anyone on Rituxan?

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momof2girls
Regular Member


Date Joined Jan 2008
Total Posts : 30
   Posted 5/9/2008 6:25 PM (GMT -7)   
I've been on a 6 month course of Cytoxan chemotherapy.  It hasn't been going well, and the last treatment landed me in the hospital last weekend.  I saw my RA today and we have agreed to discontinue cytoxan for now.  My dr is thinking of using Rituxan, has anyone been on it?  any comments on it?
 
thanks!
Lupus and Sjogrens Syndrome since 1995
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/10/2008 12:42 PM (GMT -7)   
Him M2G !!
 
I don't know anything about rituxan . . . but here are a couple links to recent topics about it. 
 
You can find more by using the "Search Site" tool at the top of the page.
 

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 5/10/2008 9:05 PM (GMT -7)   
I'm supposed to start it when I get done at Mayo, if I want to. Keep in touch and maybe we can go through it together at least. When I start, I'll post. I have liver disease and don't handle meds all that well, so bear in mind I may have exaggerated side effects that no one else would ever get. Hopefully it will have a positive impact on the liver.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/13/2008 4:11 PM (GMT -7)   
bump!! Up you go for b_dicola22.

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 5/13/2008 6:35 PM (GMT -7)   
Hi Momof2girls:

I took rituxan infusion back 2 years ago. I didn't have and issues receiving the infusion . They take up to 5 hours to do, some patients react poorly to the infusion. I did fine with the infusions just kinda felt like a had the flu the day of and day after the infusion. I had 4 infusions and I didn't feel like I was doing any better, and my Rheumy stopped the infusions, my platelets began to fall and he wasn't sure if it was the rituxan so we stopped the treatment.

That's all I can offer up, I didn't feel sick to my stomach or anything like that, just a bit tired. Each person responds differently though. Wishing you the best of luck.

Take care,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 5/14/2008 6:26 PM (GMT -7)   
Barbara Lee,
Can you let me know what kind of bad things you heard of? I am looking at starting it and with my liver being bad, I usually get bad side effects, though I'm hoping not since it's an injection. Thanks for any help you can give.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn

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