lupus and bariatric surgery

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Peaceful Harpist
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Date Joined Apr 2005
Total Posts : 679
   Posted 5/5/2008 3:28 PM (GMT -7)   
Hello everyone, it has been a long time since I've posted. I've had a lot of issues since I last posted, but I won't go into them all. I have had major chronic pain, and had gone to a pain management doctor which helped. It took a long time to get a handle on my pain. I take both neurontin and lyrica, with a muscle relaxer.
Tomorrow I have an appointment with a doctor for bariatric surgery. My hemotologist referred me. Because I've been so inactive due to fibro and lupus, I have put on a ton of weight. It is a very drastic thing to do, but my weight has created many problems for me. There is no way that I can exercise enough to lose enough weight.
I was wondering if anyone had infor. on bariatric surgery with lupus? Or any experiences to share? Thank you everyone in advance!
I'm happy to see that the regular "oldies" are still here!! I hope that everyone is doing well.
Prayers and hugs, Peaceful
Nesting is healing, May God bless you, peaceful harpist
 
Lupus, sub-cutaneous lupus, Fibromyelagia,chronic pain, degenerative disc disease(C6 &C7 graft w. plate, S1,L5,L4 herniated),hypothyroidism, severe anemia & luekopenia, asthma, R.A., O.A., Raynaud's, Sjorgrens's & sleep apnea. Too many meds to mention.  
                   
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 5/5/2008 4:37 PM (GMT -7)   
Cynthia,
   ((((Hugs)))) It has been awhile since you posted. I'm sorry to hear you have been having such a hard time of it.
    I'm no help with the surgery with lupus patients. I do know several people that have had the surgery and done well, but not sure about anyone with lupus. I hope it goes well and you start to feel alot better afterwards.
   Please keep us updated and take care. You will be in my thoughts and prayers.
                                                               Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 5/5/2008 4:50 PM (GMT -7)   
((((( Cynthia ))))))))

Its great to hear from you again sis!!! I'm so sorry you are still having so much trouble. I remember from way back that you had so many issues they were going to install a port for your meds. I was hoping you were doing way better by now.

I'm sorry I don't know much about the bariatric surgery except that they have perfected it quite a bit and its less invasive than it was a while back. I also know that, if you are type II diabetic, that generally disappears with the surgery. But I have no idea what affect it would have on a lupan. Sorry. I think this topic has come up in the past here. If I can find anything, I'll post a link.

Nice to hear from you!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 5/5/2008 8:34 PM (GMT -7)   
Glad you're posting -- great to hear from you!

Sorry, I don't have any experiance with this either. We've had people on here post questions about it, but I don't recall anyone coming back and giving us any answers!

So I guess you'll have to "boldly go where no man has gone before" (I think that's the line from Start Trek) and come back and let us know all the details!

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/5/2008 9:37 PM (GMT -7)   
I called all the surgeons who do the surgery within 100 miles of me and every single one said they would not do the surgery on a lupus patient. I asked about lap banding too- I was told the lap band is silicone based and thus contradicted in lupus. I asked why they wouldn't do the gastric bypass and was told lupus can attack the digestive tract and some people end up needing parts of their intestinal tract removed due to damage and that gastric bypass can actually increase the chances the immune system will attack the digestive tract. I have no idea if they are right but I do know that no one was willing to touch doing the surgery on a lupus patient even one in remission. I personally was not at all upset because eating is not my problem, I actually have a problem with not eating, but decided to do the basic research cause I am sick of being fat.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


Peaceful Harpist
Veteran Member


Date Joined Apr 2005
Total Posts : 679
   Posted 5/12/2008 10:36 AM (GMT -7)   
Thank you all!!! I am going where no lupie has gone before. I have been accepted into a program for bariatric surgery. 6 mo. will be going to support groups, nutrition classes, and some weight loss is needed too. They have other criteria too. I am told that I am a good candidate...issues will be nsaids. My lupus is not active, which is good. The program that I am going into has a very high success rate and very low mortality rate. I have to get approval from my insurance co. I am told that they will approve because I have certain conditions. I have even watched the Roux-en-y bariatric surgery. I have decided against the lap band. I have also decided against a port at this time. I have leveled off for needing iron every 5-6 monthes. Final screenings and approval is done right before the surgery. So, I will go with this program and see how things go.

Barbara Lee, I am so glad to see you posting too!
peace, and hugs to you all, Cynthia
Nesting is healing, May God bless you, peaceful harpist
 
Lupus, sub-cutaneous lupus, Fibromyelagia,chronic pain, degenerative disc disease(C6 &C7 graft w. plate, S1,L5,L4 herniated),hypothyroidism, severe anemia & luekopenia, asthma, R.A., O.A., Raynaud's, Sjorgrens's & sleep apnea. Too many meds to mention.  
                   
 


oldhippyrebel
Regular Member


Date Joined May 2008
Total Posts : 58
   Posted 5/13/2008 8:34 PM (GMT -7)   
I'm new here but I read your post about the surgery. I have Lupus and I've had the surgery. I don't know if it was the cause but about a year after the surgery, I 've had the worse flare if you can call it a flare that has lasted about 2 years. The lupus is attacking my nevous sytem. I have neuropathy in both legs and now my right arm is having the same problems.
 
When I go to stand up sometimes I can't move my leg, I broke my ankle and didn't know it was broke. I'm having considerable pain in my arm and my thumb feels like it is on fire. They don't say the surgery caused it but we don't know. But I thought I would pass along that I've had problems I had issues before but that lupus was not this bad ever before.

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/13/2008 10:57 PM (GMT -7)   
Welcome to forum Oldhippyrebel!!! SO sorry you are having such nasty issues!! That sounds really painful!!! Have the docs considered that it might be MS? What are they doing to treat that kind of pain and problems?


Cynthia! So you get accepted to start the 6 month program. . . and then you have to get accepted again? I hope you learn LOT's to help you make a final decision. I understand that they are less invasive with this surgery than years back. You'll have to keep us posted!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


oldhippyrebel
Regular Member


Date Joined May 2008
Total Posts : 58
   Posted 5/14/2008 12:42 PM (GMT -7)   
They checked for MS more than once and nothing. I'm asked all the time if I would do the surgery again and the thing is I can't say that is why I had this flare. Some health issues improved and others got worse. There is no way to know for sure what has caused the worse to happen.
 
I thought I would look here to see if anyone else was having problems with thier nervous sytems.

Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/14/2008 1:59 PM (GMT -7)   
Surgery of any kind carries risks, one has to decide what options there are. For instance, I had an ileal resection for crohns in 02, if i didnt I would have died BUT, nine weeks after the surgery the crohns attacked the join of the surgery and thats where it usually attacks first but I was hoping to get a year before that happened. I smoked so that may have been why it came back so quick. I am off the smokes now since oct 05.
The surgery helped the crohns but I am sure that from the time of surgery I was using a wheelchair more. I put it down to crohns and weakness from crohns and felt it was all 'normal' but I was more and more in the wheelchair and then things just got worse and worse, slowly and finally with quite a bang in 05.
I cant but help feel it was the surgery that sparked the decline but you just can't know.
With autoimmune diseases its all SO complicated.
I think weight problems result in even more problems so I think that is important too to sort.
six of one and half a dozen of another!
xAnn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


mamamuse
Regular Member


Date Joined Dec 2006
Total Posts : 102
   Posted 5/21/2008 9:24 PM (GMT -7)   
I have looked into it as well after a friend had a wonderful experience with her lap band. I was all excited about it until I learned that it's not for people with autoimmune disease or anyone who has a family history of autoimmune disease.
 
I have not seriously considered gastric bypass because I fear it due to complications non-lupie friends have had. I don't mean to be a wet blanket...I know that lots of people have had successful outcomes. There is a site called Junk Food Science http://junkfoodscience.blogspot.com/ that presents a different look at bariatric surgery, and the risks of obesity.
 
After spending hours reading that website, I came to the conclusion that what I felt in my gut was right: my body's already been through so much, and autoimmune problems present such an unknown future. I just can't choose to surgically alter an essential part of my body, not knowing how the outcome could affect me in the long term.
 
Yes, I'm tired of being heavy, and I know that my joints will feel better if I lose the weight. But I'm not convinced that surgery is the best or safest route for me considering my illness. JMO.
Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain


IALupus
Regular Member


Date Joined May 2006
Total Posts : 78
   Posted 5/22/2008 7:58 PM (GMT -7)   
Hello,
I too have been looking into the bariatric surgeries.  NO to the bybass and NO to the lap band.  But there is  a new procedure...vertical sleeve.  That is the one I will be getting when the insurance company gets done playing doctor and lets the doctors do what is best for me.
Hope that helps.
Nicki
 

SLE 9/99-Autoimmune Hepititis 2006- Asthma- Fibromyalgia   The list is tooo long for me to type!!  Just ask I will tell.
Methotrexate, Immuran, Singular, Protonix, Allegra-D, Combevent, Duo Neb, Lasix, Imeripex, Flexiril, Zoloft, Predisone and pain meds. There is more but not that important.


LIBroomRider
New Member


Date Joined May 2008
Total Posts : 1
   Posted 5/30/2008 8:01 PM (GMT -7)   
Hello, This is for oldhippyrebel: anyone ever suggest B6 vitamin? 100 mg a day for neuropathy. I want to thank everyone on this site. I too have Lupus/RH/hashimotos/alopecia and a few more. I have been free of symptoms for 4 years now, I take transfer factor which increases your immune system. I would love to be a candidate for bypass surgery, but I have been told it won't be possible even though I have been in "remission". No Lasik either!! :-( Guess I just have to work twice as hard as I've been working to get this weight off and thank goodness for the great eyeglass frames that are out there now. Thank you all for being so informative.
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