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Regular Member

Date Joined Mar 2008
Total Posts : 60
   Posted 4/22/2008 1:30 AM (GMT -6)   
Hi, I'm fairly new here...I posted some questions a couple or so months ago but haven't posted in awhile, so you may not remember me.

I recently got an 'unofficial' dx of SLE. The rheum. doc didn't want to start me on oral steroids yet but gave me a steroid injection to see if it would help. It does seem to be helping because I have more energy and less pain. I'm just wondering if any of you have had one and how long it lasted for you before it wore off. I really hope it lasts awhile because I want to keep feeling good!

I've started Plaquenil as well but hear it takes 3-6 months before it starts working.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 4/22/2008 1:57 AM (GMT -6)   

Hey doodle bee, sure I remember you. I am thinking it's been aout three months since I had one that was close to my spine because the back pain was jst awful. Wow what difference that made. I will occasionally get a pain that makes me wonder if it's wearing off but so far so good. I have a lot of inflamation going on with me at the moment but that particular place doesn't seem to have taken on me. It tok a couple of days to get the full effect but 3 months it's a long time for me.

I hope it continues to work for you.

glad to see ya around these parts again

keep us informed hugs


God Bless
Lupus like symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4.,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 4/22/2008 5:38 PM (GMT -6)   
Plaquenil does take a while to start working and it can be kind of subtle. You won't wake up one morning feeling cured like you can on oral prednisone but at some point you will realize-in a surprised kind of way one of your everyday symptoms-like chronic fatuque or morning stiffness just isn't there anymore. I hope it works as well for you as it has for me.

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 4/22/2008 6:59 PM (GMT -6)   
Hi Doodlebee yes, I remember you, I am happy to hear you are feeling better. I had a steroid injection once (in the hip area) but I didn't notice any change in my joint pain. I hope the plaq works well for you, it does for me. When I first started it I didn't notice a huge difference in my joint pain but it did help my fatigue right away. I ended up finding out how much it does really help my joint pain when my rheumy (twice now) has attempted to take me off it. It works better than we think .... yeah

I hope you continue to feel good, keep us updated!

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

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