How are you doing on the LDN?? Are you still taking it? I started it three days ago (3mg), and for the first two days it seemed amazing, I could open my hands in the mornings without the stiffness and could bounce right out of bed. But last night I had a severe flare up of the Lupus. Now, that may have been due to something incredibly stupid I did yesterday, taking an acidophilus tablet. I never do well with those, and anything I am sensitive to will send me into a full blown flare. But I took the LDN anyway last night so that I wouldnt lose any good effects. The first day I was SO tired, but yesterday was fine. I felt great until the acidophilus.
I saw your post on the LDN forum about the fatigue and just wondered how you were now.
hi there, I don't really get here that often anymore so sorry I missed this. Yes I am still taking ldn and have been since 12/20/07. I take 4.5mg now as that is the recommended dose if you do not have MS. You have been only taking it for a couple days it needs a min of 9 months to perferably 12 months in order to determine if it is working for you or not. Ldn does cause fatigue for the first 7 days and sleepless nights in some people I napped about 4 hours a day for the first week now I am fine I sleep my reguler 7 hours a night. You have to remember ldn is supposed to give anyone symptom relief it's only to stop further progression of your disease HOWEVER there is a large group of people who have had partial to full symptom relief but most say it's taken a year or more to get to that point. I can't help you out with the acidophilous as I take 6 a day and have had no problems. Are you still taking Cellcept with it? As if that is an immunosuppresant the ldn will not work while you are taking it.