anyone know anything about synovitis?

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momof2girls
Regular Member


Date Joined Jan 2008
Total Posts : 30
   Posted 4/23/2008 11:57 AM (GMT -7)   
I had surgery on my hip yesterday to fix a labral tear and remove bone fragments.  The dr found Synovitis in my hip and removed it during the surgery.  I googled it and found it's common in Rheumatoid but not Lupus.  I'm confused!!!  Anyone know anything about it?  I start PT tomorrow so I'll ask the physical therapist then.
Lupus and Sjogrens Syndrome since 1995
 


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 4/23/2008 2:45 PM (GMT -7)   
I have RA. We get synovitis often. The synovam (pardon my spelling) is a membrane that covers the bones. In RA synoval fluid gets inside the membrane and distorts the surface of the bone. Sometimes the membrane itself thickens. That fluid can be very destructive to the bone ends. They can remove part of the membrane to prevent fluid from getting trapped in their. The membrane sometimes grows back.
Hope some of this was helpful.
Sj

momof2girls
Regular Member


Date Joined Jan 2008
Total Posts : 30
   Posted 4/23/2008 3:24 PM (GMT -7)   
thank you. Do people w/Lupus get it too? The surgeon was going to talk to my RA about it, he says I might have RA as well. I really don't want another disease added to my already growing list. Have you had it? If you don't have surgery to remove it what else can you do for it? The surgeon removed mine but said I could get it again. TIA!
Lupus and Sjogrens Syndrome since 1995
 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 4/23/2008 3:49 PM (GMT -7)   
Hi:
I just wanted to say that yes it is common to have both lupus and RA. I just recently found out I have RA and needed to start taking humira to treat my RA. On my MRI it showed the my joints in my hands were becoming deformed. Sorry to be the bearer of bad news.

Good luck,

Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Chaya
Regular Member


Date Joined Mar 2007
Total Posts : 194
   Posted 4/23/2008 5:08 PM (GMT -7)   
I find it interesting Barb that they want to treat you with Humira. The anti TNF blockers a problem for any Lupus patient.

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 4/23/2008 6:22 PM (GMT -7)   
I have sinoval fluid in my knees all the time-it causes your knees to take on the charachteristic bearded look. I have not had surgery to remove the sinovum I just take NSAIDS, Plaquinel and Prednisone-oh and just started Mtx.
Sj

momof2girls
Regular Member


Date Joined Jan 2008
Total Posts : 30
   Posted 4/23/2008 6:35 PM (GMT -7)   
Thank you for the info. I knew I could count on you to lmk what it was. I was afraid of this. I already have Lupus and Sjogren's. My Lupus is very aggressive and I'm on high dose steroids and chemotherapy (cytoxan) right now. My body is exhausted and needs a break from being sick right now. Tuesday's surgery was my 4th since June. I've been hospitalized 5x's since June as well. I have two little girls that need their mom. Ugh, I am tired and don't want to deal w/this autoimmune crap anymore. thanks!
Lupus and Sjogrens Syndrome since 1995
 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 4/24/2008 4:13 AM (GMT -7)   
Hi Chaya:

According to my Rheumy the humira won't cause issues for my lupus. I truly don't think they honestly know which of this medication we take will do to our lupus. I'm beginning to think is just a big old crap shoot and they guess and what might work. I mean what Rheumy in his right mind would give a lupus patient oral cytoxan for nine months? Well mine did and even though they said problems with lymphoma and leukemia happened in a rare few patients, I ended up with the leukemia side of the house.

I've sat and thought about our dear friend Tash and her passing and I blame the doctors totally for allowing our dear friend to pass away. However, could it have been the arava she was taking that weakened her heart and caused the heart attack, you betcha ya. So, I'm stuck between a rock and a hard spot. My RA is so bad I can barely walk and use my hands. I'm already on methotrexate and it's not helping the RA so we need to add something else.

Will the humira bother my lupus I've no idea. I know it affects my blood cancer considerably and yet I need to function at some level. So I'll try the medication and see how I do. It's the only option I have. I've tried everything else, including Enbrel. Anyway, that's my take on it, I'll just wait and see what happens.

Take care,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Trying2BFree
Regular Member


Date Joined Oct 2005
Total Posts : 251
   Posted 4/25/2008 9:20 AM (GMT -7)   
I'm probably not going to remember this accurately but this is what my Rheumy told me when my ANA was rising on Remicade.  That Remicade and Enbrel are made from mouse proteins? and the body starts making antibodies against those proteins because they don't recongnize them thus causing Lupus to flare or cause drug-induced Lupus.  Humira is made of human proteins and therefore doesn't have this effect.  I'm guessing this is why they have Barbara on Humira instead of the other TNFs.
Jeannie 
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 15mg (RA); Metanx 5mg (RA); Orencia 750mgs (RA); Lunesta 2mg (as needed); Prevacid

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