hopefully the chest pain was either muscle or joint pain since its better with the plaq increase....((Hugs)). Its so frustrating not knowing what's going on!
   I hope they get your thyroid straightened out soon and you feeling better. Hang in there and keep us updated. You are in my thoughts and prayers.
                                                Love ya, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 4/15/2008 5:56 AM (GMT -7)   
Stacie, I'm glad the echo looked good overall. Now your doc can hopefully get the rest straightened out. Hopefully getting things adjusted for your thyroid will correct some of the other problems. ((((hugs))))

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 4/15/2008 7:46 AM (GMT -7)   
HI Stacie,
 
I'm so glad you found out what was going on.  I had the feeling it sounded a lot like my mitral valve issues. Are you scheduled for another echo in 6 months?  Hopefully once your thyroid is under control, things will really improve.  Amazing what things affect the heart isn't it!
 
Take it easy girl!!  Glad you filled us in!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/15/2008 11:42 AM (GMT -7)   
Stacie, has your doctor looked into costocondritis? I have it although it has been quiet for several months. The pain was awful when it was accute. It's inflammation of the cartliage that joins the ribs to the breastbone.

www.mayoclinic.com/health/costochondritis/DS00626
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 4/15/2008 12:43 PM (GMT -7)   
Stacie....

I SO glad things turned out ok on the echo. I know you are so relieved! Hopefully the thyroid meds will get adjusted and you will start feeling good again (but whats good? LOL).

Im off to my GP at 4:00 to get my Rx for Low Dose Naltrexone. Im so excited about this, thank you Ginny! Stacy, I will let you know how this works out, since we are so close in age and symptoms. Im also swtiching to a totally Vegan diet, so will keep you updated on that as well.

Blessings,
 
Victoria
 
Mother of four, full time Systems Analyst
 
Crohns, Lupus (SLE) Jan 08, Pancreatitis Dec. 2005
 
Meds:  Medrol injections, Cellcept, Vicodin, Benadryl, Zyrtec


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 4/15/2008 12:50 PM (GMT -7)   
YEAH!!! That's great news Stacie!! and glad the plaq is helping with the pain in your chest. My sister had arthritis in some obscure area in the chest???????? Weird isn't it???

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 4/15/2008 3:17 PM (GMT -7)   
Thank ladies, you are all so wonderful!

I am really not looking for things to improve when my thyroid gets under control as my pulse has been like this for years, actually my Endo is the one that brought it to my attention at my yearly visit with him, ummmmmm 3 or 4 years ago skull but we'll see what happens, I know the thyroid can do wacky things.

I am not scheduled for anymore test at the moment but I plan on talking to my rheumy about it to see what her thoughts are on everything. I see my PCP again at the end of August, if my pulse is still high I guess I should I ask her if she plans on monitoring it? We have to do the same thing with my kidneys, have to do a 24 hr urine test once a year..... what's one more test tongue

I do have costocondritis under my ribs and in my breastbone but this chest pain was different, it felt "deeper" if that makes sense. Whatever it was I want it to stay away!!!!

Victoria, LDN sounds very interesting, I'm going to read about this. Do let me know how you are doing on it and how the new diet helps you.

Thanks again, hugs and luv to all
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

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