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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 6/4/2008 6:40 PM (GMT -7)   
The nurse from my GI doctor's office called me today with the results of the biopsy taken from my colonoscopy.  It wasn't terrible news, but she said the sample showed inflammation and colitis.  For right now, they are putting me on Flagyl (sp?) for a week for the colitis.  I have an appointment set up in July and they wanted to get me in earlier, but couldn't because the doc is going on vacation, but they told me to call if things get worse.
 
I know none of this is serious, it just stinks that yet another thing is wrong.  I hope this doesn't mean more frequent colonoscopies.  Well, I know nothing about colitis, so I'll go look up some info about it.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 6/4/2008 7:04 PM (GMT -7)   
((((( Hippi ))))) I am sorry you have one more thing to deal with. Have the doctors talked about a treatment plan after the Flagyl? I hope they do what they need to, to get you feeling better. Hang in there and know that you are in my thoughts and prayers.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 6/4/2008 7:14 PM (GMT -7)   
(((((((((Hippi))))))))))))), I'm so sorry sweetie. I know it's so disheartening to try to do everything you can to be as healthy as possible just to find out there is somthing else going on. I really don't know much about colitis. I did have what the doctor called spastic colitis in my 20's but it corrected itself over a years time. Hopfully this medicine will take care of the problem and you won't have to deal with a colonoscopy all the time. Especially with the way the last one turned out. I can't help but wonder if all the meds we have to take has anything to do with it?
love ya
carol
God Bless
Possible sclero.  stage 4 COPD w/CHF,   Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/4/2008 8:05 PM (GMT -7)   
(((((hippi))))) So sorry about the colitis thing. My dad has it. It can be really painful. Two meds: Bentyl (dicyclomine) and Donnatol, both antispasmodics, helped him a great deal, as they help me with irritable bowel. My mom is going through a similar thing and was on Flagyl for a long time. We both puke it up and have a horrible time trying to take it, she finally coated it in peanut butter to try to get it down. Now they have her on constant entocort tapers. In her case, they said she has something like ulcerative colitis but it is not exactly that, it is a rare autoimmune colitis that they don't know much about. This they discovered after many trials with flagyl. The entocort works. That may be something to ask about. I'm pretty sure my mom has lupus, but she won't get tested. She thinks its a big stigma thing, she's not real together about some stuff.

Anyway, I've heard donnatol works better than Bentyl but I'm allergic to Donnatol, which had a belladonna extract in it, and take Bentyl, which works great because it gets rid of the spasms, which do alot of damage. It also gets rid of diarrhea and gas, at least for me, and pain.

I don't know if it means more colonoscopies, usually if they find polyps, they will do them more. I hope not, for you. Glad they figured out what is wrong. There are also blood markers for these conditions that you might be interested in. Hopefully they've got a good diagnosis and will get you on good meds. my dad's is very well managed and you don't even know he has it.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/4/2008 8:15 PM (GMT -7)   
Glad they are treating you Hippi. It really stinks when there is a problem and they can't figure out how to target treatment.

I hope the anti-b works well. I wonder how they follow-up on that. Some of the folks on the crohn's board get some great relief from anti-b's. If the flagyl makes your tummy sick, call the GI and they'll prescribe somethin for nausea (anti-spas med).

Keep us posted!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/5/2008 7:38 AM (GMT -7)   
Thanks everyone and also thanks for letting me know the flagyl might make me sick and to ask for nausea meds if it makes me sick. I did some reading about ulcerative colitis last night and it sounds like another one of the lovely AI diseases that we have to live with and just try to treat since there isn't a cure. Carol, I also wonder if the meds we take play a part in this.

I'm going to try to get to the pharmacy today to pick up my flagyl, although I'm nervous to take it since my stomach is sensitive anyway. I do have once compazine pill left over from after my colonoscopy if I need it it.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 6/5/2008 8:11 AM (GMT -7)   
Hippi, that is so unfortunate. I hope the flagyl works for you and doesn't upset your stomach.  It never seems to end does it.... All the issues. We're here for you if you need to vent - but you already know that!
 
((((((hugs))))))
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7022
   Posted 6/10/2008 9:06 PM (GMT -7)   
I never knew colitis was an AI disease -- never even thought about it -- my mother had SEVERE colitis in the early 70's. I never, ever made any association between that and Lupus. Something new for me to look at.

Thanks

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 6/10/2008 11:01 PM (GMT -7)   
Hippi,
This does stink. I'm really sorry. I guess the good thing is that you have been feeling better lately (as far as increased energy etc. goes) and I hope that continues. Did the dr. say what kind of colitis or where the inflamation is? I hope the flagyl gives you good results while you wait for july to get here.

xoxo emmie
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditis, Raynauds, GERD, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 6/11/2008 3:31 AM (GMT -7)   
Hippi.. I'm sorry you have to deal with this, hope the meds. you are taking don't make you sick. I was diagnose with IBS this week.I go for a colonoscopy sometime this fall. Wish you well!!!! Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
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Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 6/11/2008 6:28 AM (GMT -7)   
Greetings Hippi!

Sorry to hear that yet another issue is in store for you to deal with. I take flagyl often and it does not make me ill. It seems my frequent sinus infections respond well to this antibiotic when combined with one other antibiotic (oops, brain fog has me again!). Anyway, when my problems with lupus and RA began, my rheumy said all of my symptoms could be the beginning of ulcerative colitis. Nothing about this has been discussed since, but, it just proves we have to be on guard about EVERYTHING, doesn't it?

We can only hope and pray that the treatments they decide to use for you will get things under control. Stay strong!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 

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