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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 5/27/2008 10:25 AM (GMT -7)   
I feel like a big baby, but I'm completely dreading having my colonoscopy on Thursday.  I'm having it done because of the GI and stool problems I've been having to see if lupus is causing any problems or inflammation.  I know that a lot of you who have had it done said that the prep is worse than the proceedure, but for some reason I'm still really nervous.  I haven't really had to do anything like this.  I just keep telling myself that the proceedure will be just as easy as everyone says it is.  Supposedly I'll be sedated enough that I should pretty much sleep through it - I hope so!
 
Late tomorrow afternoon I'll start my prep(yuck), so I doubt I'll be online after that until sometime on Friday once everything is over and done with.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



JUSTONCE
Regular Member


Date Joined Apr 2008
Total Posts : 21
   Posted 5/27/2008 10:36 AM (GMT -7)   
iVE NEVA HAD ONE B4, BUT I WISH U THA BEST OF LUCK!!!!!

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 5/27/2008 10:39 AM (GMT -7)   
I haven't had one of those yet, so I share your apprehension! I haven't even been able to mention a minor, but ongoing, GI problem to any doctors as I don't really want to think about the possible poking and prodding. With my luck, they'd do lots of expensive tests and decide "we don't know".....arg!

I know lots of folks on here have mentioned these and that they are much easier than they sound -- hopefully they will come along soon and relieve your fears (and mine!) Hang in there, I'm sure it'll be over before you know it!

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


TiBoBi
Regular Member


Date Joined Mar 2008
Total Posts : 89
   Posted 5/27/2008 10:46 AM (GMT -7)   
I have not had one of these either but I do hope it is completely "uneventful" for you.

Ti

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 5/27/2008 11:23 AM (GMT -7)   
Hi Hippi:

Honey I wish you well with your colonoscopy, I've had five of these done and I can assure you I've never remember a thing about it. The worse part of this test is the prep. I hope that things are fine and that there's nothing seriously wrong. Please keep us posted, and it's all gonna be alright Hippi. You'll be in my prayers.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 5/27/2008 11:28 AM (GMT -7)   
((((( Hippi ))))) I've had 2 colonoscopies and I will be totally honest with you, the prep is the worst part. For me I didn't mind the liquid diet for the day or the after effects from the stuff you drink, it's the stuff you drink that kills me, I just don't tolerate it well. Once you drink it or take the pills (whatever your doctor prefers) as you know you will need to be close to a bathroom, this will go on for a couple of hours.

Once you get there to have the procedure done, they will have you change into a gown, hook you up to monitors and put in a IV (for your happy juice yeah lol). All of this takes longer than the actual procedure itself. Then they will roll you into the room where it will be done, they will ask you to roll over on your side, the doctor will come in with your happy juice and you will be out within seconds! You will wake up with a little discomfort and will need to pass gas. Once you do this a couple of times they will get you up, get dressed and you will be able to go home. For the rest of the day I would suggest taking it easy.

My first one went really well just as I described above. My 2nd one not so easy, everything was fine until I woke up and couldn't pass gas... it wouldn't come out for whatever reason and I was in some pain. They gave me a pill to put under my tongue and ended up doing some reflexology on the bottom of my feet and I finally got some relief. I went home and was fine.

I pray yours goes well, I will be thinking about you. Let us know
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/27/2008 1:34 PM (GMT -7)   
Hey Hippi!!

Having recently had my 3rd c-scope . . . I can tell you its WAY better than a sigmoidoscopy (which is done in the doc's office and no meds. . . . . *phewwwwww!!*

But that prep did get me this last time. I was just nauseous and felt incredibly ill. I found that walking around the house really helped the most to get that stuff down. I hope you don't have to drink too much prep. My first two times I drank two small bottles (8oz each) of something lemmony . . . and then I had to drink X amount of water. I liked that one much better, but this last time I had the Half-Lytly and I was sick after I took the pills, before I even started drinking. But maybe its because I had such gut issues anyway.

So I hope your's goes like my first two did . . . just not pleasant but really not awful.

TMI (so don't read if you don't want too much information) Hippi, make sure you have baby wipes handy because if you clean really well after each poo you'll be less likely to get burned from the D. Make sure you do NOT flush them unless they are flushable wipes.

I did have some discomfort during my last scope but the doc said it was because of the horrible inflammation and damage in there . . . its not normal to feel anything but some distention from the air they use to be able to see in there.

OH!!! Make sure to tell your ENTIRE family which bathroom is OFF-LIMITS for even a minute. You may even want to send your kids to a friend or neighbor for a couple hours during the D because it is so urgent it will either frighten them or, if they are teens, they'll find it funny and it will not be funny to you. Hubby asked me if he could use the bathroom for a quickie and I thought I'd be fine, but I pooped my pants because I suddenly needed to get in their and I just couldn't make it up the stairs in time. Ewwwww not fun!

You WILL be able laugh about it later, but you are right . . . the prep is not fun.

Full report when you are up to it!!! I hope they figure out what is causing your issues.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 5/27/2008 3:27 PM (GMT -7)   
Hippi: I also had one done, the prep is the wourst but you will get through it. I was nervous like you,but you don't feel a thing. Don't be scared. I'm glad I went cause they found polyps. My next Gi app. is next week and he did mention I need another since I's been 5 yrs. Good luck.... Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/27/2008 3:36 PM (GMT -7)   
I had one and the prep was the worst- the drink I was made to use tasted really really nasty and I spent 12 hours on the toilet from the first dose.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1298
   Posted 5/27/2008 4:13 PM (GMT -7)   
Hippie,
 
The prep sucks, the colonoscopy is no big deal.  Had a couple done and will have another done in the fall.  I have an endoscopic exam done at the same time.  Seems like I should get a "two-fer" price but it does not work that way.
 
Eating and drinking afterward is a pleasure.  I made the mistake last time of not having the procedure until 1:30pm...next time early in the morning.
 
Bill


Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 

Post Edited (Bsime) : 5/27/2008 8:54:38 PM (GMT-6)


oldhippyrebel
Regular Member


Date Joined May 2008
Total Posts : 58
   Posted 5/27/2008 4:37 PM (GMT -7)   
I've had several of them and it is the prep that is the killer. I've sleep thur everything else. But the prep, makes me have to live in the bathroom.  Good luck
Fibro since 97, Lupus since 99, neuropathy and other nerve damage.
On to many Meds to list, Finally got a date for SSA of July 1 after to many years of fighting for a hearing.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 5/27/2008 5:10 PM (GMT -7)   
Thanks for all of the encouragment and for the reassurance that the procedure isn't all that bad. I have everything in the bathroom set up and ready:).  Rosie, I did get the wipes and will make sure that everyone else knows that the downstairs bathroom is off limits.  I got several magazines too, to help pass the time with all the time I'll be spending in the bathroom.   I'll just be glad when all this is over. I'm really hoping I just sleep through it.


Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


Post Edited (hippimom2) : 5/27/2008 6:20:38 PM (GMT-6)


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 5/27/2008 6:24 PM (GMT -7)   
Hippimom--
I don't know if I'll catch you but try to get Miralax instead of the cheap-o gallon of burning junk they often give out. I believe it's covered, but many docs don't think to write for it. I can't even take the other stuff, it scalded me inside and out and I guess it left me not only irritated inside, but didn't work well. The miralax is more comfortable.

You won't care what they do to you, if you do remain sort of awake. I laugh and joke and talk with them and I don't remember a thing.

The worst part is the prep, with the laxative. If you can get through that, the drugs will make the rest smooth sailing.

I had to laugh hard at Rosie's post, because it is so so so so true. The miralax is better, and when you get your jug of joy, you might ask if it is the miralax because if it isn't, the pharmacy may be able to get it switched. If you already have it, then you may not have the trouble I had, but my mom and others have recounted similar tales with the cheap stuff.

Well, I hope everything is fine and don't worry, I get em all the time. will be wishing you the best.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/27/2008 6:56 PM (GMT -7)   
Marji . . . . mine was $66 !!!!! I had to pay $30. My insurance paid the rest!! AKKKKKK!!!! What a scam!! I'm going for the miralax and gatorade cocktail next time. They can keep the Go-Lytely and Half-Lytly !!!

"Cheap-o gallon of burning junk!!" . . . still laughing!!!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


mygrljes
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 5/28/2008 5:13 AM (GMT -7)   
Had one three years ago. The prep is worse than the procedure. You get to sleep through the procedure. I wish I could've slept through the prep. Don't fret, the procedure is completely painless, and you get to start fresh with a clean colon afterwords. My GI problems turned out to be lupus caused. I had a lot of inflamation. After the procedure, all the problems I was having were gone.
 
Good luck. You'll be fine.
dix: lupus sle Jan. '99, hypo-thyroid Mar. '06
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day, methotrexate 7.5mg/week, folic acid 1mg/day
wife, mother of three


peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 5/28/2008 5:14 AM (GMT -7)   
Hey Hippie, long time to talk ;-)

I had 2 done and they are a pc of cake. The prep is the worst part, BUT, also the best part.
Cleaning out the system like that makes you feel great. Takes all the toxins out of the colon.
I felt GREAT for weeks after.

As for the test itself, it's so quick and you're so out of it, you won't even remember it.

