Night Sweats and Lupus...Lymphoma?

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thickchic
New Member


Date Joined Jun 2008
Total Posts : 15
   Posted 6/1/2008 1:02 AM (GMT -7)   
hello all I am new to the board and wonder if anyone has experienced profuse night sweats? I had a baby 12 mos ago and it seems like since then I have been sweatig at night...it started periodically but at this point its every night.....my Rheumatologist says night sweats arent related to lupus and mentioned TB and lymphoma which kind of alarmed me...I am going to see my primary but wanted to know if any experienced this?
 
I am on Metho, prednisone, a baby aspirin, folic acid....I was diagnosed with lupus in '95.....
 
Thanks in advance!

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 6/1/2008 2:13 AM (GMT -7)   

Hi thickchic, welcome to the group! I had a complete hyster. in my 20's I'm 50 now. My doctor said that my sweats aren't hormone related. I have sweats so bad I throw my pillow off the bed somtimes. It seems to me a lot of us suffer from this problem. I'm sure there will be a lot of replies to your post later today. I'm glad you found us, there are a lot of folks here who are such great support. Hey congrats on the new baby!

hugs

carol 


God Bless
Depends on which rheumy you ask! stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 6/1/2008 9:58 AM (GMT -7)   
One of my initial symptoms was night sweats and I was told they ARE related to lupus. Once I started on prednisone they seemed to calm down quite a lot.

Even now, 8 years later, I sometimes get them but never to the extent I was having them before. I used to have to get up and change clothes AND bedclothes sometimes twice a night.

I had actually had them intermittently long before lupus (starting about age 35) but no cause was ever found. They got a LOT worse the year before I was diagnosed. I am now almost 50 but since there has been no big interruption in my periods they still don't think that the sweats are hormone - produced.

The working idea is that inflammation and fever arrive at night ---

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
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AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 6/1/2008 2:02 PM (GMT -7)   
Hi thickchick,

I don't have a slam-dunk lupus dx (UCTD - maybe sjogrens) . . . but I had bad night sweats after a couple of my children too. I always thought it was from being weak and trying to recover. It did coincide with my physical strength (lack of) . . . but now I'm not sure if that's because the delivery of the babies caused a flare. Sorry I'm not more help.

Lynnwood's info sounds right . . . inflammation.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 6/1/2008 5:39 PM (GMT -7)   
Hi thickchick and welcome. I am like Lynnwood and had really bad night sweats when my lupus symptoms started and I was also told they could be lupus related. Mine got better once my plaquenil kicked in.

I'm glad you joined us - we are a very friendly and supportive group. I look forward to hearing more from you.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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mamamuse
Regular Member


Date Joined Dec 2006
Total Posts : 102
   Posted 6/1/2008 6:57 PM (GMT -7)   
Hmmm...I never knew that could be a part of lupus, too! I have night sweats a couple of times a week. I never even thought to mention them to the rheumy. I always assumed I was just hot-natured. And I am, except the sweats are a relatively new thing, over the past year or so.

I learn something new every time I come to this board! :)
Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain


thickchic
New Member


Date Joined Jun 2008
Total Posts : 15
   Posted 6/1/2008 8:41 PM (GMT -7)   
Let me add ladies that I was diagnosed with lupus in 95 and been prednisone and plaquenil for over 10 yrs....the sweating is a new symptom since having my baby in 06/2007....
my mom and i thought maybe I am pre menopausal ( I am 34) but lymphoma runs in my family ...my father just came thru a transpalnt from 2007 and is still recovering...I also read that lymphoma is common in lupus SLE patients.......

Nickoa
New Member


Date Joined Jun 2008
Total Posts : 4
   Posted 6/16/2008 7:02 PM (GMT -7)   
I am new to lupus as well and was wondering the same thing, " Is night sweats a symptom of Lupus?" I go to my speacialist for the 3rd time July 7th I have wrote down several questions that I desperately need answeres too I will let you know what he says about the night sweats. I hate night sweats its very annoying.

