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NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 533
   Posted 5/31/2008 9:31 PM (GMT -7)   
I am wondering if anyone else with MCTD has had problems with losing their balance and falling.  It seems like the past year or so I have been losing my balance and falling.  I usually fall into a wall at home or bump into a desk or table at work.  The other day though I was filling our fish tank with water using a water pitcher.  My right arm got tired so I switched to my left.  The pitcher felt way heavier in my left hand and it threw my balance off and I dropped it and fell.  Now I have a huge bruise on my leg.  I have been bruising very easily and just had blood work done.  the only problem was a low white blood count.  They tested my platelets and clotting times and they were normal.
 
So, does anyone know if the falling down is anything or am I just clumsy?  I also fell out of a car a couple of months ago.  My foot seemed to get caught in the door and down I went onto the gravel.  Very embarrasing since  I work at an elementary school and it just happened to be a day when parents were there with their children. 
 
Oh, well, sure makes life interesting with these diseases.
 
Take care all.
 
Mary Ann
 
** MCTD,Fibromyalgia,Raynaud's June 2005
**Sleep Apnea - February 2006
**Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
**Meds:  Plaquenil, MTX, Lyrica, Folic Acid, Metoprolol, Lotrel, Vicodin
 "No matter what happens, God is in control.  He is God, I am not, what a relief!"


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/1/2008 2:08 PM (GMT -7)   
Hi Mary Ann,

Count me in. I actually do more falling during or just before a flare. I think (for me) inflammation does something to make me less stable. There is also a lack of strength when this happens.

I have been working, gently, on improving the strength of my core/abs. This has seemed to help a lot. But I'm also stronger than I was during the couple years when I was falling more. Have been fairly stable recently . . . but am so much more careful now too. I keep hiking poles in my trunk and I use them on icy surfaces (parking lots) and whenever there is uneven terrain. The don't look so much like a cane, so I am way willing to use them!!

Make sure you let your doctors know you are falling. This can be a neuro thing too.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 6/4/2008 4:04 PM (GMT -7)   
Hi Mary ann, Just wondering how the falling down is going? I have had that problem. My feet sometimes don't move the way they are suppose to. It's like my brain tells my foot to move and I think it's moving but it just drags. It's hard to explain. They did an mRI but found nothing so I guess they just blame it on the drugs I'm on.
I hope you get some answers. Falling is not a good thing!
hugs
carol


God Bless
Possible sclero.  stage 4 COPD w/CHF,   Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 

Post Edited (okie) : 6/4/2008 8:31:37 PM (GMT-6)


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 6/4/2008 4:57 PM (GMT -7)   
I have problems with falling off and on depending on disease activity and if I have my nerve blocks done (without them my leg gives way a lot).
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


Harmony
Regular Member


Date Joined May 2003
Total Posts : 56
   Posted 6/5/2008 10:39 AM (GMT -7)   
Hi Mary Ann
I have had problems with losing my balance for the last year or more. It's been getting worse lately. I used to have trouble on uneven ground, but now I find myself stumbling or weaving down the sidewalks. I wonder what my neighbors think! So far I've only actually fallen when I've been in my house. When I went to the doctor on Monday she urged me to get a cane. She stressed that if I fall and break something I'll have I rough recovery ahead of me. I know she's right, but I'm having a hard time adjusting to the idea of a cane. I like Rosie's idea of hiking poles. Maybe I'll start with that and see how I do. Then maybe I'll look sporty instead of old and wobbly. LOL

tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 6/5/2008 2:53 PM (GMT -7)   
I use a cane to walk with. I fall alot. I am brused up right now.
Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 533
   Posted 6/5/2008 3:29 PM (GMT -7)   
Thanks, Carol for asking about my falling problem.  I haven't fallen again since last week.  I did lose my balance while walking into a restaurant the night before last.  My husband grabbed me and asked me if I knew I was going to fall right into the door.  Well, of course I know but I have a hard time correcting my balance.  I usually just bump into whatever is near me.  I haven't talked to my doctor about it yet.
 
I don't feel so alone now that some have written and said they have the same problem.  I have thought of getting a cane also,tink.  It probably would help but I am having a hard time adjusting to that need.  I guess if I fall too many times I will have to.
 
I'll keep you posted on how I do.
 
Thanks,
Mary Ann
 
** MCTD,Fibromyalgia,Raynaud's June 2005
**Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
**Meds:  Plaquenil, MTX, Lyrica, Folic Acid, Metoprolol, Lotrel, Vicodin
 "No matter what happens, God is in control.  He is God, I am not, what a relief!"


tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 6/5/2008 4:03 PM (GMT -7)   
I had a problem with the idea myself but I do not want to fall in public and feel like a fool. I have a very nice cane it is white with little blue flowers on it. I got it on my 45th birthday to. I wanted something nice if I had to use one.
Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 6/5/2008 4:23 PM (GMT -7)   
I think you would probably get used to the cane and not give it a lot of thought after a while. It beats the heck out of broken bones! I'm sure glad huby was there to catch ya!
hugs
carol
God Bless
Possible sclero.  stage 4 COPD w/CHF,   Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


Harmony
Regular Member


Date Joined May 2003
Total Posts : 56
   Posted 6/6/2008 5:14 PM (GMT -7)   
Hi Mary Ann:
I have been thinking about your post for days. I think Carol is right that we just need to get a cane and get used to it. (Tink 2, I have seen a cane on the Internet that is beechwood with blue flowers might be like yours, that I've been trying to psych myself into ordering. It really is pretty.) When I think about you falling onto the gravel Mary Ann . . . and think about how many times I've landed on my behind, in comparison why would a cane be embarrassing? It took me awhile to get a handicapped placard even after I had the form from my doctor, but once I did it was so helpful.

Let me know what your doctor says and please stay safe.
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