You're a tough cookie, you'll do FINE

Hug

Jen
The world breaks every one and afterward many are strong in the broken places
 


Loni123
Regular Member


Date Joined Jan 2008
Total Posts : 60
   Posted 5/28/2008 6:25 AM (GMT -7)   
Hi Hippiemom! You are going to do great! The drink and the IV was the worst part for me. I think next time I will take the pills instead of the drink. The doctor said that I was able to tell him where the pain was when he got there but I dont remember a thing hahaha! Oh and the best part was that it made my back pain go away for about 20ish hours!! Good luck to you! Oh dont forget to bring something warm for afterwards(i got cold). 

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/28/2008 7:42 AM (GMT -7)   
Hippi,

I'm sorry you're dreading the procedure so much. Don't worry, you'll do just fine and you won't remember a thing. Be sure to tell the anesthesiologist your fears. If I learned that I was to have one this week I wouldn't worry about it at all. I'll be thinking about you tomorrow and hope you'll let us know how it went.

(((((Hugs)))))

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 5/28/2008 1:06 PM (GMT -7)   
Thank you so much - you have all helped to calm my nerves. I'm in the "I just want to get it over with" phase. Luckily I don't have to drink the "gallon of crud". My husband was supposed to have one last week and did the gallon of crud and all it did was made him sick to his stomach but it didn't start cleaning him out until the next morning so they had to cancel his procedure and I'm not sure he'll do it again after that experience. I have to use the Fleet phospho soda with 8oz of whatever clear fluid I want and then an hour later I take 4 dulcolax pills. I repeat the phospho soda at 5am again. I'm also supposed to drink 8oz of clear fluid every hour up until midnight. I'm relieved I don't do the gallon of yuck stuff.

I'm SO hungry right now - I will really look forward to being able to eat tomorrow. Well, I'll start my prep in about an hour or so, so I probably won't be back online much. I'll let you know how it went when I have recovered. Thanks again for the encouragment.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 5/28/2008 2:43 PM (GMT -7)   
I hope the phospho goes smoothly. Just remember next time to get the miralax if you have problems. It is totally painless and works great, huge improvement. The dulcolax will help.

Rosie, that's what its called Go Lytely! Yeah, that's the junk! I'm LOL, and you had to pay for it? I know medicaid and medicare weren't paying for the miralax, but since now its over the counter, maybe that's why they started paying for it, because last time medicare covered the whole thing of miralax for me, I had to pay a little, but it wasn't a whole bunch I don't think.

Yeah Go Lytely, that's a joke! well it will have you hoppin' and skippin' to the bathroom, sore as all get out! Everyone here is right, you do feel great afterwards because you're all cleaned out. And remember to have someone help you in and out of the car and up any stairs so you don't fall if you are still drowsy afterwards. They kicked me out like "don't let the door hit you" and I was still out of it at home. But I guess thats the way they do it now.

Will be wishing the best for you. And tell your husband, the miralax and gatorade is much better and doesn't hurt at all and I'm very sensitive to this stuff and that I have not one bit of abdominal pain or burning with miralax and I was better able to control things. So there is a better solution for him rather than the Go-lytely. It is quite traumatizing, and I was terrified to do another until they promised me I could do miralax. I could've cared less about the scope, the prep was so bad for me. But it's important to get it done. I had an adenoma.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/28/2008 5:58 PM (GMT -7)   
Yeah!! The phospho soda was the one I did more easily.

You won't be hungry once you start the prep . . . . LOL !!

Just wanted you to know I'm thinking about you right now and I hope you are managing ok Hippie.

Post after your procedure, when you are up to it. And . . . enjoy the sleepy meds!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 5/28/2008 6:59 PM (GMT -7)   
Quite a sodey pop, eh Rosie? ;)
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


doodlebee
Regular Member


Date Joined Mar 2008
Total Posts : 60
   Posted 5/28/2008 8:14 PM (GMT -7)   
(((((Hippi))))) I'll be thinking of you! Hopefully, it will be over with before you know it.
~ Bee

God is the strength of my heart! - Psalm 73:26


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 5/28/2008 10:49 PM (GMT -7)   
I gagged on the fleets stuff- then again I had to get the generic and the taste was horrid. Though all by itself the phosphosoda cleaned me out fast.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/29/2008 4:16 PM (GMT -7)   
Hippi, thinking of you. I hope it all went well today. Than I hope you were able to eat a HUGE MEAL! All I remember about the proceedure was how much it tasted like I was swolling salt water. YUCKO. I'm sure they have changed since than. It sounds like yu got a good cocktail there!
Let us know when you can
love ya
carol
God Bless
Depends on which rheumy you ask! stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 

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