Fungus among us

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Butterflake
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Date Joined Jun 2006
Total Posts : 1548
   Posted 6/4/2008 7:00 PM (GMT -7)   
Hi Everyone. I've been too sick to call India and get my internet repaired, so I'll be quick.  Flare: extreme weakness (needed help dressing) constant heartburn, thrush, congestion, chills, sweats.  Saw rheumy yesterday. The constant heartburn is from Candida (yeast) growing in my esophagus.  AAAggghhhhh!  So I'm back on diflucan and promise to use my swish and swallow mouthwash until the yeasty bugs are beat into submission.  Rheumy also gave me a Z-pack for the chills/sweats. Lastly, I'm back on medrol and stopping methotrexate. The acupuncture continues to help tremendously with my pain, so that's not an issue and my psych drugs are doing their thing keeping me a happy lupie.  Love, Butterflake
Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, wellbutrin, seroquel, xanax, ambien, celebrex, neurontin, lyrica, arthritis tylenol, promethazine, actonel, multi vit, C, flaxseed oil, acupuncture
Donna
 


jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 6/4/2008 7:08 PM (GMT -7)   
((( Donna ))) glad you gave us an update on how you are doing. You sure have a lot going on, I sure hope the meds help you and fast! I go see Dr. Kim on Monday, have my long list of things to discuss, as usual! Take good care of yourself and feel better soon!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 6/4/2008 7:18 PM (GMT -7)   
Hi Donna, Long time no see. I'm glad that the pain is doing well but the rest of the stuff. Wow, i feel so bad for you. It sounds like a terrible flare! That's kind of scarey about the esophagus. Have you ever had it scoped? I hope you get your puter fixed real soon. But mostly I hope you get over this nasty infection.
love ya
carol
God Bless
Possible sclero.  stage 4 COPD w/CHF,   Osteoporosis,osteoarthritis
Prednisone,Brovana, Pulmacort,zythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!
 
 
 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 6/5/2008 12:31 AM (GMT -7)   
It's 3:00AM. Do you know which lupies are on steroids? Stacie, good luck with your visit with Dr. Kim and thanks for the well wishes. I'm sure Doc Hayes will get me feeling well soon.  Hey Carol, 2 years ago I was scoped and all was well.  Since my tongue currently looks like I spread cream cheese on it, rheumy was able to deduce the esophagus pain. I can be quite stubborn, it took him a bit to convince me. I hate it when I do that! My brain no longer works well enough to debate my MD. Note to self: shut up and listen carefully. Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, wellbutrin, seroquel, xanax, ambien, celebrex, neurontin, lyrica, arthritis tylenol, promethazine, actonel, multi vit, C, flaxseed oil, acupuncture
Donna
 


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 6/5/2008 5:53 AM (GMT -7)   
Hi Butterflake,

So sorry the yeasty bugs got ya!!

Sorry to say this, but the Z-pack will likely give your yeast a good boost. So REALLY stay on the diflucan and the swish/swallow stuff. Also make sure to eat yogurt (with live cultures) or take probiotics. That will help control the yeast too.

Sorry you are having trouble sleeping . . . that is really the pitts!! Keep us posted!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 6/5/2008 7:47 AM (GMT -7)   
(((((Butterflake))))) Uhg, you are certainly having a rotten time with your flare and the candida attack. I hope the Z pack and the medrol help. Please take it easy and I hope you start to come out of your flare soon.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 6/5/2008 8:06 AM (GMT -7)   
Hi Donna,
 
OY, you have it bad right now girl. I'm so sorry you're dealing with so much.  I'm on steroids if you have any questions about them. Like Rosie said, the z-pack will make the yeast worse, likely. 
 
The yeast thing is brutal.  I had issues with it too, until I started taking acidophilus or probiotics (like Rosie mentioned).  I haven't had a yeast issue since.  They're safe to take and are extremely beneficial to our systems.  I take a high potency capsul once or twice a day. 10-15 billion live organizms is what you want.  Keep the bottle in the fridge. I get mine from my naturopath, but you can get a good quality bottle from any health food store.  Just make sure the bottle comes out of the fridge and not from on the shelf.
 
Let us know how you're doing okay,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Harmony
Regular Member


Date Joined May 2003
Total Posts : 56
   Posted 6/5/2008 10:28 AM (GMT -7)   
((((((Butterflake)))))) I sure hope you feel better soon. That is a lot to deal with. Ginny and Rosie have good advice about the acidophilus. Hang in there. I'm glad your sense of humor is still intact. When I read the subject "Fungus Among Us" I had to smile and I thought: That sounds like Butterflake! Just baby yourself for now and curl up in bed with a cup of hot tea. I hope you can distract yourself with a good movie or a good book. Keep us posted.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 6/5/2008 10:56 AM (GMT -7)   
Thanks for the well wishes ladies.  I'm allergic to milk, certain other dairy (yogurt), and eggs, but Rosie and Ginny, I completely forgot about the probiotics. I bet they will really help!! Hippi- always good to hear from you. Harmony- thanks for the warm fuzzy. I'm going back to bed.  Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, wellbutrin, seroquel, xanax, ambien, celebrex, neurontin, lyrica, arthritis tylenol, promethazine, actonel, multi vit, C, flaxseed oil, acupuncture
Donna
 


tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 6/5/2008 2:51 PM (GMT -7)   
Sorry to hear you are so sick. Sounds harid what you have. Take are and feel better.
Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 6/9/2008 5:55 PM (GMT -7)   
My rheumy prescribed twice a day Nystatin to help with all the yeast issues (yes, from steroids) -- it really took care of the vaginal yest, thrush, and all the gas/gi issues I was having. We had tried the probiotics, a thrush treatment, and a genital yeast treatment, but everything kept coming back.

