re: Barbara Lee

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Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 4/30/2008 11:41 AM (GMT -7)   
As some of you know, our friend Barbara Lee has been having more troubles with chest pain, shortness of breath, being unable to keep food down, high temperatures, and the whole kit and kaboodle.

I just talked with her and she is being admitted to the hospital as we speak...

We will know more this evening after she gets settled in, and I'll post as I get updates.

Prayers headed your way, Barb.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Post Edited (Lynnwood) : 4/30/2008 3:35:11 PM (GMT-6)


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 4/30/2008 11:56 AM (GMT -7)   
Thanks for the update. I will send positive thoughts and prayers her way as well.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


jrlm
Regular Member


Date Joined Apr 2008
Total Posts : 45
   Posted 4/30/2008 12:33 PM (GMT -7)   
thank you for the update. barb if you read this soon, stay strong and i know you can. You will be in my thoughts barb!!
you can get through this.
-jess

tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 4/30/2008 1:25 PM (GMT -7)   
hang in there Barbara we are all praying for you....  Strong Lupie prayers your way.....
Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 4/30/2008 2:22 PM (GMT -7)   
We're here for you Barb.  Prayers are with you,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 4/30/2008 2:34 PM (GMT -7)   
Barbara is now safely ensconced in the hospital. However, they are not giving her fluids, the right pain medications, or anything else she couldn't do more comfortably at home. The GI doctor from the "admit team" will come by and look at her, but it won't be "her" regular GI doctor.

Basically, military dependents see "their" doctors on a outpatient basis. If they have to be admitted, it's the "admit team" that ends up doing all the treating. And there isn't much, if any, coordination between the two.

So far this trip they are ignoring the reason the regular doctor wanted her admitted -- to get some fluids & nutrition in, as she is so dehydrated and weak. Their reason is "you're too hard to stick"....so what the @$^%*!!! do they expect will happen? Barb was somewhat expecting to be admitted for hydration, and thinking they would probably put in a central line to avoid the "sticking" problem....but as of now they haven't done anything, and nothing is really expected until tomorrow, if then.

Barbara Lee's phone number at the hospital is (removed).

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Post Edited (Lynnwood) : 5/2/2008 10:34:39 AM (GMT-6)


Julia Hill
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Date Joined Mar 2008
Total Posts : 543
   Posted 4/30/2008 3:16 PM (GMT -7)   
Thank you for letting us know about Barb.  I was already starting to worry as she hasn't been in the chat room.  Please give her my best, and let her know we are thinking about her and hoping she feels better real soon.  (((hugs))) Barb! 

auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1199
   Posted 4/30/2008 3:41 PM (GMT -7)   
Barb i'm sorry your not getting the help you need.I have to wonder about the way drs, treat their patients. Hang in there sweetie maybe tomorow will be a better day. I'll be praying for you ((((((hugs))))

Love ya Kay

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 4/30/2008 4:11 PM (GMT -7)   
Lynn,  Tks for updating us on Barb and for posting the number to her room..... :-) .
Barb, thank you for calling me earlier to let me know whats going on.....((((Hugs)))). You were so upset and miserable when I talked to you and my heart goes out to you sweetie. I hope the team of doctors figure out what their suppose to be doing soon and give you some much needed relief! Hang in there I will check on you tomorrow. Your in my thoughts and prayers.
                                                Love you, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 4/30/2008 4:28 PM (GMT -7)   
Thanks Lynn for the updates!

Barbara . . . hang in there sis!! Hopefully they'll get the picture soon. I hope your hubby will call YOUR GI doc and ask him to call the "admit team" docs and help them understand the purpose for your hospital stay.

Sending you some nice hot tea sis.

Prayers and blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Crohns, Diverticulosis, Sjogrens

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 4/30/2008 5:26 PM (GMT -7)   
The phone number that you posted sounds like the one in Washington DC if I remember corectly. She is in a good hospital. After all the president goes there. Yes, it is hard to get the help you need when you are not issued with the duffle bag. I know she will she get the help she needs, but alot of the DRs are out at other places where they are needed most and they are streached very thin. Like my hospital here at the Naval hospital Jacksonville Florida we do not have a Rh. We are sent out and our town only has 2 and one is a deffenant quack and the other one has a 1 year waiting list. It is hard to understand how the Military system works but we do have some great medical perks that others do not. Also, alot of the military Drs now are just learning. The hospital here at NASJAX is a teaching hospital and if not mistaken so is Bethesada. I just remembered it is when I went to the OBYN I was asked if students could have a look, after that my husband thought there was gold down there. In closing I hope you all understand why it may take so long to get the proper help she needs.  She is in a good place and will get what she needs.
Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 4/30/2008 8:00 PM (GMT -7)   

Hi All:

Thanks for your thoughts and prayers.  I'm highly frustrated at my doctors.  My outpatient doctor spoke with the admitting team and they didn't do one thing that my outpatient doc recommended.  I'm very frustrated that they didn't draw one single stinking lab on me, they felt the labs that were drawn 5 days ago is good enough.  Now you all know things can change in us within hour.  They finally came and did put and IV in my arm but they aren't running fluids.  I'm getting all my pain meds in shot form in the butt.  This is the first time here that they've acted this way with me.  Tink I have to say I'm not sure I'll get the care I need.  I've only had 12 oz of fluids in 3 days and they aren't giving me IV fluids.  Yes, I'm dealing with medical students, residents, and staff doctors. Yes, the President comes here, but he's special us regular peeps don't get the same care as him.

