Malar Rash - Direct Treatment?

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Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 5/15/2008 2:55 PM (GMT -7)   
I currently seem to have red bumpy irritation on one cheek, and was reading up on malar rash.

Although I know it is symptomatic of lupus, I've never heard of anything that actually relieves the symptoms or appearance of the rash itself. That's what I was looking for.

I found the article at www.arthritis-pain-cure.com/lupus-butterfly-rash-a-72.html interesting, particularly the bit where they explain the shape of the rash!

The article said...
To prevent the lupus butterfly rash from occurring, the you should be sure to wear protective clothing when outdoors, wear a wide-brimmed hat, avoid going out in the sun when the sun is at its hottest (between 10:00 a.m. and 2:00 p.m.), always wear a wide spectrum (protects against UVA and UVB rays) sunscreen of at least an SPF (sun protection factor) of 30 whenever you go outside, and use sun shades for windows.


Has anyone ever received information on prevention or treatment of the malar rash itself?

I also just found out that my rheumy has been documenting it in his notes for years, yet my dermatologist has never been able to identify the rash.

I'd love to hear what you folks have been told or have found out about malar rashes!

Thanks,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 5/15/2008 3:15 PM (GMT -7)   
I know my rash comes out when I am ill, tired, flaring, or spend more than 5 minutes outside during daylight. I have never found anything to make it go away unless it is caused by being overly tired.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 5/15/2008 3:26 PM (GMT -7)   
Hi Lynwood,

My first rheumy took pictures a couple of times of the malar rash and my hands, for my file.

My derm warned that some topical steroids are too harsh for the face . . . just a thought in case you go to a cortisone cream. I had one for the face and a stronger one for the back of the hands. Although my main reason for the cream was extreme itching (which was only on my hands and V of neck). Since I've been taking plaquenel and staying out of the sun, I don't have issues with the itching very often.

Hubby "likes" the malar rash . . . because it gives him a visual of how I'm feeling. Sometimes he can tell me I'm headed for trouble before I actually flare, because of the malar rash blooming bright!

With yours acting up on one side, I would also wonder about laundry products on your pillow case.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 5/15/2008 4:04 PM (GMT -7)   
Hahaha! If you only knew how much I roll around in my sleep!!!

An additional point I found interesting is the rhuemy only noted it as being on my nose...he never mentioned to me before (this is my ill dr who I tracked down so he could interpret his handwriting for us) and I never knew I had it!!!

This is now the second time in the last 3 months where I have some on the cheeks -- 1 inch circle on right cheek now. Last time the same 1 inch circle on right cheek, plus 1.5 inch circle much higher & further from the nose on the left check.

I think I'm dumping this new (and by-the-labs-only) doctor and heading for one my prior Great Dr recommended today. Dr #2 didn't even noticed rash on Tues, when it was most prominent and in my symptom list. No, I don't think that, I WILL be changing. LOL.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 5/15/2008 6:31 PM (GMT -7)   
!!!!!!!!!!!!!!!!!!!!!!!!!

You go girl!! I think that if we don't have confidence in our doc, it is just one more frustration to deal with. You REALLY gave him a good shot at this.

Glad you were able to track down sick doc and get a referral. I hope you don't have a 5 month wait to see him/her.

I'd love to know what you find out.

Hmmmmm maybe you have some discoid lesions?????

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


gloryroad
Regular Member


Date Joined Oct 2006
Total Posts : 193
   Posted 5/16/2008 7:16 PM (GMT -7)   
My malar rash is usually just flushing but in February I started having bumps and scaly areas on it. The dermatologist prescribed protopic and it worked.
Gloryroad


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 5/17/2008 11:09 AM (GMT -7)   
Thanks, that's what I was wondering about....didn't know if such a thing even existed. Thanks a lot! I will now be able to look it up and ask my rheumy & dermo about it.

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 5/18/2008 7:26 PM (GMT -7)   
Hi Lynnwood--
I have used protopic on my malar rash and it didn't help, actually it made it worse to some degree and if you get too much on you can get a nasty headache and hot feeling. I also have triamcinalone, a steroid, but since I have some broken blood vessels that get worseon steroids, I don't want to use it continually, though I have used each separately and together with no real good change. One thing that has worked temporarily is Noritate, a 1% metronidazole cream used for roseacea and broken blood vessels. I imagine it isn't much different than what you buy over the counter for yeast infections. It works within minutes of putting it on, but only lasts for a few hours. I put it on at night, and in the morning my deep poors are cleaner and my face is red and oily, which is good for me, since it is usually dry and scaly with orange peel type skin with clogged pores. It seems to help my pores drain and I don't get lumps. The whole rash doesn't go away, but it decreases it some and does seem to improve my face by cleaning out my pores. it is also effective on the broken blood vessels. While it doesn't make them go away completely, they shrink and become less visible for a few hours.

