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Regular Member

Date Joined Jun 2008
Total Posts : 88
   Posted 6/3/2008 3:48 PM (GMT -6)   
I was just wondering if anyone else ever feels like a total hypochondriac? I don't know about u guys, but I'm so young, (23) and have already had so many complications from my lupus. now I constantly worry about what will happen next. I was diagnosed with heart failure a yr and a half ago, and I constanly find myself panicking that I will go into heart failure again. I'm not sure if this is normal, or if I'm going crazy? Probably the latter of the two! I know that stress can cause lupus flares, but it's so hard not to stress when you have to deal with this disease in the first place!
Thanx for reading!
Lots of love to everyone!

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 6/3/2008 5:55 PM (GMT -6)   
After being so sick as to be debilitated for three years when I finally got meds that worked I worried for over a year that I was going to wake up sick again so I would say its somewhat normal.
On the other hand if this worry interferes with you life on a day to day basis or causes enough stress to complicate your medical condition then ask for help-get therapy or take anti-anxiety medication. There is no need to feel that way all alone seek help and support (you have already done that once here so if you still need help ask again with a dr or therapist.)

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 6/3/2008 6:26 PM (GMT -6)   
Welcome to the forum DQueen!!

So sorry you are having to deal with all of this at such a young age. I'm so glad you found us. Feel free to ask any questions you might have. I am mildly affected with connective tissue and intestinal involvement. . . so not real sick like most here.

Hypochondriac????? He he he he . . . before I was dx'd, I used to 'sneak' naps in the basement. I would go down and throw in a load of laundry and take a nap. I had some great ways to fit in my naps. Then, when I finally realized there was REALLY something wrong, I didn't hide my naps anymore. LOL

Just want to encourage you that you WILL get to know what is YOUR new 'normal'. You'll learn how to pace yourself so that you don't cause unnecessary flares too. That's been a huge help for me. I've learned how to ration my emotional energy. I naturally tend to want to 'help' people with things . . . and I've learned ways to help w/o making myself sick. . . and I've learned how to say "no" graciously when I really can't help.

You'll find lots of amazing folks here and I've learned a lot from reading and posting here.

There are some links at the end of my signature that you might find helpful.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Regular Member

Date Joined May 2008
Total Posts : 35
   Posted 6/3/2008 7:07 PM (GMT -6)   
dqueen, I know how you feel ..I would go the docter and usually find nothing or not much of everthing..During my physical exam last year my sedrate was 59 and my wrist and hands were hurt ..she told me to wear a splint for carpel tunnel and repeat the sedrate in 3 months..  I never did, and so here I em a year later and more symptoms and sedrate to 74.and no carpel tunnel...I still believe that maybe I too em a hypochondriac but now with reason...So maybe we can be legal hypochondriac or something  just believe and never give up....diane

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 6/4/2008 8:10 AM (GMT -6)   
Hi DQueen and welcome. I think a lot of us were made to feel like hypochondriacs at one time or another by doctors or family or friends. But, you are definitely NOT a hypochondriac. I think with you going into heart failure at such a young age, it would be pretty normal to worry about it happening again. Do talk to your doc about your worry though - he or she can maybe help you sort through things and hopefully give you some piece of mind.

I'm glad you found this forum - it's a great place for both support and information.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Regular Member

Date Joined Jun 2008
Total Posts : 88
   Posted 6/4/2008 12:56 PM (GMT -6)   

Thanks guys! This is only my second day in this forum, and I already feel better understood. I have about 3 appts in the next cpl wks, so I will definitely say something to one or all of them! Thanks so much for your understanding and advice!

Lots of love!


Post Edited (DQueen) : 6/4/2008 2:32:21 PM (GMT-6)

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 6/4/2008 3:47 PM (GMT -6)   
((((( DQ ))))) bless your heart, so much to go through at such a young age... I couldn't imagine. I don't know if I ever felt like a hypochondriac because I knew something was wrong with me. But I did have friends that stopped coming around me and family (1 person in particular) that told me it was all in my head. It's hard for people to understand lupus and what we go through. That is one reason I love this board and everyone here, because we each understand what the others are going through. I can talk to the people here when I can't talk to anyone else or when I don't want to complain to hubby anymore.

Take care and please let us know how your appts go. You are in my thoughts and prayers.

