Taking a shower

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doodlebee
Regular Member


Date Joined Mar 2008
Total Posts : 60
   Posted 5/16/2008 4:32 PM (GMT -7)   
The fatigue is starting to get bad again, and the first place I notice it is the shower. It's been like that for years (before I knew anything was really wrong with me) — the shower completely zaps me, and I have to lay down for awhile afterwards. I'm just wondering if it's like that for you all too, and what is it about the shower? It's so frustrating because any time I get ready to go anywhere or do anything, I'm too worn out. I used to think it was because of my tachycardia (fast heart beat), but medication controls it pretty well, so I don't really think it's that.
~ Bee

God is the strength of my heart! - Psalm 73:26


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/16/2008 5:44 PM (GMT -7)   

Hi Bee, I'm sorry you are going thru that. Do you take steroids? sometimes that seems to help a little bit. I have some of the same problems. Maybe if you use a chair and a shower head that you can hold on to. I have those and it does seem to help. It also happens by the time I get dressed. I usually have to tak the shower the night before and get my clothes ready. That way when I get up and dressed which takes about 2 hours I'm not too tired. I know it's rotten. Seems like we have to always plan so far in advance. I love to have people over or dinner on sunday but in order to do that I start somthing in the crock pot friday over night. Make everything to go with it and satrday and than heat up the crockpot sunday while I'm at church. If I am really pushed to get something done I will take an extra 10 mg. of predisone. The doctor ok'd it. I don't do that often though because I hate the side effects. Unfortuately it's one of those things we have to either listen to our body and rest or not listen and get sicker. I hope you can find a way to adjust your patterns so it won't be so hard on ya.

hugs

carol


God Bless
Lupus like symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4.,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 5/16/2008 6:40 PM (GMT -7)   

Hey Doodlebee !!!

Sorry you are so whipped!  Isn't that just awful? 

Have you ever read "The Spoon Theory" . . . explains it very well.

http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

Some hot tea for you sis!

Blessings!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 5/16/2008 6:53 PM (GMT -7)   
Hi Bee,
 
Yes, yes, yes.... In my early stages of diagnosis, I had a horrible time with taking showers.  The fatigue, dizziness, etc, made it pretty much impossible.  So I resorted to just having baths and washing my hair in the tub.  At least then I could sit down or lay down.  It was way easier on me.
 
I truly know what this is like for you.  Try a bath instead.  So much more relaxing too.
 
Blessings,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Snickerdoodle
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 5/16/2008 11:22 PM (GMT -7)   
I have a funny thing.....well I guess it isnt funny... I lay down in the shower alot of days! Its faster that waiting for the tub to fill, and the water stays hot, and I can just sit firward to rinse my hair. Most days I sit in there and brush my teeth and put my contacts in. On really bad days after my shower in the morning and sometimes go take a nap with my robe on and towel still on my head. (Good thing I work afternoons!) If you checked out that site that Rosie posted, there used to be another link on there that says something like "You know you have a chronic illness if....." and that is one of the ones listed. "I lay down in the shower....If I bend over to tie my shoe I think about what else I can do while I am down there......" You get the point. As sad as it is true it still makes me laugh. I guess sometimes thats all you can do!
I started Plaquenil about a year ago and I have noticed a huge difference in my energy level. Bee, Do you take Plaquenil ? Or any DMARD? I wish you (and all of us) lots of energy!
 
Melissa
Dx: UCTD,Raynaud's,iron deficientcy anemia,proteinuria
Rx: Multi-rec folic 500, Celebrex 200 mg, Plaquenil 400mg, Ultram PRN


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 5/17/2008 4:48 AM (GMT -7)   

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 5/17/2008 7:15 AM (GMT -7)   
You guys reminded me -- about a year after I first got sick I would get up, take a shower, eat a little, and go back to sleep for 3-4 hrs. Then did the same around lunchtime w/a 5 hr afternoon nap. Was a little more awake for the evening, but no spare energy at all!