It doesn't always work for me, but often it does and it improves my overall skin condition and the appearance of the broken blood vessels somewhat. Overall, the plaquenil has helped the most.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 2/14/2009 12:18 PM (GMT -7)   
glory i was wondering when you get the flush how long does it tend to last? A friend said my rash earlier today which was caused by stress/emotional upset was a reddish-purple on my nose and cheeks. I have not been dx with lupus but have other symptoms and am going to drs etc. The rash never seems to last more than a few hrs but it also depends on what is causing it...for example if its the sun it will stay until i go out of the sun for a while. Anyone else have this happen? I have heard the rash stays for a few days at least with lupus. Just curious. Mine is a flush too but I feel the warmth and burning from it. It does not itch or hurt. I have seen it on my arms and chest as well. Comments, suggestions? Thank you. -Brit
*Wifey & Mommy*


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/14/2009 1:11 PM (GMT -7)   

Hi lynnwood we had a conversation about a rash a while back don't know if it will help but here it is

http://www.healingwell.com/community/default.aspx?f=29&m=902716

it also mentioned aveeno oatmeal bar which I saw mentioned on the national lupus forum too. It seems to help quite a bit. If it's not what you're talking about please forgive me I'm a little confused right now.

hugs


 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 


Light Eyes
New Member


Date Joined Jun 2010
Total Posts : 1
   Posted 6/25/2010 5:56 AM (GMT -7)   
Hello I'm new to this whole lupus thing and I have lots of questions for anyone that is going through what has currently turned my life UPSIDE DOWN!! I was diagnosed with lupus about 3 years ago.  They put me on all kinds of meds that just made me sick, so I stopped taking them.  Didn't take anything else or have any kind of symptoms until January of this year.  Now all of a sudden (I'm guessing) I'm so tired I can't get out of bed and take a shower without having to lay down afterwards for at least 30 minutes.  Now on top of that I have Raynaud's like something terrible.  My fingers are soo blue and numb/tingly they hurt all the time.  My first question is how do you know when your in a flare up and when its over? I've been in one for 3 1/2 months now and I still feel horrible everyday.  Please let me know how I can deal.  Thanks :-)

Post Edited (Light Eyes) : 6/25/2010 7:00:05 AM (GMT-6)


dreadmommie
New Member


Date Joined Jul 2010
Total Posts : 1
   Posted 7/14/2010 7:39 AM (GMT -7)   
I use protopic because my rash get really bad.....before starting protopic the rash would do serious damage to my skin cause the lesion would get really deep and leave me with awful ulcers and deep tissue scarring on my nose. Now if I apply the protopic at the first signs of the rash it cuts down on the spread and intensity of the rash.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 7/15/2010 5:35 AM (GMT -7)   
Light Eyes said...
Hello I'm new to this whole lupus thing and I have lots of questions for anyone that is going through what has currently turned my life UPSIDE DOWN!! I was diagnosed with lupus about 3 years ago.  They put me on all kinds of meds that just made me sick, so I stopped taking them.  Didn't take anything else or have any kind of symptoms until January of this year.  Now all of a sudden (I'm guessing) I'm so tired I can't get out of bed and take a shower without having to lay down afterwards for at least 30 minutes.  Now on top of that I have Raynaud's like something terrible.  My fingers are soo blue and numb/tingly they hurt all the time.  My first question is how do you know when your in a flare up and when its over? I've been in one for 3 1/2 months now and I still feel horrible everyday.  Please let me know how I can deal.  Thanks :-)

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 7/15/2010 5:38 AM (GMT -7)   
I tried to bump this for our new member, but obviously I don't know what I'm doing. Anyway, welcome Light Eyes!
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease. Cellcept and lots of other meds.  Donna 


Frankie27
New Member


Date Joined Apr 2011
Total Posts : 1
   Posted 4/30/2011 12:24 PM (GMT -7)   
I have been using protopic for about a year on my face. It doesn't seem to help with an already active rash, or to keep the redness down in between flares. The last time things got really red, bumpy, and itchy, my doctor prescribed Elecon (a topical steroid) and it worked really well. I don't like using steroids since they have some nasty side effects (skin thinning, etc.) and they usually don't work for me, but I was desperate! I used this one for 1 week, 2 times a day, then took two weeks off (I was supposed to continue again for 1 more week if the rash hadn't gone away). The rash went away within the first week and it's been almost a month before coming back. I'm going to try it again for a week and see what happens.
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