Hi Bee, I'm sorry you are going thru that. Do you take steroids? sometimes that seems to help a little bit. I have some of the same problems. Maybe if you use a chair and a shower head that you can hold on to. I have those and it does seem to help. It also happens by the time I get dressed. I usually have to tak the shower the night before and get my clothes ready. That way when I get up and dressed which takes about 2 hours I'm not too tired. I know it's rotten. Seems like we have to always plan so far in advance. I love to have people over or dinner on sunday but in order to do that I start somthing in the crock pot friday over night. Make everything to go with it and satrday and than heat up the crockpot sunday while I'm at church. If I am really pushed to get something done I will take an extra 10 mg. of predisone. The doctor ok'd it. I don't do that often though because I hate the side effects. Unfortuately it's one of those things we have to either listen to our body and rest or not listen and get sicker. I hope you can find a way to adjust your patterns so it won't be so hard on ya.
Hey Doodlebee !!!
Sorry you are so whipped! Isn't that just awful?
Have you ever read "The Spoon Theory" . . . explains it very well.
Some hot tea for you sis!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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You know you might have Lupus when. . . .
Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions