Anyone know what M.E is?

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SFnative82
Regular Member


Date Joined Mar 2008
Total Posts : 39
   Posted 5/8/2008 11:18 PM (GMT -7)   
I was reading about this lady who was diagnosed with lupus and actually had M.E(Myalgic Encephalomyelitis). The symptoms are the same...plus many more that I have and dont 100 percent sound like lupus. Like sudden allergies to meds and foods, knots in palms, swollen noids behind ears, toothaches, etc.
 
Does anyone else know anything about M.E? A lot of sites say it's "just" chronic fatigue which "just means you are always tired"( nono   not true)... I can't find much more.
 
Has anyone been diagnosed ,or misdiagnosed ,with M.E as well as, or instead of, lupus?
 
confused  
 
My doctors can't figure it out ...so I have to do this myself :)
 
Any info would really help...I am hoping to be diagnosed with anything at this point. I just want an answer so I can start treating myself the right way.
 
**I dream of a day when I won't be asked "how you doing ,today?" by everyone I know**
*jenn--#2*
 
 
Who the heck are "THEY" and why is everyone asking them these questions?
"THEY" sure do have a lot to say...


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10391
   Posted 5/9/2008 5:47 AM (GMT -7)   
Jenn, I'd never heard of this but it intrigued me, so I looked it up. Apparently it's caused by an infection. Don't know if you've seen these sites, but they do have a fair amount of info on them:

http://www.cfs-news.org/me.htm

http://www.name-us.org/

http://www.immunesupport.com/library/showarticle.cfm?id=7246&T=CFIDS_FM


Hope you can get some new information here on a very interesting condition.
Judy
 
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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 5/9/2008 6:59 AM (GMT -7)   
My understanding is the ME is another term for CFS - I think the two terms are pretty much interchangeable. I don't think a lot of people know a lot about CFS but it can be really debilitating. Some people brush this illness off and think it's not "real", but it's very real.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/11/2008 12:35 AM (GMT -7)   
M.E. and CFS are NOT the same. America does not seem to recognise either, but I am open for objection on that one.
M.E. is a very REAL illness. There is alot of information out there and I had to research too as I was dx it in the beginning.
You cannot have an autoimmune disease AND ME according to a world renound pro in Imperial college London UK for one is overactive and the other is underactive. That is how I went about looking into the autoimmune probs cos I already had crohns.
I will try and look up stuff but its all gone out now as it does not apply to me.
There is a foundation in Scotland, Canada (Nightingale foundation or summot, play around with the 'foundation' part when trying to find, I know it is called Nighingale something) and Big research is being done at Imperial College London UK.
ME has got a bad name for psychiatrists say it is 'all in the mind' and if you do lots of exercise, take anti-depressants and 'get a life' all will be fine, but the 'lots of exercise' bit can make people very much worse.
there is very strong physical evidence out there, lots of it, to point to an organic illness but governments dont like that, and the psych lobby are so powerful. Governments would have to do something and insurance companies too.
I think it is well worth researching, it may not be even discussed in America cos of the insurance/health situation there
All the best,
ann
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

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