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 6/4/2008 5:25 PM (GMT -6)   
Hi Dqueen, welcome to the group! Glad to have ya. I just wish it wasn't because you're sick. Yes I have even been accused of being a hypocondriac before. It wasn't until i went into the hospital that people started realizing it was for real. I have problems with my lungs and have had heart failure before. It is scarey. Do you take pills for that? I am on lasixs. Just keep an eye out for breathing problems and swelling fingers and ankels. I'm sure you know all of that anyway.
Well I just wanted to give you a shout and say welcome. I look forward to getting to know ya.
carol 50 years young.
God Bless
Depends on which rheumy you ask! stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!

Regular Member

Date Joined Jun 2008
Total Posts : 88
   Posted 6/4/2008 5:33 PM (GMT -6)   
Thanks so much! I'm really glad I found you guys. It's nice to talk to people who have been through the same things and  can relate to me. I know what you mean about friends. You find out who your true friends are when something bad happens. I consider myself very blessed though. I have the most loving and supportive family, including my boyfriend. They are there for me every step of the way, good or bad, and no matter how crabby I get! I don't know what I would do without them! They mean the world to me and the time I get to spend with them is priceless and so important to me! A supportive family makes dealing with lupus so much more bearable. Everyone should be so lucky!

Lots of Love!
Lupus, HBP, Anemia, Congestive Heart Failure, Kidney Failure

Regular Member

Date Joined Jun 2008
Total Posts : 88
   Posted 6/4/2008 5:39 PM (GMT -6)   
I look forward to getting to know all of you too. Yes, I was taking lasix, spironolactone, and am still taking Coreg. I take over 20 pills a day for everything.
Lots of Love!
Lupus, HBP, Anemia, Congestive Heart Failure, Kidney Failure

Regular Member

Date Joined Dec 2006
Total Posts : 102
   Posted 6/5/2008 12:06 PM (GMT -6)   
Yeah, I definitely feel that way sometimes. I told DH the other day (after apologizing for complaining yet again about joint pain) that the bad thing about chronic illness is that I want to complain a whole lot more than I do. I mean, if I went on how I felt, I'd be whining all day long...seriously! But I try to reign it in. I feel like others get tired of hearing about it, so I just don't say anything.
I know I'm not a hypochondriac because I have medical proof for everything I'm coping with. If you want to meet a real hypochondriac, meet my mom and my sister-in-law. My mom farts wrong and she thinks she has cancer; my SIL's symptoms change by the day or hour and she says all this weird stuff that just can't be substantiated by medicine. (She is just out there, period!) I think both of them would benefit greatly from an antidepressant because they're both clearly exhibiting signs of clinical depression as well.
Lupus is a complex disease with many manifestations, but having it doesn't make us hypochondriacs...even though we may feel like it at times.
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain

Regular Member

Date Joined Jun 2008
Total Posts : 88
   Posted 6/5/2008 4:30 PM (GMT -6)   
I know what you mean. I feel like I whine and complain all the time. Whenever I am in the hospital for something, the nurses always comment on how quiet I am and that I never complain about anything. My response is usually "You don't live with me!" My family is so great to put up with me. I don't know how they do it! (By the way, my sister has a mother-in-law and sis-in-law that are truly hypochondriacs also!)  

Lots of Love!
Lupus, Rheumatoid Arthritis, High Blood Pressure, Anemia, Congestive Heart Failure, Kidney Failure

Regular Member

Date Joined Oct 2003
Total Posts : 495
   Posted 6/9/2008 5:10 PM (GMT -6)   
Hey, I am standing on a chair and waving my hands in the air.

I want to be counted.
Enjoy what you can today and leave the rest for another day.

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 6/9/2008 7:00 PM (GMT -6)   
Hi DQueen,
   Another welcome coming your way! I'm glad you found this wonderful group of caring, supportive people. They have helped me through some tough times.
   It's good to hear you have such a supportive-loving family and boyfriend to help you through all this. You have been through alot at such a young age and need all the support you can get.
   The others had some wonderful advice for you. I feel like a hypochondriac sometimes when I hear myself talk about my symptoms...... :-) .
    Take care and keep us updated. You will be in my thoughts and prayers.
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 6/9/2008 11:31 PM (GMT -6)   
Honey you are not alone! I think this is one of the main things I struggle with. I also have some hypochondriacs in my family and I can't stand it! So, I try to go the extra mile to hide my symptoms and fear people will think i'm a hypo! Hippo yes, hypo no! :) I can't imagine why anyone would want to be sick! You have every right to be worried about your health and fearful when you feel bad after all you've been through! God Bless your heart! Judy
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