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/16/2008 7:16 PM (GMT -7)   
Hello Nickoa!! Welcome to the forum. I hope you'll start a new topic and introduce yourself so the others will see your post. Most won't see it here.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/16/2008 9:22 PM (GMT -7)   
Hi Nickoa--
I understand your concern. I've both submandibular glands and surrounding lymph nodes out due to autoimmune disease and in one case they showed possible precancerous changes. Fortunately, they were taken out early, which has been my way of dealing with it. I also have scars all over my neck from the surgeries.

I also have been exposed to TB and had active TB for a short time period. From what I understand, active TB is very responsive to antiobiotics, and a chest xray should help clear that up. It's worth getting one if you test positive on the PPD skin tb test, and I would recommend getting one. I think TB is very misunderstood and underdiagnosed and treated in the US vs. other less developed countries where they see many more active cases and understand more the progression of the disease. There is a medication, INH, which can help if you test positive.

On the lymphoma side, I had something called a gallium scan which helped me alot, both to make me less afraid and to determine areas of inflammation and confirm my sjogrens diagnosis. It also can form a baseline for future scans. It did say possible lymphoma, but I don't feel that I have it now at least so I'm not worrying too much.

Gallium likes tumors, but it also likes inflammation of any kind, sinus infection, dry eyes, any inflammation. Your rheumatologist can order a gallium scan to determine if you have significant uptake of gallium in key lymph sites. This can help ease your concerns and also make the docs realize where you do have problems. I think everyone should have one once a year, at least anyone with a serious disease. It's like a full body cancer screen of sorts.

It's important that you pay attention to your neck size and swelling. You should see some of the swelling I had that occured really rapidly in my neck, I looked like Java the Hut--I had no neck, it was like a triagle from my head to shoulders, my neck was really swollen. Examining your mouth is important too to make sure that you aren't having any dark patches or constant irritation or problems. If your neck swells or glands swell elsewhere, you need to get them taken care of right away and if they stay swollen and don't go down, you need to push to get them dealt with. A good ENT is your friend there, especially one that might have some plastic surgery training. If you have trouble swallowing and things like that you need to get it checked out. Also, good dental care and making sure you don't have leaking filling or crowns will save your lymph nodes in your neck, most chronic irritation leading to non-functioning problematic glands comes from teeth, leaking fillings, crowns, or ear infections untreated.

The good news is that they have approved Rituxan, a medicine for lymphoma, for use in sjogrens syndrome (probably because we are 44x more likely to get lymphoma). You might ask about that and get information on it. Also, there was a press release someone here posted about plaquenil, being a tumor necrosis factor suppressant, possibly preventing cancer. This is a really good thing too. Mayo recommended I eat plenty of antioxidents and I try to eat or drink as much as I can. Crystal light has some good drinks that contain antioxidants if you can't have sugar.

I know how you feel and it is really frightening. I think Rituxan holds promise for me if my liver can handle it, but my rheumie after hearing what Mayo had to say, feels its too much of a risk for me unless I'm in dire need. I don't know if he will change his mind or not.

Anyway, I'm around, not always every day, but I understand your fear and you are wise to listen to your body and get these night sweats checked out. I went into really early menopause due to my autoimmune problems and endocrine, having polycystic ovary for a long time without knowing it and I got horrible night sweats. I found that the soy based over the counter estrogen replacements got rid of the night sweats, and so then I knew why I was having them. I think I took estroven.

The best thing is to have the doctor, and perhaps even see the OB/gyn, figure out whats going on and do some testing of your hormones and other stuff. In some ways its good your doc doesn't see them as part of lupus because it should cause him to check out every other possiblity first before just saying, "oh its your lupus" and you hopefully will get better care.

I hope you are okay and feel for you. I know your fear, but feel assured that some of the drugs we take are good at preventing a lot of problems, and I think drugs like Rituxan and other new drugs will be able to stop cancer before it starts. Lets hope so.









Finally
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn

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