I'd forgot about that stage....but with some good medical care, it can & will get better. It has for me.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 5/17/2008 12:14 PM (GMT -7)   
If I get in the shower with hot water it will drain me like that. I have to take a warm or cool shower.
                                                                  Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/18/2008 3:22 PM (GMT -7)   
Bump!!

Up you go for Gretchen!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/19/2008 12:29 PM (GMT -7)   
Showers freak me now, not only the fatigue, standing (which I cant do) and all the things mentioned but the spray of water on my head and body is a shock now, it sort of hits unexpectedly! It makes me a bit disorientated and nervous, as if, can I get away from this quickly.
I go for the bath every time.
the DRYING of my body and all the stuff afterwards is a nightmare.
I think the bit about lying in a shower might be quite fab really, must try that, at least I wouldnt feel I'll keel over!
All the best you clean luppies!
xAnn nono
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


doodlebee
Regular Member


Date Joined Mar 2008
Total Posts : 60
   Posted 5/19/2008 2:11 PM (GMT -7)   
Thanks, everyone. At least now I don't feel quite so alone with the shower fatigue. Normal people cannot understand it, and I really can't expect them to. Sorry it took me awhile to respond back to you. I get overwhelmed sometimes, even with just keeping up with posts on message boards.

I will have to try the bath instead of showers. The showers just seem quicker, but with the non-existent water pressure and the fatigue afterwards, the bath would probably be better and quicker. Lying down in the shower is not really feasible because the shower is square and not really big enough and the sprayer is way too high to reach. But the shower chair could work! I don't have one right now, but it's something I'll definitely keep in mind.

It would be nice if I could take my shower or bath at night and then just get up in the morning and get ready, but my hair gets oily too fast and really needs to be washed each morning. It's getting less and less oily as I get older, though, so maybe one of these days I'll be able to wash it at night instead.

Right now, I'm not on oral steroids, but the doc did give me a steroid shot last visit. It lasted about a month but seems to be wearing off now. The pain and fatigue have started getting bad again. Yesterday I got up and went to church and then came home and slept all afternoon until it was time to go back for the evening service. I'm scared of steroids and really dread ever having to take them, but I guess you have to consider quality of life and weigh that against the risks.

The doc also started me on Plaquenil, but since it's only been a month, it probably needs more time to start working.

Oh, and thanks for those links, too. I had seen the spoon story but had not seen the other one yet. Those are both great. :)
~ Bee

God is the strength of my heart! - Psalm 73:26


TiBoBi
Regular Member


Date Joined Mar 2008
Total Posts : 89
   Posted 5/19/2008 9:31 PM (GMT -7)   
I don't know if it is the heat from the shower or what but after my morning shower I go back to bed for 20 min. This has helped a lot. I don't fall asleep of course, but it gives me a chance to wake up slowly and to "ease" into the hair drying routine which always wipes me out. I am usually able to get right up and go after that 20 min break.

It's strange.. I always feel so alone and isolated when I have to deal with my everyday stuff but then I come here and see that so many of you experience the same issues. It does make me feel a bit better knowing that others are going thru the same things. At least there's that.

Ti

mamamuse
Regular Member


Date Joined Dec 2006
Total Posts : 102
   Posted 5/21/2008 8:55 PM (GMT -7)   
I haven't been to the board in a while, but I'm so glad to hear you guys talking about this! I always wondered if it was just me! The only other time in life that this ever happened to me was when I was pregnant.

Don't think I'm gross, but I only shower every other day for this reason (sponge bathe on alternate days). I've started taking my showers before bed instead of in the morning, so that I don't have to do everything all at once (bathe, shampoo, condition my hair, dry off, put on make up, style my hair, get dressed...by then I'm TOAST if I'm anywhere near a flare). It helps to split it up like that, and when I have the shower sleepies, I can just blow dry my hair and go to bed for the night.
Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain

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