AWFUL EMG results

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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/6/2008 11:45 AM (GMT -7)   
The neurologist/neurophysiologist faxed through my EMG results from the hospital today.
I have been crying since.
He tested legs and arms.
it states 'the EMG findings suggest chronic myopathy and there is no evidence of active myositis.
What will this mean for me?
am I gonna die?
Also on this trip diagnosed with sjogrens and lupus and parkinsonism.
Twin has lost her purse and is going awol and asking me to look for it and I am bloody exhausted.
We both have put in an awful day.
xAnmn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


TiBoBi
Regular Member


Date Joined Mar 2008
Total Posts : 89
   Posted 5/6/2008 12:22 PM (GMT -7)   

Hi,

Are you able to talk to your doc about these test results? If you are not sure what the results mean to you, specifically, you should be able to ask your doctor to explain them to you. I don't know much about myopathy. Getting a diagnosis is half the battle even though getting the info can be hard sometimes. So sorry you are not feeling well and having a rough day to boot.

Ti


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/6/2008 12:48 PM (GMT -7)   
I am so sorry. I wish I could offer some more than that. I really hope they can help you and slow down whatever is happening in your body.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1942
   Posted 5/6/2008 6:43 PM (GMT -7)   
Hi Ann--
I just had one done and I've had bad results before. Did the machine go nuts when they tested you or was it really quiet?

For me the thing goes nuts and what should be one nerve pulse to stimulate a muscle results in a repetitive increased response. I always have nerve activity in my muscles, which are always tight. In the past I have been tested for myasthenia gravis and do not have it.

I have also been told that hyperactivity on these tests can be caused by meds like plaquenil and others and caffience and just plain nervousness and chronic pain. I don't know how fibro might alter these results.

If the electrical impulses are not strong but weak (few, small humps on the monitor vs. lots of big humps or scribbling--which mine is), I think there is more to worry about, but even that may be the result of pinched nerves or spinal problems vs. another disease.

I know this is frightening. Try navigating the results sections of this electronic manual for both nerve conduction and needle examination sections:
http://www.teleemg.com/new/jbr090.htm

It gives a little more info than the regular stuff.

I have increased repetitive potentials, where my nerves don't give up when asking to contract the musccle after it has already contracted. So my muscles stay contracted.

They just did my arm for a specific problem, but I have been real impressed with Mayo's dx and tx of this part of my current health problem. I'm sure it's my neck and if they would simply do a new MRI and have a neurosurgeon look at it, he would concur, since all others have.

I hope that you get answers soon and try not to worry. There is a 40% inaccuracy rate on EMGs. Most neurosurgeons I've talked two (three) tell me they are pretty much useless for spinal injury and other stuff because of that except in certain rare cases.

I hope you feel better soon and your twin finds her purse.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn

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