Lupus and C-Reactive Protein Results

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Beth1
Regular Member


Date Joined Apr 2005
Total Posts : 54
   Posted 4/29/2008 11:01 AM (GMT -7)   
Hi all!,
   I lurk here all the time but have not needed to post lately but got some labs back yesterday. I am still diagnosed with UCTD and Fibromyalgia. My labs yesterday showed my C-Reactive Protein elevated at 1.30, and C3 and C4 Complements low at 67.9 and 14.0.  I have felt like crap for the last couple of weeks with extreme joint pain. Also found out I am B12 deficient and began monthly shots.  Did anyone finally get a lupus diagnosis after these type of lab results?  I am also ANA+ at >1:640, trace of blood and moderate amount of amorphous urates in my urine. Previously had an EGFR at 55 but that has since increased to > 60.  Also run a low WBC and platelets, raynaud's in two fingers and sun sensitivity?
 
 
Better Health for All!
 
Beth

UCTD 2005, Meniere's since '97, ITP,MVP,Raynaud's
Low WBC, Thrombocytopenia, Brain Fog, Fatique
But Hanging in There!!!!!!!


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 4/29/2008 3:55 PM (GMT -7)   
HI Beth,
 
Yes, I got my diagnosis with those lab results, but also with some others.  Anticardiolipin antibody, antiphospholipid antibody, positive for sjogrens.  My compliment levels were low too. They come back low when autoimmune disease is present.  What meds have been prescribed for you?
 
Better health to you too!!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 4/29/2008 4:40 PM (GMT -7)   
Hi Beth, I was also dx with positive SED rate, 1:640 ANA, pos SSA and low C3 along with many symptoms which include sun sensitivity. I also had Raynaud's at the time of my dx and my WBC, RBC started running low after my dx. My rheumy checks them every 2 months, she says when they're low that means the lupus is "stirring around".

I know how frustrating it is before you are dx but the important thing is your treatment plan. Are your doctors treating your symptoms? I sure hope you get some answers soon, take care and keep us posted.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)


Beth1
Regular Member


Date Joined Apr 2005
Total Posts : 54
   Posted 4/30/2008 7:53 AM (GMT -7)   
Thanks for the responses.  I was on Plaquenil for awhile but it made me itch real bad. I did take the generic however so maybe I need to talk to the Rheumy about going back on it.
He currently doesn't have me on anything other than NSAID's for pain and I am trying to do some exercise regularly.
 
Thanks,
Beth
UCTD 2005, Meniere's since '97, ITP,MVP,Raynaud's
Low WBC, Thrombocytopenia, Brain Fog, Fatique,B12 Deficiency 2008,Fibromyalgia 2007
But Hanging in There!!!!!!!


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 4/30/2008 9:09 AM (GMT -7)   
Hey Beth, just wanted to touch base with you about your thrombocytopenia.  I have that too.  It can often be the cause of a B12 deficiency.  Is that your case?  If the thrombocytopenia is treated successfully, the B12 deficiency will often correct itself.  Treatment for thrombo is usually prednisone.  I respond REALLY well to prednisone.  It's helped all of my lupus/MCTD issues.
 
I'm really surprised you're not on a treatment at all.  Thrombo can be very serious if left untreated.  I would recommend a visit to your rheumy to start treatment for you. 
 
I hope you're having a good day,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Beth1
Regular Member


Date Joined Apr 2005
Total Posts : 54
   Posted 5/2/2008 6:55 AM (GMT -7)   
Thanks Ginny,
  My ITP has been in remission for quite a while so I am not on anything for that. I do have a hematologist following me though.
 
 
Beth
UCTD 2005, Meniere's since '97, ITP,MVP,Raynaud's
Low WBC, Thrombocytopenia, Brain Fog, Fatique,B12 Deficiency 2008,Fibromyalgia 2007
But Hanging in There!!!!!!!


kanubewell
New Member


Date Joined Feb 2008
Total Posts : 8
   Posted 5/2/2008 12:53 PM (GMT -7)   

 

Hi Ginny

       Just read your post about thrombocytopenia etc. I have been bounced around for 9 mos and had many different diagnosis.....lupus( then ---no it's not)CLL or lymphoma and underwent many tests.Had really bad time last week with hemo and basically said it was about getting attention.My platelets for past 3 yrs have not gone above 90.000---Wbc better now at 5000. The ana etc neg. He said they send people to OR with low platelets...Last Sept B 12 was 124-----started on 2 forms of B 12-----now 432....I am so confused and  rheumo gave me Tylenol 3 and  come back in 6 mos.

  Should I be more concerned about this altho I am plenty fed up now and the swelling in feet hands still there ???Am I to understand that long term B 12 deficiency leaves many problems.I posted a few times but am due for bone marrow biopsy on Tues.....He says it was due to Tamoxifen----they were low before lumpectomy--  2005  -radiation---tamo but he won"t listen...There are limited resources and I am going back to family DR later as she is following diabetes------Thanks anyone as this is playing on my head  and my friends are great but you gals have some answers....Thanks

       


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/3/2008 10:46 AM (GMT -7)   
Hi there! VERY interested to see this topic.
I still no defo for Lupus but a probable with two AnA results of 1.800 and my CK levels have4 been far higher than mentioned here.
I am not being treated for possible lupus but am going to start on meds for sjogrens and am told my sjogrens is mild. HATE to see a severe shoggie, thats all I can say.
I am wondering whether they worried cos of the massive amount of meds I have been on with psych drugs in the past, that they dont want more meds in my body.
I too feel really ill with all this stuff.
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream

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