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Regular Member

Date Joined May 2008
Total Posts : 57
   Posted 5/25/2008 4:53 PM (GMT -6)   
Hey Everyone. Does anyone ever get pain in their neck just below the skull? Also I have been experiencing bad back pain in my shoulders. Is this from the Prednisone, Lupus, or possibly something else? Im comming down on my Prednisone tomorow and Im not sure If I should just yet. Also I have taken Naproxen the past few days for the pain but it doesnt seem to be doing much.
Medications: Prednisone 20mg. Plaquenil 200mg. Naproxen.

Regular Member

Date Joined Mar 2008
Total Posts : 89
   Posted 5/25/2008 7:34 PM (GMT -6)   
I had this when my blood pressure was high. It went away almost immediately once they put me on pressure meds. My BP rises on pred so I am hoping that now that I am off of that, it will drop back to normal. Maybe go to the drug store to check it on one of those machines???


Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 5/25/2008 7:35 PM (GMT -6)   
I have arthritis in my spine and get this kind of pain frequently. Add in muscle issues and it is torture.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 5/25/2008 9:00 PM (GMT -6)   
Oh my. Yes.  I have arthritis in my neck that gives me terrible pain that isn't treatable with medication.  It's that bad sometimes.  I was having so much pain and problems moving my head around at Christmas that my doctor ordered xrays of my neck.  Turns out I have arthritis in C3, C5, C6.  I also have bicep tendonitis in my right shoulder.  Terrible pain.  The C3 is at the base of my skull, just where you mentioned your problems.  I'd get to your doctor and see if xrays are a good course of action for you. 
Just so you know, I started having neck pain issues in highschool.  20 years later is when the arthritis diagnosis came.  So if you catch it quickly and get into physio, you'll do much better than I have done.  Physio is saving me!!!
I hope it's not arthritis, but it's good to get it checked out just in case.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Regular Member

Date Joined Aug 2006
Total Posts : 142
   Posted 5/26/2008 10:45 PM (GMT -6)   
This has been a huge issue for me lately. I most definately have pain in my neck, since October its been terrible. It is exactly where you said it is, at the base of my skull. I sometimes get it between my shoulders but usually when I sleep funny or am super stressed. I have gone through 3 months of Physical therapy which only helped a few hours after therapy. I posted a few months ago about a chiropractor and if they actually helped. I started that after the PT and it didnt help either. Again it only helped a few hours after the chiro appt. Funny thing is the only thing that seems to help is a cold pack to my neck (funny its heat anywhere else) and I started sleeping with only a U shaped pillow. I think that has made the biggest difference. I also have been back to taking my ultram and tylenol since it started. I was only taking it at night before but since it started I am back to taking it around the clock.
So I have talked to my PMD and rhemie and they both insist it is some sort of pulled muscle. I didnt know that a pulled muscle could hurt this bad for over 6 months.........but I hope that you find a reason for this, and if you do please let me know! Maybe your doc will have better a better answer for you.
Take care & good luck
Dx: UCTD,Raynaud's,iron deficientcy anemia,proteinuria
Rx: Multi-rec folic 500, Celebrex 200 mg, Plaquenil 400mg, Ultram PRN

Regular Member

Date Joined Jun 2008
Total Posts : 88
   Posted 6/5/2008 5:20 PM (GMT -6)   
It could be lupus or pred, or something totally diferent. Be sure to tell ur doc what's goin on before u go down on the pred. It's important to keep them informed. You might also consider seeing a cardiologist - my neck pain was actually caused by heart problems. I know it's frightening, but it's best to talk to ur doc and catch these things sooner than later. They are much easier to deal with, medically. Good luck!
Lots of Love!
Lupus, Rheumatoid Arthritis, High Blood Pressure, Anemia, Congestive Heart Failure, Kidney Failure

Veteran Member

Date Joined Dec 2005
Total Posts : 1944
   Posted 6/7/2008 2:13 AM (GMT -6)   
I have a lot of neck pain, like redrose, and have had two surgeries. She's got me beat by far. Anyway, you can try putting a dab of bengay or tiger balm on your temples, massaging it in in a circular motion, and then at the base of your neck, to relieve the pain. This works the same way as that head on product. But a small jar of tiger balm will likely last you your entire life and cost about five bucks or so. You can get it in drug stores or healthfood stores. It is also good to put on itching spider/ant/mosquito bites and for general arthritis pain. It is concentrated and long lasting.

You should check with your doctor and I agree with the other posts about checking your bp. I have a cuff at home, we have practically a little nurses station at my house, so that if one of us feels poorly, we can know if it is due to high or low bp. I don't know if you are one in which your blood sugar is driving your bp up on prednisone, because that can happen. A blood sugar test kit is a good thing to have, some pharmacies will test your sugar for you along with blood pressure.

If you find it is muscular/arthritis in the neck stuff, then there is a new Voltaren gel that is quite effective for relaxing neck muscles. You may also get relief by putting a rolled up towel around your neck when you sleep or even during the day, holding the ends together with one hand to form a sort of a brace to give your neck a rest.

Traction helped me before my surgery and supposedly taking the pressure off the vertebrae can help degenerative arthritis heal and rebuild. There are home traction devices but I would suggest you get a diagnosis for the pain if it persists and go the physical therapy first where they can show you how to use it.

Neck pillows for travel may help during the day as well.

Of course, the above things only work for arthritis/muscular neck stuff. We tend to clench our teeth and tighten our neck muscles on pred sometimes and I think that causes my pain, when I get it.

A dab of tiger balm or ben gay on the spot might provide instant relief from the pain though, or at least enough to sleep.

Take care and I hope you feel better soon. neck pain is rotten.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn

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