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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/13/2008 3:52 PM (GMT -7)   
I would like to know, in general how often people on this site have blood work done, that is a full blood count and maybe odd ones thrown in for the particular conditions one has.
If I ask for one every few months my doc raises eyes to heaven and says that I have just Had one!
What would be the norm?
xann
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/13/2008 3:55 PM (GMT -7)   
Hmm...I just started mtx so three weeks ago, one week ago, tommorrow, and two weeks later. I think it will then be once a month. That is CMP and CBCwDifWplt. Then SED and CRP at least every three months.
I don't have to ask for it I keep trying to get her to relax a little.
Sj

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/13/2008 4:07 PM (GMT -7)   
Depends on disease activity and meds I'm on. Right now . . no routine blood work. At times, I had it done for every office visit (every 2-4 months).

BUT lots on this board are in the US . . . docs are less conservative with insurance paying their fees. So you might have a different level of care. Ginny is in Canada and has lots of blood draws . . . and that IS socialized (government based) medicine. So I think it varies from country to country and hugely from doctor to doctor.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 5/13/2008 5:51 PM (GMT -7)   
Ann, I see my rheumy every 4 months and she draws blood (CBC, kidney, liver, SED, anti dna, etc) and then again in between appts (CBC and liver function) to monitor my lupus and because of the meds I am on. So, it's every 2 months for me.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 5/13/2008 6:26 PM (GMT -7)   
Hi Ann:

I get my blood tested every 2 weeks. I normally have a cbc with differential, SED rate and CRP checked at the sametime. I rarely have my ANA and such checked except for maybe once a year. My dcotors solely work off my cbc and inflammation markers.

Hope this helps some.

Take care,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 5/13/2008 7:39 PM (GMT -7)   
Hi Ann,
 
I get my blood tested once a month.  The tests are CBC, ESR, ALT, ALK PHOS, GGT, urine.  If I'm in a flare up, I get it tested every 2 weeks to monitor everything and make sure my prednisone is working. 
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 5/18/2008 3:56 AM (GMT -7)   
I get my blood test every 3-4 months
PLAQUENIL, FLEXERIL, CELEBREX, CYMBALTA, BENICAR, ALLEGA, SINGULAIR, PROSCAR, LEVITRA, METROGEL, PORTONIX, NASACORT, CALTRATE-D, CENTRUM AND CREAMS
Enjoy what you can today and leave the rest for another day.
 
Frank
 


brandichi
Regular Member


Date Joined Oct 2006
Total Posts : 21
   Posted 5/20/2008 7:42 AM (GMT -7)   
I usually get my blood test every 3 months, depending on how I'm doing. Right now I've been in a major Sjogren's/lupus flare for over a month, so I've had blood drawn a lot. Have to go back in June, and again in July.
Diagnosed with SLE, Sjogren's, RA, Hashimoto's, Reynaud's, gluten intolerance - all 2006.  Elevated liver enzymes, no diagnosis yet.  Mild asthma and allergies.
 
Plaquenil, Armour thyroid, Foradil, Pulmicort, Lovaza (prescription fish oil), Evening Primrose Oil, Multivitamin, Vitamin D, Vitamin B12.
 
Eating healthy foods - no processed foods, no sugar, no flour, no caffeine.  Lots of good protein, vegs, healthy oils, fruit, and healthy carbs.  Down 70 pounds so far and counting!
 
"Nothing can disturb the calm peace of my soul." - Unity affirmation

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