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Sunshine1960
Regular Member


Date Joined May 2008
Total Posts : 37
   Posted 5/6/2008 3:53 PM (GMT -7)   
Has anyone experienced foot numbness?  Have had feeling of shoe being too tight on left foot for over a week now....even barefoot!!! Kind of a band across the top of my foot...sometimes even feels like the muscle in my lower leg is going numb too....sure is a weird feeling while walking.
Thanks. Sunshine

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 5/6/2008 5:07 PM (GMT -7)   
Hi Sunshine, I have a lot of problems with my feet mainly inflammation and pain!! I cannot wear shoes that are tight across the top of my feet, my right one especially. I've even had to return (Clarks) sandals that have a band across the top. Sometimes when I have my legs crossed my feet will do that, it's very annoying and I need to mention to my doc.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 5/6/2008 7:26 PM (GMT -7)   
Sunshine,
   Since this is a new symptom you should mention it to your doctor. Have you started any new meds lately?
   I get the tightness/numbness feeling in my left foot sometimes too. I also have alot of burning pain in both my feet and they cramp.
   I hope you get some relief soon. Keep us updated and let us know what your doc says about this. We are all different with our symptoms in some ways....it's crazy!
   Take care. You will be in my thoughts and prayers.
                                                           Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/6/2008 8:16 PM (GMT -7)   
Hi Sunshine,

My feet, hands, arms and sometimes my face will go numb when I am flaring.

Babs is right, you should make sure to mention to the doctor.

Sometimes I have to support limbs with pillows in such a way that I can sleep w/o limbs going numb . . . kind of scary sometimes.

Hope you are feeling better soon.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Sunshine1960
Regular Member


Date Joined May 2008
Total Posts : 37
   Posted 5/7/2008 5:43 AM (GMT -7)   
I am keeping a log of the different things that happen, so that I can bring that to the doc, and not forget once I get there!   Actually, I was tested about 7 years ago for some of these same symptoms, had a nerve conduction, MRI's, because of the foot numbness, in the same foot.  At the time they suspected MS.  That has come and gone over the years and never paid any more attention to it, until now, because it is there ALL the time now, even when I'm just laying there falling asleep! Call me crazy, but I know it's not a pinched nerve or anything like that....we just know these things sometimes. 
Now to add another possible symptom:  was out in the sun this weekend....had some energy and decided to do a bike hike with my son and his boyscout troop...but, it was mostly a paved, shady bike path....so, no sunburn...but now my ears...actually, inside them, and on the bottoms and around to my neck, and of all places, my eyelids....are painful and itchy, but not a sunburn type thing....sometimes I think I'm imagining all these weird different things and am so thankful when I see others that tell of the same things....not thankful that there are others with the same symptoms....thankful that I am not imagining all this!!!
I am beginning a new routine each day to try to alleviate a lot of discomfort, I begin my day with a full session of Qi Gong, then a healthy zone breakfast, listen to some reiki music on the way to work, drink a ton of water, get in some light exercise by walking at lunch, stick to a healthy diet, and then end the day with a modified Reiki session (I am a Reiki Master).....so, lots of relaxation thrown in during the day.  It  has proven difficult to stick to a schedule like that....but, it is a MUST!!!

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 5/7/2008 6:05 AM (GMT -7)   
Hi Sunshine,
   I'm glad to hear you are keeping a log of all your symptoms to take to the doctor when you go. Take pictures of any redness or rashes incase they are gone when you see the doctor as well.
   Are the places in and around your ears, neck and eyes red and hot to the touch? Sometimes my ears will get bright red, sting and itch and they are hot to the touch. Actually mine turns into a rash. My rheumy says its from lupus and prednisone helps with mine.
   Sometimes we get some really whacky symptoms and wonder "What in the world is this?". It can be weird at times since we never know what to expect.
   I hope you get some relief soon. Take care and keep us updated. You will be in my thoughts and prayers.
                                                       Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Sunshine1960
Regular Member


Date Joined May 2008
Total Posts : 37
   Posted 5/7/2008 6:08 AM (GMT -7)   

Absolutely, red, painful, hot to touch.....

Pictures are good.....I've been fortunate enougth to have been at my docs twice with a full on rash!

Have a great day everyone....

Sunshine


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/7/2008 6:09 AM (GMT -7)   
Sunshine,

The sun is not my friend. If you see a lady walking down the street on a sunny day with an umbrella . . . that will be me. I wear long sleeves in the summer (all the way over my hands) and I cover up even the car because that's enough sun to cause trouble.

Some of us are more sun sensitive than others . . . but most lupans don't fair well in the sun. It can cause rashes, zap energy, and cause flares.

I used to have an aggressive walking/hiking program and I've missed that the most. I just haven't been able to ramp up to it again after a major flare about 3 years ago. *sigh* Still trying!!! But I'm very kind to myself and I've learned not to overdo.

I hope your doc helps you get things figured out. A rheumatologist is the doctor to go to though, if you can get a referral. This is a tricky puzzle and a good rheumy can help figure out what's going on. There are other diseases that can cause the same/similar symptoms . . . . so it can take some time to dx.

Glad you are able to fit in some good exercise!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/28/2008 5:48 PM (GMT -7)   
Here's one topic Mawmaw !!!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


mawmaw66
Regular Member


Date Joined Feb 2007
Total Posts : 102
   Posted 5/29/2008 6:57 AM (GMT -7)   
Thank you.
Lupus, RA, OA, Raynard diseases, Hypothyroidism and a Breast cancer survior.
 Linda


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/29/2008 4:01 PM (GMT -7)   
I'm a little confused about who I am speaking to but I will just say yes I get numbness as well. Oddly it's also in my left foot. However mine swell up so badly that it tears my skin into stretch marks. It goes all the way up to my knees and is warm to touch and fire truck red. Doc put me on high doses of steroids and happily it's only happened twice in the past 18 months.

