How do you get out of 'sick mode?'

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Ann Ireland
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Date Joined Apr 2006
Total Posts : 511
   Posted 5/21/2008 6:34 PM (GMT -6)   
What I mean is, I feel so sick now for years, all I seem to be is 'sick' think 'sick', act 'sick' and feel SO sick.
I really wish it would all go away.
How do you forget it, even if it wont go away?
do any of you actually feel WELL?
I never do now and I miss oh I miss feeling good physically.
xxann sad
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.

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Date Joined Jan 2005
Total Posts : 8616
   Posted 5/21/2008 8:57 PM (GMT -6)   
Hi Ann,

I have never had as many issues at one time as you are dealing with. I was stuck in a recliner for about two years. Went from being able to backpack 35 lbs for 11 miles, to vegging in the recliner and unable to walk even 1/4 of a mile on the recliner w/o causing more trouble.

I did find a way to help others. I had a telephone ministry (being there to listen to others who were lonely or sad . . . for hours at a time). I learned all I could about this disease and how to pace myself. The purpose of each med I was taking (9 different rx meds at the time) and I spent a lot of time at this forum helping others and receiving much needed encouragement.

I really feel like attitude gains me LOTS. It can push people away or cause them to gather toward me. I carved out time to rest and turned off the phone during those times, so that I could sleep soundly w/o interruption. I made sure to organize my pills into two weekly boxes and I made it my business to take them on schedule.

I found ways to feel productive (knitting and crocheting gifts, listening to books on tape, etc.). I took advantage of my few minutes of energy and they really do add up to a productive day when I use them wisely . . . . putz in the kitchen for 5 minutes, rest for 20, putz for 5 minutes, rest . . . and so on.

I found entertainment that thrilled me. Sunsets and campfires when I was up to it. These events got me outside but not in the sun. If we look, there are still many beautiful things in the world that we can be part of.

I'm sorry you are having such a very rough time. I'm not saying that you should do what I do . . . just answering your questions and hoping that you can find a little joy in each day. Sometimes, its just seeing a cute little bird on my feeder outside. Humming birds are back!!! YEAH!!!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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Date Joined Sep 2005
Total Posts : 2573
   Posted 5/21/2008 10:01 PM (GMT -6)   
For me, I spent several years basically bed-bound. Prior to that I had spent several years crawling during the winter to get anything done. I decided to take classes and to try and find an answer to what was wrong with me. My husband found the answers while reading in the doctor's office waiting room for yet another doctor to say it was all in my head. I pushed myself to do exceptionally well in school, found research topics I enjoyed, read a lot, and journaled online. I eventually found this site and got diagnosed. Once treatment started I thought it would all improve a lot more than I should have and I knew I was expecting too much. I have always tried to keep my mind busy on other things. Even when I couldn't do anything physically I did as much mentally as I could. I have no idea what will work for you because saddly what works for everyone is different and what works for one often does not work for another. A lot of it depends on personality. I personally think give all that is going on with you at one time and everything you have been doing all along that you are doing much better than I would be doing. I hope you find something to lift your spirits soon. Maybe keeping a journal of everything good that happens to you and every good thought you have. Sometimes counting everything positive/good in your life works for people.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec

Veteran Member

Date Joined Aug 2004
Total Posts : 1169
   Posted 5/24/2008 1:07 AM (GMT -6)   
ann i think-redrose and alwaysrosie have 2 of the best''ideas'' i have ever heard for ''downs''as long
as we can keep ''hope- our minds working and active- half the battle is over''on the really ''bad days''
just do alittle to make it through to the''great days''the days we can conquer and have will power
soak in a bubble bath,read a good book,watch a good movie,and try for alittle walk and alitte farther
till things look not so undoable---the postive is always the best in your life--just say tomorrow i will
try alittle more and feel proud of what you ''do'''god bless and keep positive''
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