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Loni123
Regular Member


Date Joined Jan 2008
Total Posts : 60
   Posted 5/29/2008 10:32 AM (GMT -7)   
I go in for my 4 month blood work tomorrow. I am so tired of my doctor saying it might be Lupus one visit and no it is prob RA since your sister has it on the next visit! I have come up with a list of labs I want done and I thought I would get all of your thoughts on them.   CRP   ESR   HLA-B27  C-3  C-4 and total complement  I also want him to recheck my ANA and see if it was a flook that it came out positive.  My only symptoms are back pain,freq UTI's,swelling of the hands and feet and fatigue.  I have heard of flare ups from being in the sun but isnt it usually the face rash? When I am in the sun I am fine but when I go back inside I get really tired and feverish, sometimes no temp and others it has gotten up to 101.  Anyway are there other labs I should request? (I know he is going to run an RA factor) Thanks! :-)

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 5/29/2008 11:14 AM (GMT -7)   
Loni123 said...
I have heard of flare ups from being in the sun but isnt it usually the face rash? When I am in the sun I am fine but when I go back inside I get really tired and feverish, sometimes no temp and others it has gotten up to 101.


A flare from the sun doesn't have to be a rash. It can be tired and/or feverish and/or temperature, or any mix and match of all 4 -- mine vary depending on how the lupus decides on any given day. Fun, huh? :-)

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Loni123
Regular Member


Date Joined Jan 2008
Total Posts : 60
   Posted 5/29/2008 2:21 PM (GMT -7)   
Wow I thought it was just a rash that it caused! I hate it! I never really thought about it all these years, just thought everybody was that way so I have never complained. I know they named it after a wolf bite but I feel more like a vampire lol! I guess I should really start paying attention to all of the symptoms, I just really dont want the diagnosis, I keep wanting the results to be wrong. Memory seems to be my second biggest enemy right now, I have to laugh in the morning and say my name just to make sure I know who I am hahaha. tongue

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/29/2008 3:30 PM (GMT -7)   
Hi Loni, I just wanted to say hang in there. Hopfully our doctor will be cooperative and give you all the test you requested. You can get alot from a CBC. I have the fever and brain fog too. It is so embarrassing. Today I was talking to my neice and half way through I forgot what I was saying. She had to repeat what I had said to that point and than it still took a little juggeling to get my brain back up to speed! I really really hate that.
Let us know how the test go.
hugs
carol
God Bless
Depends on which rheumy you ask! stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


Loni123
Regular Member


Date Joined Jan 2008
Total Posts : 60
   Posted 5/30/2008 6:03 AM (GMT -7)   
Thanks okie! I will request a cbc along with the others. They left me a message on my answering machine last night, my appt has been moved to the 4th. That gives me 5 more days to stress over the blood drawing.

Loni123
Regular Member


Date Joined Jan 2008
Total Posts : 60
   Posted 6/5/2008 5:59 AM (GMT -7)   
Oh doctors drive me crazy!! He decided not to do lab work yestarday, he wants to wait another 6 months and when I showed him my list of labs that I wanted he said no. He thinks they are to complicated????? If it were him I bet he would run them!!! So he started me on Celebrex for arthritis and Mirapex for restless legs syndrome. He is also keeping me on tramadol for pain. I guess in 6 months I will rerequest the labs I want again.

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/5/2008 7:31 AM (GMT -7)   
Lori, that really stinks - I am so frustrated for you. What does he mean by the labs being too complicated??!!?? He doesn't have to draw the blood or run the labs. Maybe he thinks they are too complicated for him to interpret, LOL (sorry, I had to get my little dig in). I don't know how much you like your doc, but maybe it's time to look for a new one. My old rheumy got to the point where she just became too passive in both my treatment and in looking for answers.

Hang in there and don't give up.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums



Loni123
Regular Member


Date Joined Jan 2008
Total Posts : 60
   Posted 6/5/2008 8:14 AM (GMT -7)   
Lol that is what I thought to! Yes I have thought about getting a new pcp, what I really want is to got to a rheumy but since I have an HMO i have to wait until my pcp feels it is time! urrrrgghhh!!!! the bad thing about switching is that all the pcp on my plan in my area are in the same office mad .

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 6/5/2008 5:52 PM (GMT -7)   
You need a new PCP pronto. Mine would not dream of treating autoimune conditions or trying to diagnose one-She just signs the referels every three months to whom ever I want to see. (Of course I also have to tell her how to treat sinus infections but at least she doesn't interfere). Sj
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