Bad bad idea/got plaquenil script at last!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/22/2008 9:07 AM (GMT -7)   
Things were so bad yesterday that I lost it and threatened to throw myself in the brink if I didnt get the help I so needed.
Virtually no services here for me and no help from anyone really. I rang every politician in the area and said if something wasnt done for me they would find a body in the harbour!
I felt THAT bad and was weeping and wailing but gee, my zest for life is SO GREAT I'd never do that and i think it was more about that zest, and lack of zesti that made me make stupid comments, the police were at my door at least five times today to see if I was ok, I was out though, can you imagine the embarrassment.
I am finding it increasingly difficult to keep show on the road and having to do everything on my own with now one to help.

My plaquenil script came today! At last! I have been prescribed 200mg daily. from whats been said here it sounds little and I feel so poorly, but at least it is a start. The doc in London says I am a mild case!!
I wont blaspheme but if this is mild I hate to see a bad case!
I would love to know peoples experiences of this drug especially initially when they start it.
My sister wants to come over and get instruction on how to put pics on her computer etc. so I told my counsellor that I will cheerily say 'a lesson' for a chicken stew!' does that sound reasonable, this is the woman who says she hasnt time to make food for me.
I thought we might work a bartering system!

I feel a bit better right now after crying all day with my counsellor and feeling so awful. I feel physically awful but today my councellor told me about a place called 'the sanctuary' where there is a beautiful garden and a meditation room and also a place in wicklow called Chysallis which is a retreat centre.
I plan to try bring some peace into the equasion as everything is so full of anger, bitterness, regrets etc.
I need the time out.
xx for now.
marji if you read this I email you pics but they must have gone into the ether or else someone else got em. I shall try again now that I see you said you have put your email on your profile.
xx to ALL MY BEST FRIENDS HERE AND THAT IS ALL HERE!
Ann
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


Crystal Visions
New Member


Date Joined Feb 2008
Total Posts : 17
   Posted 5/22/2008 7:06 PM (GMT -7)   

Hello there. Wow you are having a hard time. I know how it is. I have been screaming for good health care here and threatened to jump in front of a truck, but I meant it. They almost locked me up for that. I was soo darn ill and couldn't get one ounce of help. I live by the ocean also and am wondering if we're in the same town. If you are in California, they have a program called IHSS and people come to your house, cook food for you and clean free of charge. You need to contact your local Social Services department and ask what kind of program they have like that. Most states do. You get to hire who you want or choose from one of their providers and the state will pay them directly. It has helped me alot.

Now, I know you love your sister but umm , that is just not right. I would not be helping anybody in your condition and by ALL MEANS people should be helping you. The sanctuary sounds like a nice place to go. I bet we all would love to join you :)

 

And I think I just gathered that you are overseas from me, but hopefully they have some kind of programs like here that can help you. Maybe someone in London would know. I'm sorry for the rambling but I am just trying to be helpful. I know how hard all of this is.

Luvs and hugs to you. I hope you feel better soon dear.


Lupus, Raynaud's, APS (cardiolipin), Protien c+s Deficiancy, COPD emphysema and who knows what else!
 
May The Lord Bless everyone that all have some relief of symptoms


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/23/2008 7:06 AM (GMT -7)   
When I first started plaq (200mgs twice a day) I found it was esential to take it with food and then eat at least every three hours or I would get motion sick. It only lasted like two months now I could take it on an empty stomach with no problems.
When the plaq first starts working it is pretty subtle. You won't notice a huge difference then one day you will do something and realize that you would not have been able to do it before. The fatigue will lift a little at a time and the pain will start to ease. It take time though and its subtle not dramatic.
I would definetly have her trade the lesson for some help-if she has time to download pictures...Also she is asking for some of your time and energy to help her so she can trade for some of her time and energy.
I hope you feel better soon. (Who decides what is mild-If your doctor felt what you are feeling would he still label it mild?).
Sj

Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/23/2008 7:14 AM (GMT -7)   
Thanks Sj,
Well I gave sis two hours lesson and notes.
She was aghast i had asked for the stew, but says I will get sommut in about two weeks as she has two big dinner parties, on with 28 guests and one with 20!!
xx Ann
In bed now at 3.15pm with a very numb right arm
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


Snickerdoodle
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 5/23/2008 11:25 PM (GMT -7)   
Ann,
I take plaquenil 200 mg/day. It is prescribed to me twice a day but my stomach cant tolerate it. I get cramping and sudden urges to have a BM. I have been on it for a year and I started to feel comfortable with it about a month ago. It probably didnt help that I caught C. Diff from some abx for a head cold back in Novemeber and I stopped taking plaquenil for almost a month because my stomach was so crazy. Even with the low dose I can tell a big improvement in my energy level. Still tired, still get wore out, but not as much as before. Maybe I can start taking it twice a day now! I hope that the Plaquenil starts to work soon for you, hang in there for the next few weeks. It may help your Crohns too. I think they give it for that too. I dont think I could get out of bed without my plaquenil and celebrex!

Melissa
Dx: UCTD,Raynaud's,iron deficientcy anemia,proteinuria
Rx: Multi-rec folic 500, Celebrex 200 mg, Plaquenil 400mg, Ultram PRN


Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 5/24/2008 8:01 AM (GMT -7)   
I could not take the drug.. on the third day of taking it my tongue swelled up and I wanted to claw my face......

Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 5/24/2008 12:43 PM (GMT -7)   
Hi everyone,
third day on the praqenil (oh, in time will know how to spell!!!)
I am tolerating it well, methinks, which is great so far.
A bit struggling with breath but I am very, very tired as been doing FAR too much of late.
xx Ann
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 11:17 PM (GMT -7)
There are a total of 2,732,413 posts in 301,016 threads.
View Active Threads


Who's Online
This forum has 151181 registered members. Please welcome our newest member, carol9.
250 Guest(s), 7 Registered Member(s) are currently online.  Details
Mews2much, desert bound, Serenity Now, Girlie, ggfgfgfdgfgdd98, pressurehead, Tall Allen


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer