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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/14/2008 1:06 PM (GMT -7)   
Glands in neck still bad. GP say it doesnt seem to be saliva glands.
Started antibiotics but they are penicillin and have been really ill today with diarrea and very weak overall.
No sign of reports from London UK so still have not started on sjogrens meds.
No sign of applying for a rheumy here in Dublin, waiting for report and then will have a waiting time to get on the list.
I felt absolutely ghastly.
Pain, funny pain in right lower back.
taken stuff to make sure I dont get depleted of potassium etc.
I look grey.
xann sad
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/14/2008 7:18 PM (GMT -7)   
Too bad you didn't have copies of the reports, it could speed things up.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/14/2008 7:46 PM (GMT -7)   
I hope you get help soon and begin to feel better.
Sj

Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/14/2008 10:21 PM (GMT -7)   
I asked for copies before I left the country but was continually told that they'd be sent to the GP. It could take a while too as their health service is just as chaotic on the lower levels. they do have the finest doctors but the rest seem to be in chasis.
Yesterday the community physio manager came out and said that they had no physiotherapist in the community who could actually work on me, all they could do was set a programe and moniter me.
My area health board is the second biggest in Ireland and they dont have a bench set up to work on the people who need the intense physio!!!
Oh, if I want even that physio I have to 'buy into a package' to attend a day centre for disabled persons and have their manager come out to my home, for what I do not know. I told the physio yesterday that was an infringement of my rights of privacy to have someone come to my home for absolutely nothing.
xAnn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 5/15/2008 7:04 AM (GMT -7)   
Hi Ann,
 
I'm sorry you're feeling so poorly.  For a while there you seemed to be doing so much better.  Your postings were so positive and happy.  I hope the copies of your reports come to you very soon.  Sometimes it can take a few weeks for those to get made up and then mailed out.  Happens that way here in Canada too.  Everything seems to take too long....
 
Big hugs,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/15/2008 2:38 PM (GMT -7)   
Yeh, Ginny, I think I have jet lag!!!! from a 40min flite!
I just didnt know what I was coming home to and before I left I was getting niggling pains in my right lower back, kidney area and also in my neck. The neck flared almost immediately and it is still bothersome and my ears are also painful.
I do have gum disease from the sjogrens and I never had good teeth but they are all loose now and a front one comes out next week and they will only give me a denture for the one and I know I will be distress by that. They wont give me an implant. Too costly.
But one dentist secretary says that they wouldnt anyway cos of the sjogrens, but I thought shoggies shouldnt be given dentures cos of the threat of ulcers due to dry mouth.
I am a bit low at the slowness of starting meds and also the GP now writing immediately to a rheumy to see if they would take me on.
I rang today to ask for bloods tomorrow and she asked Why? I had come a cropper and wanted to see if some of the bloods were up.
She was very reluctant to do em.
My glands are sore, I stopped the antibiotics after a day, I couldnt tolerate em.
She is giving me a milder one tomorrow.
I find the exhaustion extraordinary.
By late morning I cannot keep my eyes open and dont want to do anything but sleep, I just cannot understand it really and have a lot to adjust to, but ~I so much want to do the old photography big time.
Your pics Ginny are just so fab and so inventive and important to the people you shoot, (metaphorically)!
xAnn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.

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