In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Crohns, Diverticulosis, Sjogrens
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I also do not have a positive ANA. Pretty much same symptoms, minus the pneumonia, plus dry eyes, numbness/tingling to hands feet, mouth sores, proteinuria, etc. However, I did have to switch rhemies to get treated. The first one had a reason for every symptom except my elevated ESR/CRP. She ran tests to no end, consults, etc. Since there were no answers, she would not prescribe any treatment. I finally went to see another doc and he started me on Celebrex and Plaquenil. I still dont feel great but there is definately improvement. You need to find an MD who will atleast treat your symptoms.
Not to scare you or sound to blunt but have you been tested for HIV? Alot of your symptoms (esp 2 bouts of pneumonia) are consistent with HIV. I know it was one of the first things I was tested for. I am sure they tested you for it, but I thought it was worse mentioning. (Sorry I am a nursing student too, I look into things too much sometimes)
Anyhow, The way I look at it the only negative to not having an official diagnosis is having to explain to everyone you are not a hypochondriac. You wont run into health or life insurance issues, no job discrimination either. Hopefully you will never get to the point of needing disability and having to prove your pains, etc. I hope you can find a doctor willing to treat you. And dont let them tell you you have Fibromyagia! Patients with fibro do not have elevated inflamation labs. They should be able to relieve some of your symptoms. Start off by asking for an anti-inflammatory like Celebrex or Mobic. Good Luck!
Post Edited (Snickerdoodle) : 4/21/2008 11:26:26 PM (GMT-6)