I've now been on Nystatin, one AM, 1 PM, for quite a while and am happy with the results.

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Post Edited (Lynnwood) : 6/10/2008 10:53:16 AM (GMT-6)


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 6/9/2008 7:43 PM (GMT -7)   
Hi Donna!

I am on prednisone, too. Like Rosie, I take probiotics everyday. It is good to get the kind you store in the fridge but I have also been lucky with a brand called "Pearls" that I can carry in my purse. I get them at a health food store and, recently, was able to purchase them at Meijer. They are small and look like little pearls! I would take them four or more times a day at first to get a good start with the probiotics.

I am so sorry you have to deal with this - it is awful! I haven't had to deal with the Nystatin in a long time but I remember how soothing it was to swish it in my mouth. Does your mouth feel sore from the thrush? Mine did. I hope you are starting to feel better!

Prayers to you!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 6/10/2008 7:08 PM (GMT -7)   
Tink, Lynnwood and Audrey Ann thanks so much for the tips and well wishes. My tongue is so swollen it presses against my teeth, so I have ulcers too. I've started the probiotics and I didn't have a clue that nystatin came in pill form.  That's great to know in case the probiotics don't kill my yeast (I'm visualizing).  On the down side, I have been getting progressively weaker since my rheumy visit last Tues, and I really didn't think I could get any weaker.  My internist wasn't in, so I saw a PA who consulted with their endocrinologist. Lots of blood drawn and started 20mg prednisone per day for 1 month, decreasing 1mg per month.  My face is so puffed that my eyes are just teeny, tiny slits. It's a good thing I remember where my lips are or I'd be the first lupie to starve while on prednisone. Thanks again ladies. Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, wellbutrin, seroquel, xanax, ambien, celebrex, neurontin, lyrica, arthritis tylenol, promethazine, actonel, multi vit, C, flaxseed oil, acupuncture
Donna
 


Harmony
Regular Member


Date Joined May 2003
Total Posts : 56
   Posted 6/11/2008 11:04 AM (GMT -7)   
((((((Butterflake)))))) I have been wondering how you were doing. I'm so sorry you are going through this. Have you called your rheumy? Was your face that swollen when he/she saw you on Tuesday? When will your internist be back? I hope the probiotics and the prednisone start working soon and I hope you have someone to help you out at home. We're thinking about you and wishing you the best. Keep us posted.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 6/11/2008 11:50 AM (GMT -7)   
Hi Harmony. I live with my boyfriend who is a statistician so he keeps regular working hours. My 23 y/o daughter helps by taking me to medical appts. She lives in my house about 6 miles away.  As for the swollen face, my rheumy was perplexed.  The endocrinologist thinks it's steroid related, but he ordered lots of tests to be sure.  I called my rheumy and he agreed with the 20mg pred/day. I see my internist Monday. As much as I hate prednisone, if it gives me some energy, I'm all for it. I really appreciate your (and everyone's) concern. It means so much to me.  Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, wellbutrin, seroquel, xanax, ambien, celebrex, neurontin, lyrica, arthritis tylenol, promethazine, actonel, multi vit, C, flaxseed oil, acupuncture
Donna
 


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 6/11/2008 7:27 PM (GMT -7)   
Had candida in my esophagus twice and it was treated with diflucan.  First time was very difficult to get under control and then had it again about a year later.  Unfortunately I have developed barretts esophagus which is probably due to my polymyositis but the infection did not help my digestive tract to function properly.
 
Candida is difficult to treat and in someone whose immune system is suppressed it is more difficult.
 
Hope you feel better.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 6/11/2008 8:59 PM (GMT -7)   
Hi Donna,

Ooooooh, ouch! I feel so, so bad for you. This is one uncomfortable, painful infection. I had the exact same thing this past February--candida coating every available surface in my mouth and down my esophagus. I ran fevers over 102 to over 103 degrees. I also had a wicked ulcer on my tongue. I was one miserable, leave me alone, don't leave me alone, I'm hot, I'm cold, I don't know what I want kind of person.

My white blood count was nearly 0; my neutrophils were 2. I can't remember the normal ranges but it was serious. I begged them not to admit me to the hospital. I promised I would go in the next day if I didn't show some improvement. The next day I started turning the corner so I escaped hospital h*ll.

Take good, good care of yourself. Get totally over it before you resume "normal" routine and activities. Infections like this really take a lot out of you.

xoxo emmie
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditis, Raynauds, GERD, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia

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