The GI doc on call came to see me, he feels the problem with my stomach is probably the muscle and skelatull (sp) and nothing that they can help me with.  I think it's an adhesion from all my belly surgeries.  They did decide to do a endosocpy tomorrow, the fact that I'm on oxycontin worries the GI and he feels that they'll not be able to sedate me well enough.  So the anatheisologist will put me under for the scope.  Because of this situation I'm not sure what time I'll go for the scope it will be when the anatheisologist is ready.  I'm to have nothing by mouth after midnight.  I'm not sure but I suspect after my scope tomorrow they'll send me home.  I'll still be dehyrated, feeling crummy, and not have my pain under control.  As the doctors are unwilling to check my inflammation markers.  I can't begin to express my disappointment with the hospital this time. 

Well that's the update on me, please pray for me as I'm truly very very ready to give up on trying to keep holding on and fighting to be there for my family.

Love,

Barb


dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 5/1/2008 5:28 AM (GMT -7)   
Barb, I'm so sorry you are going through this and that the docs aren't doing more for you. I think it's terrible that they aren't doing new labs. You are in my prayers, Barb. Thanks for the update - I imagine you are still worn out.

Love and hugs
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 5/1/2008 7:06 AM (GMT -7)   
Lynwood, I tried to call Barb but the number was not in service. I wonder if they moved her to another room. I feel so bad for Barb that I can't stand it. She has been sounding very defeated and alone and I don't know what can be done to help her. If you come up with another number, please let us know so that I can talk to her. Thanks for letting us know what's going on.

Barb, honey, I'm so sorry you're back in the stinkin' hospital and I wish we could wave a wand over those doctors and make them more sensitive to what you need. Hang in there and I'll call you if I get another number for you. Keep up the fight Barb. You can do this.

Love ya,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1199
   Posted 5/1/2008 7:07 AM (GMT -7)   
Barb i'm so sorry your not getting the help you need. I pray the scope goes well and helps the drs. find your problem with your stomach. I know your tired and fustrated bless your heart just know i'm praying for you sweetie ((((((hugs))))))).
Love you Kay Patty i just saw your post and the number barb gave me is (removed) give this one a try.

Post Edited By Moderator (Lynnwood) : 5/2/2008 10:35:16 AM (GMT-6)


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 5/1/2008 7:10 AM (GMT -7)   
Hi Everyone,
    I just called Barb to check on her. She is still not getting any IV fluids and they haven't drawn any blood yet to see what may be going on..... mad
    They did give her some IV pain meds that is helping a bit but other than that nothing has been done.
    She will be having the Endoscopy this afternoon. Hopefully after that they will do something.
Barb, Hang in there sweetie! Alot of prayers are going up for you my friend!  I love you, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 5/1/2008 7:13 AM (GMT -7)   
Pat,

The number is (removed)....... Lynn just got one number wrong.

Kay, Sorry, I think you and I were posting at the same time and I didn't see that you put the number in your post...((Hugs)). Babs

Post Edited By Moderator (Lynnwood) : 5/2/2008 10:35:58 AM (GMT-6)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 5/1/2008 7:59 AM (GMT -7)   
Ops! One number wrong and off we go into la la land --- glad folks were around with the right number.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/1/2008 9:05 AM (GMT -7)   
OH NO!!! ((((((( Barbara ))))))))

So sorry sis. I could just cry for you! I hope that SOMEONE who is caring for you will get a huge nudge from above that will cause them to check things more thoroughly for you! That's my prayer.

Are they way understaffed there???? I'm embarrassed for the meager care you are receiving. I'm so sorry Barbara.

I'm mentally giving you IV nutrition and the care you should be getting.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 5/1/2008 10:23 AM (GMT -7)   
Hi Barb,

Just to let you know that you are in my thoughts and I hope your situation is brighter today. Let's hope that your scope shows them what is wrong so it can be rectified. You have alot of people on here that care about you, so draw strength from that and hold on tight. Hopefully you get some IV fluids today and some compassion from the medical staff. Stay strong my friend, I know you have it in you because you are always helping others. Take care and keep us updated on your progress.

Love Julia

Kacey4128
New Member


Date Joined Oct 2007
Total Posts : 11
   Posted 5/1/2008 11:28 AM (GMT -7)   
Hey barb ((Hugs)) I hope you get to feeling better soon.  You will be in my thoughts.  Keep staying strong and try to be positive.  Talk to ya soon.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 5/1/2008 1:48 PM (GMT -7)   
(((Barb))) I'm so sorry that you have to go through this. I sure hope you get proper treatment soon! Please keep us updated.  Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: CellCept plaquenil methotrexate prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol actonel ambien multi vitamin C flaxseed oil  PRN: gabapentin promethazine xanax
             Better living through chemistry    Donna
 


Trying2BFree
Regular Member


Date Joined Oct 2005
Total Posts : 251
   Posted 5/1/2008 2:07 PM (GMT -7)   
I'm thinking about you. {{{Hugs}}}
Jeannie 
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 15mg (RA); Metanx 5mg (RA); Orencia 750mgs (RA); Lunesta 2mg (as needed); Prevacid


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 5/1/2008 2:39 PM (GMT -7)   
jrlm said...
hey babe... im sorry the way you are being treated in the hospital. good luck with the endoscopy, hope you are in better shape soon
i'll be thinking about you,

love jess

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 5/1/2008 4:00 PM (GMT -7)   
((((( Barb ))))) bless your heart sis, you've got so much going on. I just wanted to let you know I was thinking about you and you are in my prayers. I pray you get to come home soon, take care and get plenty of rest! Love ya
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

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