My glands in my neck

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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/11/2008 2:36 PM (GMT -7)   
Glands in my neck are AGONY, would they be infected, I have sjogrens.
Is it true that shoggies should stay away from antibiotics?
Tried to sleep for the past hour but had to go take painkillers
i can hardly move my neck. Its on the right and travels under my chin to right of centre!
Tis also bad on the back of the neck on the right.
Ann devil
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 5/11/2008 3:46 PM (GMT -7)   
Ann,
   There's a gland just under the ears at the back of the jaw called the parotid gland that will get dry with sjogren's and cause very sharpe pains to travel down the cheek to the mouth when swallowing. Does yours hurt constant or just when swallowing? When mine acts up I get a good size knot under the ear. Drinking lots of water usually helps mine.
   I hope this gets better for you. Keep us updated and take care.
                                                       Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/11/2008 3:54 PM (GMT -7)   
Hi Babo!
It appears the whole side of my neck is implicated. it does get worse at night but tonight it is unbearable.
I also cannot move head easily to the left, I think more than one gland is involved or sommut.
I am trying to drink!
I was out alot in very hot and dry weather today and didnt really do alot to help self.
Talked too much and only covered occasionally with a hat.
most of my body was covered though, just before I left the 'do' I felt very weak and began to sweat horribly so legged it home in the car, clipping sidewalks as I went.
Neck just got stiff and awful painful.
xAnn devil
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 5/11/2008 4:00 PM (GMT -7)   
Ann,
  I'm sorry this is so bad for you....((hugs)). If you are running a fever you may have an infection and need to get it checked out. Being out in the hot dry air all day may have put you in a flare or you picked up a bug. Hope you feel better soon and take care. You will be in my thoughts and prayers.
                                                                 Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/11/2008 4:09 PM (GMT -7)   
Babs I am awful at pacing and sleeping and when I am just over tired and do too much, talk too much, out too much in weather like this, the glands go awol but today it has been the worst.
I am just back from London UK on Friday and I have done too much already.
Went to school reunion today, met people yesterday and unpacked all my cases on my return on friday.
I have too, 'ants in my pants' which the docs in London say is connected to the autoimmune stuff so I find it hard to rest.
It is after midnight and I am mad to be here on the computer.
I have restless legs too and the soles are burning like hell, any point going to bed with all this!!!!!!!!!
xAnn nono
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 5/11/2008 9:04 PM (GMT -7)   
Ann,
I have sjogrens and have had a million neck problems. If you've ever had any type of head injury, dental stuff, ear infections, throat infections, they can alone cause neck infections under the skin, that are encapsulated in your tissue. They can abscess. Usually a leaking filling or crown is the result, but those with benign puncture wounds to the temple, like this guy who got shot in the temple with a nail gun, had neck infections for years. It is important to go to the doctor and get some antibiotics if your neck is swollen and heated and painful. Also, it is important that they make sure you don't have a stone in your salivary gland, which an ear nose and throat guy can get out with a wire type instrument. I've never heard anything about sjogrens people avoiding antibiotics, I have been told that I need to keep these throat infections under control. What has happened in my case is that sjogrens and frequent throat infections and infection from the head injurey and probably teeth too have caused numerous small infections throughout my life, my lymph nodes control them and get rid of them most of the time, but do to all the hyperactivity with chronic inflammationin my salivary glands, my lymph nodes stopped working well and began to hypertrophy, get hard, calcify and otherwise change. Though the changes were benign, they can become cancerous over long periods of time, and having sjogrens, you are at a much greater risk for lymphoma, and this is probably why. I have had both submandibular glands removed and the surrounding lymph nodes for the reasons you describe, though I underwent long trials with antibiotics, even IV antibiotics. The problem is that the areas inflamed are encapsulated by tissue and not well reached by the antibiotics. My ENT gives me superstrong doses of like 1000mg of penicillin, penicillin works well with me. He believes in zapping it with a strong dose right at the start to knock it out. I may be switched to something else if it doesn't work then he may come back and try the penicillin again later.

A CAT scan of your neck with contrast can show what is going on and help them decide what to do. I've been told that a sudden swelling (mine blocked my airway and made me talk brassy and hoarse) was a good reason to have this done. I would go in for the pain and try a strong dose of an antibiotic. Odds are, it will go away, but if not they can check it. The last time, they had to do a gallium scan to see the pocket of infection in the tissue surrounding my lymph nodes and salivary glands.

I'm sorry it's going after the parotid area, that hurts bad I know. Another reason to go in, pain meds. You may have an ear infection or something. A heating pad on the area sometimes helps me, sometimes putting a camphor based cream or ointment on the area, like tiger balm or ben gay takes my mind off the pain. An ice pack works sometimes too, whatever seems right. I would avoid really sour stuff till you see the doc.

I hope you have success getting rid of this. For me, every time this happens it just won't go away for months and months and eventually they take them out and biopsy them (my ENT says the needle biopsy is not sufficient because you may miss where the cancer is). Penicillin nearly fixed my last one, but the local pc doc prescribed too low a dose to start, then I was sort of used to it by the time they upped it.

I will pray you feel better. Take care. Marji
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/13/2008 9:03 AM (GMT -7)   
GP doesnt think its the salivary glands and I pressed teeth down on a spatula and they are fine. I am having teeth probs but the pain in neck seem to get worse towards night and it sort of creeps around t the front. Under ear to middle chin.
I start antibiotics ton ight.
No sign of letter from London so have not started meds for the sjogrens. GP has to wait on that.
I worry bout the lymphoma bit. Should I make an appointment with the endocrinologist who looked into my thyroid glands, I do have cysts there and thyroid is small.
xAnn devil
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.

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