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Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 4/22/2008 7:15 AM (GMT -7)   
How are you doing on the LDN??  Are you still taking it?  I started it three days ago (3mg), and for the first two days it seemed amazing, I could open my hands in the mornings without the stiffness and could bounce right out of bed. But last night I had a severe flare up of the Lupus.  Now, that may have been due to something incredibly stupid I did yesterday, taking an acidophilus tablet.  I never do well with those, and anything I am sensitive to will send me into a full blown flare.  But I took the LDN anyway last night so that I wouldnt lose any good effects.  The first day I was SO tired, but yesterday was fine.  I felt great until the acidophilus.
 
I saw your post on the LDN forum about the fatigue and just wondered how you were now.
 
 
Blessings!!

 
Victoria
 
Mother of four, full time Systems Analyst
 
Crohns, Lupus (SLE) Jan 08, Pancreatitis Dec. 2005
 
Meds:  Medrol injections, Cellcept, Vicodin, Benadryl, Zyrtec


Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 4/23/2008 6:18 AM (GMT -7)   
Bump.... want her to see this. :)
 
Victoria
 
Mother of four, full time Systems Analyst
 
Crohns, Lupus (SLE) Jan 08, Pancreatitis Dec. 2005
 
Meds:  Medrol injections, Cellcept, Vicodin, Benadryl, Zyrtec


canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 4/23/2008 7:02 AM (GMT -7)   

hi there, I don't really get here that often anymore so sorry I missed this. Yes I am still taking ldn and have been since 12/20/07. I take 4.5mg now as that is the recommended dose if you do not have MS. You have been only taking it for a couple days it needs a min of 9 months to perferably 12 months in order to determine if it is working for you or not. Ldn does cause fatigue for the first 7 days and sleepless nights in some people I napped about 4 hours a day for the first week now I am fine I sleep my reguler 7 hours a night.  You have to remember ldn is supposed to give anyone symptom relief it's only to stop further progression of your disease HOWEVER there is a large group of people who have had partial to full symptom relief but most say it's taken a year or more to get to that point. I can't help you out with the acidophilous as I take 6 a day and have had no problems. Are you still taking Cellcept with it? As if that is an immunosuppresant the ldn will not work while you are taking it.

 

 



UCTD lupus/sjogrens all biotene products  LDN ( low dose natlrexone)  therapy which is a life saver and has me almost symptom free most days

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