thryoid issues

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New Member

Date Joined Jul 2005
Total Posts : 11
   Posted 5/8/2008 2:01 PM (GMT -6)   
I just found out that I have hyperthyroidism today. I have all the symptoms, but didn't know what it was for the longest time and am relieved to finally have an answer. Does the coincide with lupus? Does anyone else have trouble with their thyroid?
Diagnosed:Lupus,Lupus nephritis, chronic kidney failure,severe anemia, high blood pressure (April 2005), currently on dialysis as of june 2007
Kidney Biopsy April 2005
Blood Transfusion July 2005
Kidney Transplant... Hopefully July 2008

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 5/8/2008 3:23 PM (GMT -6)   
sarahlynn, I'm sorry to hear about your thyroid. There are other members here who have thyroid problems in addition to lupus. I think my thyroid is okay, although every so often mt TSH is a little off, but most of the time it is normal, so no meds for me so far.

I hope that thyroid meds help with some of your symptoms. Take care.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Veteran Member

Date Joined Dec 2005
Total Posts : 1944
   Posted 5/8/2008 11:50 PM (GMT -6)   
Yes, sarahlynn, I have polyendocrine dysfunction, which means my immunes system attacks all my glands, though only some go mildly out of whack. I have hashimotos hypothyroid, the oppostite of Graves hyperthyroid. I was hyperthyroid first for years and then later turned hypothyroid. I don't know if that is normal. You will definitely feel better on medicine, I know I did. Thyroid can cause panic attacks and all kinds of annoying things that lead to overall worsening health if not treated. My arthritis in my spine goes nuts when my thyroid is not at the right level and it got really bad because I was never diagnosed for so long.

Take care and I hope you feel better. If you take estrogen, be sure to remind the doc who treats your thyroid so they take that into account. Sometimes they have to adjust your estrogen when they give you other hormones.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn

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Date Joined Jan 2005
Total Posts : 8616
   Posted 5/9/2008 7:55 AM (GMT -6)   
Hi Sarah . . . its great they are treating you! So your thyroid is "over active" ? How do they treat that?

I have normal TSH . . . but have showed high thyroid antibodies at one time. Last time they tested it was a very low anti-body. So I'm not taking anything right now.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 5/12/2008 5:41 PM (GMT -6)   
Hi Sarah, I was dx with hypothyroid in 1999 with symptoms and TSH, T3 and T4 blood test and immediately started on meds. Back in 2005 I was dx with Hashimoto's which means my body is attacking my thyroid. I was dx with the antibody test and enlarged thyroid. I don't know much about graves disease but know that once you are dx with one auto-immune you are more likely to get others.

Hang in there and take care

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

Regular Member

Date Joined Oct 2006
Total Posts : 281
   Posted 5/13/2008 5:44 AM (GMT -6)   

Saralynn I have had thyroid problems long before I was diagnosed with Lupus. My thyroids go out of whack so many times that I can't tell when they are at the right level. Right now the level is very high so my dosage is being reduced. The symptons that I was experiencing this time was wieght loss very quickly, a feeling that I just wanted to crawl out of my skin, my mind wouldn't shut off, and I was so tired, worse then normal. Hopefully the symptons will slow down soon.

Once you get on medication make sure you continue with blood work every month to keep an eye on the levels. Once it levels out it is still advisable to have it checked every couple of months. With me it took a long time to get a dosage that was close to what I needed and it keeps changing.

Good luck, it can be a long haul, but once it gets where it should be you should start to notice in how you are feeling.


diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.

Forum Moderator

Date Joined Mar 2003
Total Posts : 10404
   Posted 5/13/2008 6:45 AM (GMT -6)   
I think thyroid disease is common with all autoimmune diseases. I also had Graves disease and was treated with radioactive iodine, now take thyroid supplements. Then a few years later I was diagnosed with ulcerative colitis. My doctors all tell me having any AI disease makes you much more likely to get another along with it.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
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Please remember to consult your health care provider when making health-related decisions.

New Member

Date Joined May 2008
Total Posts : 1
   Posted 5/13/2008 10:24 AM (GMT -6)   
hi sarah..last year i was feeling soo sick ..went to the doctor and was told i had graves ( thyroid) and lupas im now taking prednisone for lupas and methimazole for thyroid..dont know if its connected in any way thou good question.. i do have a question if anyone can help...the week before and the week begining my period my lupas symtons flare up does anyone else have these issues ?

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 5/13/2008 11:54 AM (GMT -6)   
Welcome to the forum ansandragel!!

YES! lots of us do have more symptoms pre-period. That's because we have more inflammation at that time. I'll see if I can find some previous topics on that and bump one or two up for you.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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