I hope you get some answers
hugs
carol
God Bless
Depends on which rheumy you ask! stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


Sunshine1960
Regular Member


Date Joined May 2008
Total Posts : 37
   Posted 5/30/2008 7:37 AM (GMT -7)   
Finally have lab results on the DNA double stranded something or other.....2nd one in a month because the first one came back indeterminant....the lab tech said it could be a positive result, but on the low side...the doc finally told me it means that it was abnormal, but not high enough titer to make a determination....
The second one came back the same way.   Go figure.
Doc said to come back in a month and we'd do it all again. Another full blood work up.
I told her about the foot numbness and the shortness of breath.....
Her response, "Well, just call me in a month and we'll schedule the blood work, if anything new or significant comes up, let me know". 
I asked her if the foot numbness and shortness of breath was not significant....she said yes and she'll talk to me in a month!
 
So....how's that for service.....
 

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/30/2008 8:38 PM (GMT -7)   
I'm sorry you had such a bad experience with your rheummy. I've been to 3 different ones and they all say somthing differnt. You really need to have a doctor that will listen to you. Maybe they don't think being out of breath and feeling numb but they aren't the ones going through it. Getting a good doctor means everything!
hugs
carol
God Bless
Depends on which rheumy you ask! stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


Sunshine1960
Regular Member


Date Joined May 2008
Total Posts : 37
   Posted 6/2/2008 6:03 AM (GMT -7)   
I haven't even gotten to the Rheumy stage yet...that was my regular doc.....do I need a referral for a Rheumy?
I decided right then to give up on docs all together, go to an all natural, organic (as much as possible) diet, anti-inflammatory diet, lots of water, light exercise.....vitamins and minerals, and Omega 3-6-9 oil....and fish oil
 
I've been going since the beginning of the year for these specific problems. Seems the doc is more concerned about typing everything into her laptop than really listening.  So....I'm frustrated and giving up on them. 

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 6/2/2008 9:11 AM (GMT -7)   
Whether or not you need a referral is usually determined by your insurance company....

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Leslie007
New Member


Date Joined Aug 2008
Total Posts : 1
   Posted 8/31/2008 1:11 AM (GMT -7)   
Sunshine,
you sound like you have mixed connective tissue disease. If you have lupus, you may also have dermatomyositis. You rash symptoms, from what you explain, are classic (excluding lupus type rashes): heliotrope rash, shawl rash, back rash perhaps? all the places exposed to the sun for the most part. Next question: do you have a red, almost bumpy rash, on your knuckles? If so those would be Gotron's papules. You absolutely should not go in the sun without sunscreen or during peak daylight times.

Please check with your doctor. Hopefully you are seeing a team dermatologists and immunologists. If a GP won't refer you to them, find another GP.

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 8/31/2008 6:02 AM (GMT -7)   
Hi Sunshine,
 
My foot problems, which are much like yours, are from my Fibromyalgia. I just found this out. I have the numbness but also extreme pain when walking.  Just wanted to let you know there might be one other possibility for your foot issues.  Fibro affects the muscles, tendons and ligaments.  It can also cause numbness in the feet, toes, hands and fingers.
 
I hope you get your answers soon too.
 
Take good care,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Serina
Regular Member


Date Joined Aug 2008
Total Posts : 431
   Posted 8/31/2008 6:44 AM (GMT -7)   

Hello,

I have this numbness too, but the numbness is in my arms, and hands.  Just holding the steering wheel to drive causes my hand to get numb.

I am very sun sensitive, and could not even dream of hiking in the sun.  Sure wish I could.  Just two days of picking up my grandchildren from school, caused me to be sick the rest of the day.  drained of energy, weak, dizziness sometimes when I stand up.  Luckily it is mostly gone after a good night's rest.

It seems to me, but could just be me looking for stuff, but it seems to be worse when the sun is high in the sky, and I don't seem to be as sun sensitive in the winter time as I am in the summer.
 
since this numbness has been talked about here, I will mention it to my rheumy.  I have been listing evey single thing that I think is important to take to him the next time I see him.  Didn't know if the numbness was important, or if it was due to me doing something that normal people would also have the circulation cut off.
 
thanks
hester

Mimi19
New Member


Date Joined Apr 2015
Total Posts : 1
   Posted 4/8/2015 8:09 PM (GMT -7)   
Hi. I found this thread looking for information about foot numbness. Is this a lupus symptom? I hope you are doing well, and don't mind sharing your progress (as I am aware this is an old thread). I was struck by your comment about the numbness feeling like a band across your foot, and how the muscles in your calf are numb as well. I share these symptoms. I hope all is well, but I'm trying to determine if this is lupus or perhaps something else.

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 4/8/2015 10:58 PM (GMT -7)   
Hi Mimi:

Welcome to the forum and I'm sorry to hear that you're having foot numbness. Yes, it can be a symptom of lupus. A lot of us ha neuropathy and it causes the numb feeling. Some of us take nerve medications like lyrica to help with that. I have issues with both my feet, but we're not sure if it's from my lower back being messed up or my lupus.

The person who started this thread hasn't been around HW in a very long time her last post was Dec of 2008. I also know those who responded, other than Lynnwood, no longer post on the forum either.

Sorry I can't be of much help, I'd recommend you mention it to your Rheumy next time you see him/her.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

LoolooLoopus
New Member


Date Joined Apr 2015
Total Posts : 8
   Posted 4/13/2015 8:07 AM (GMT -7)   
Hi, Sunshine! I'm Looloo.
I don't get as much numbness in my toes as I do my fingers, but it's there. My phalanges also get really icy cold. Sometimes I'll trip because of it, or drop things. It's super annoying!
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