Just stop already!!!!(rant)

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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/16/2008 6:39 PM (GMT -7)   
How can you have 4 different doctors, 3 of which are rheumies and have 4 different DX's? How come that's all I want to know. I mean didin't they have to past a test to graduate? How could they have all past the test? Obviously at least 3 out of 4 are wrong! confused . I feel like a dag gone gunea pig! It's this ,it's that. take this, take that. Don't take this- don't take that.
I even had an EKG done wenesday. Doctor had to look at it sideways because that put the wires on backwords. I just want to pretend like this isn't happening. Stop all this stupid med. 24 different meds. Not 24 pills but 24 meds. it's rediculous. What is that doing to my body? I sat out in the car waiting for a friend at wallmart because I was too exhausted to go in. I watched all these people walk by that seemed so happy and healthy and not worried about the sun or the aches and pains or being tired or trouble breathing. Boy was I jealous! Life is just passing me by. Is this all there is to it? I guess your supposed to beleive that every day your suckin air is a good day. I respectfully disagree.
Don't mind me I'm just having a Poor Carol day. Don't ya just hate healthy people sometimes? Especially when they don't get it. When they don't appreciate being healthy? I'm sorry I'm just having a bad day. Now to top it off my stupid eyes are burning like crazy from crying. They don't normally do that. If it's another symptom I swear I'm gona tear em out of my head!
ok I'm done. Hopfully I'll walk away from here feeling better. Hey it beats kickin the dog!
love ya
carol
God Bless
Depends on which rheumy you ask! stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 5/16/2008 7:03 PM (GMT -7)   
Hi Carol..... Honey.  Your rant or, well, let's say it in a different way.  Your frustration, is valid and we understand..... Remember that crap I went through last summer with that drug allergy?  Yeah, you and I were in really bad shape at the same time.  I get it.  I get what you're feeling.  I'm feeling it right now too.  I don't know if it will ever end.  Let's be honest right!  We just don't know what tomorrow is going to be like. 
 
You have reach for your faith.  This is the time you need it most.  You know that.  I know you do! Talk to him.  Lots.....
 
I did the "sitting in the car while hubby went into Walmart"  a couple of weeks ago.  I couldn't handle the extra walking around, and those dang fluorescent poison lights.  I sat in the car.  I thought the same things you did.
 
I also make sure that my loved ones don't take their health for granted.  It kills me when I see them not go to a doctor's appointment because they "just didn't feel like it this year".....  One trip to the doctor in a year, and they blow it off..... What I would do to see a doctor just once in a whole year.... Makes me want to cry too.
 
I'm sending you hugs and reassurance tonight Carol.  Cry your head off if you need to.  Just don't tear your eyes out please, LOL!
 
Love ya sis,
 
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 5/17/2008 12:08 PM (GMT -7)   
(((Carol))),
    We understand your frustration sweetie!! You rant, rave, cry, scream or do whatever you need to do to get it out.
    I'm so sorry your going through all this mess with doctors. You don't need that stress at all.
    I think we are all guilty of looking at healthy people in a different light when they just don't know how lucky they are. I really get down during the summer months when everyone else is out having fun in the sun and I'm inside looking out. It can be so overwhelming at times!!
   Carol, you hang in there sweetie and take care. You have many friends here that truely understand. Update us when you can. You are in my thoughts and prayers.
                                                     Love, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 5/18/2008 6:36 AM (GMT -7)   
Carol, you have so much going on, you have every right to vent. You had a lot to take in after the appointment with your rheumy and hearing all of that and trying to sort it out has to be emotional. We're always here for you Carol, just like you are always here for us. You are in my prayers.

Love and hugs,
hippi
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/18/2008 3:27 PM (GMT -7)   
Carol, it can't be ANY consolation to know that your rant/frustration spoke of and to me at the same time. I know EXACTLY what you are saying and if you dont mind me saying so, you say it eloquently believe it or not. You say it the right way. The Truth!!
Carol I hope things are a little easier soon, you deserve it. You wrote a piece that was a big part of your heart and soul.
Hugs,
Ann
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 5/18/2008 3:45 PM (GMT -7)   
(((( carol ))) bless your heart, you have been through so much. If you can't vent to us then who???? We all understand what you are going through, you are NOT alone. I just pray the doctors can give you a correct dx and get you on the right cocktail of meds. I know when this happens you will begin to feel better, of course it will take time but you won't be taking one step forward and 2 steps back.

You are right, people do take their health for granted. I watch people all the time eating what they want and doing and going where they want, with no food or physical limitations and it sometimes overwhelms me too. Another one, is when I hear people talk about how tired they are..... if they only knew what kind of fatigue we all deal with I don't think they would ever complain again.

You hang in there sis, lean on us and the one you put your hope, faith and trust in. Love ya!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/18/2008 6:25 PM (GMT -7)   

Thanks everyone, Sending you al huge hugs. I'm sorry you all have to deal with this same stuff but I know if I rant here you will understand. I'm feeling better today. I got an email from my nephew in Iraq and thought I would share a little with you. I figure if I can cry to you I might share a laugh or two with ya too.

Anyway here's a little of his email to me:

thanks for the heads up will  keep that in mind. just so you know i'm still alive although i fell out of my top bunk the other day and bruised my stomach. do you think i'll get a purple heart? lol. you never know with the army these days. love you very much still looking for you online. talking to all these  girls that want my goods is cool, but catching up with my aunt is much better.

I emailed him back that he probably won't get a purple heart but maybe a purple belly button! tongue

Anyway I hope you got a laugh out of it. You have to picture him. He's 6'4' and a string bean so when he mentioned all the girls I got a chuckle out of that too.

 

thanks again

love ya

carol


God Bless
Depends on which rheumy you ask! stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


starzphalling
Regular Member


Date Joined Jul 2006
Total Posts : 82
   Posted 5/19/2008 12:06 AM (GMT -7)   
i soooo understand the doctor frustration, makes you wonder doesn't it, D's aren't the same as A's but they still get your degree apparently. Trust me once i have perfected a full body transplant, you will all be the first to know! ( i have the feeling theres a better chance of me accomplishing that than some of these doctors listening to us). feel better :)
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