question about tremors

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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 5/8/2008 2:46 PM (GMT -7)   
I know we have talked about tremors on here before and it seems like a lot of us get them, but I was wondering if anyone knows why we get them.  For me I don't think it's a neurological thing - it seems to happen the most and be the worst when I am worn out.
 
I've been super busy lately with my daughter's dance recital coming up and all the rehearsals, so I'm pretty worn out, but so far, no flaring - yay.  We were at dress rehearsal for almost 6 hours last night and I was worn out before we left.  I noticed when I was doing my daughter's hair and putting on her make up, my hands were shaking pretty badly.  Then today when I was plugging in my blow dryer, my hands were shaking again.  Right now they are pretty steady with not much shaking.  I don't get it.  Does anyone know why this happens?
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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TiBoBi
Regular Member


Date Joined Mar 2008
Total Posts : 89
   Posted 5/8/2008 3:57 PM (GMT -7)   

Hi,

My tremors occur whenever I change my meds. I discussed it with my doc at one point and although it was noted, it was not a concern since they always seemed to disappear two to three days into the change. I don'[t know if you change your meds a lot but just wanted to toss that out there.

Ti


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 5/8/2008 4:16 PM (GMT -7)   
Mine occur when I'm tired out or haven't eaten in a timely manner -- they come one day and are gone the next morning after a good sleep - at least for the most part. I guess if they stay around for 3-4 days or more I'd be talking to the dr about 'em!

Hope yours clear up quickly by slowing down a little....

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 5/8/2008 8:35 PM (GMT -7)   
HI Hippi,
 
Oh man, I know what you're talking about.  i get tremors that just pop up out of nowhere sometimes.  Mostly I notice them when I'm on too much prednisone.  That's my indicator that I need to taper down a bit.  I don't know if it's neurological or not.  Hard to know isn't it. Or could it be neuropathy?  i know that is connected to lupus.  Wish I had more input for you.  It is annoying.  I can relate.
 
Take it easy!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 5/9/2008 6:54 AM (GMT -7)   
My daughter and I both have them. I have lupus but she doesn't. The neurologist calls them essential tremors and says that they can occur independent of any other health issues Hope you get an answer to yours.

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 5/9/2008 6:56 AM (GMT -7)   
I didn't think about it maybe being neuropathy - I'll have to look into it. I also didn't relate it to the food thing either, but that's possible. I know that I've been so busy I haven't been eating as regularly as usual and sometimes wait longer than I normally would to eat. I'm sure that at this point it's nothing to worry about because it's not happening all the time. Thanks for the input.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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cindiago
New Member


Date Joined Apr 2008
Total Posts : 4
   Posted 5/9/2008 2:06 PM (GMT -7)   
Hi! cindiago here. I have tremors when I get stressed or am very tired. Today am having pains in my head like I have never had before, keep wanting to fall on my face, plus my face is numb. This MS sure is hard. Diagnosed in March 2008. 
Hi! My name is cindiago and I am very new to Healing Well. I diagnosed with MS. Having a hard time with the mential and physical changes of it all. Have always been very active and MS sure slows me down, not to mention how my capabilities have become so limited. Depressed very! Then I found this forum. Think it will help a great deal to talk to people that also have MS and I will have a better understanding of what I am dealing with. 
 
        God Bless you all!


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/9/2008 4:30 PM (GMT -7)   

Hi hippi, I was wondering how long you would be running around like a crazy woman before you started having problems! nono I know you want to be there for your kids but you got to be there for yourself first. I'm like Lynnwood. If I don't eat or am extremely exhausted I shake like crazy. When I was in the hospital and the nurses would help me shower by the time they got me to bed my hands were shaking like crazy. Then when I was coming home from the hospital I got into the house and I was again shaking uncontrolably. You really need to keep in mind that even when we feel  well we are in a constant battle with our body. That's how come we go down hill so quickly. Any little thing that tips the scales against us will have a negative effect. Even if we think we can skip lunch or a nap or maybe just one more thing we can get done. Unfortunately our bodies don't work that way. It's not fair it stinks. It's a rotten deal and ........it's the way it is.This isn't just my opinion it's what my doctor told me.

Other than that I do have times when my meds get switched usually it's between vicodin or percocet that I get tremmers but they occure all over my body and not so much as shakes. Those would be like jumpy legs or muscles in my ribs and stuff would jump. The doctor did a CT scan and it was normal so there wasn't a problem there. I don't know if inflmation would show up in a scan or not.

Anyway I just thought I would jump on here and nag ya a little bit. LOL. I hope you get some rest and get a decent meal in ya. If that doesn't help than you need to see your doctor.

love ya

carol


God Bless
Lupus like symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4.,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/10/2008 4:19 AM (GMT -7)   
Hi Cindiago!!
Welcome to the forum!!!   Not sure you realize it . . . but you've landed in the Lupus Forum.   You are welcome to read and post here . . .  but here is a link to the MS forum, here at Healing Well. 
 
 
Blessings!
 

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 5/10/2008 5:53 AM (GMT -7)   
Welcome to HealingWell Cindiago. 
 
Carol,  I need a little nagging every so often and a reminder that I still have lupus and can't run around like a crazy woman for very long  tongue  .  I like to be in denial, but everything you said and what your doctor told you is all true and I really need to slow down a bit.  My daughter had her dance recital last night and then will have the second and last one tonight.  She's only 6 and is in 5 dances with lots of costume and hair changes, so she and I are very busy during the recital.  She's also worn out, but she's been a little trooper.  We will all need some down time after this.  I've been so busy I've kind of forgotten that I'm having my colonoscopy on Tuesday.  I'm glad I don't have much time to think about it because I'm really dreading it.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/10/2008 12:33 PM (GMT -7)   
AHHHHHHHHHHHHHH!!!! The dread prep!!! AHhhhhhhhhh!!! Just did that!! Ahhhhhhhhhh!!!

Sorry Hippie . . . LOL!!! I never had a hard time the three other times I did the prep . . . but this time . . . it was just harder . . . was sick to my stomach and . . . Akkkkkk!!! (I already had GI issues, so that's probably why it was worse this time skull )

Seriously . . . I hope your prep goes smoothly Hippie . . . then you get the nice "sleepy drugs" LOL . . . . Let us know how things go!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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